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1998
Wilner, MaryAnn, Wyatt Ann.  1998.  Independence Care System: Managed Care for People with Disabilities.
The goal of Independence Care System is to enable people with disabilities to remain at home or in the least restrictive setting possible by integrating the full range of primary care, acute care, and home and community-based services in a comprehensive, flexible manner. Internet publication URL: www.independentliving.org/docs4/ar3982.html
Nadash, Pamela.  1998.  Independent Choices: Enhancing Consumer Direction for People with Disabilities.
Allowing consumers to manage and direct the long-term services they need acknowledges that they are the best judges of their own needs and the best decision-makers on how these needs get met - an acknowledgment seldom made. Internet publication URL: www.independentliving.org/docs4/ar3983.html
Brichtová, Lydia.  1998.  "Independent Living and proposed Slovak social reforms.".
Lydia Brichtová speaks about the changes adopted in social/disability legislation since 1989. Internet publication URL: www.independentliving.org/docs1/hr8.html.
Dr. Adolf Ratzka.  1998.  Independent Living in der Slowakei.".
1997 wann das Institut für Independent Living Projektverträge in der Slovakischen Republik im Rahmen des EU PHARE Programms für die Einführung eines Models für Persönliche Assistenz mit Bargeldleistungen an die Assistenznehmer sowie eines Models für ein rollstuhlgerechtes, der Öffentlichkeit zugängliches, Taxisystem mit Subventionierung der behinderten Reisenden. Der Artikel diskutiert die besonderen Schwierigkeiten und Möglichkeiten von benutzer-initierten und benutzer-betriebenen Lösungen in post-kommunistischen Gesellschaften. Internet publication URL: www.independentliving.org/docs3/slovakiade.html (In German.)
Independent Living Institute.  1998.  Independent Living Institute (ILI) Annual Report 1997.
Internet publication URL: www.independentliving.org/docs1/ilanrp1997.html
Independent Living Institute.  1998.  Independent Living Institute Verksamhetsberättelse 1997.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1997.html
Dr. Adolf Ratzka.  1998.  Inledning på Konferensen om Lagstiftning för Mänskliga Rättigheter, Stockholm, Sweden, 24 augusti 1998.
Internet publication URL: www.independentliving.org/docs1/hr2.html (In Swedish.)
Ishikawa, Jun, Nagase Osamu(eds.).  1998.  "Invitation to Disability Studies" New book on disability studies in Japanese.
A collection of texts and resources by persons with disabilities for disabled people. (in Japanese.) Internet publication URL: www.independentliving.org/docs5/nagase.html
Clarke, Dr. Angus.  1998.  Issues Arising from Genetics - Genetics and Disability.
In his presentation Dr. Angus Clarke, of the Institute of Medical Genetics at the University of Wales College of Medicine, discusses issues raised by genetics in disability, outlines the uses of genetic testing and his concerns about how it is developing, as well as the different uses for genetics in general and with regard to reproductive screening, and the problems surrounding this issue. Internet publication URL: www.independentliving.org/docs1/dpibethics2.html.
Cunningham-Burley, Dr. Sarah.  1998.  Issues Arising from Quality of Life. Seminar on Bioethics and Disabled people.
In her presentation, Dr. Sarah Cunningham-Burley, from the Department of Public Health, University of Edinburgh, looked at the way in which quality of life issues are affecting medical decisions, including decisions about genetic testing, and related this to a study of how the general public views these issues. Internet publication URL: www.independentliving.org/docs1/dpibethics3.html. In: Disabled Peoples' International (DPI). 1998. "Seminar on Bioethics and Disabled people." Internet publication URL: www.independentliving.org/docs1/dpibethics.html
Bracking, Stuart, Cowan Ross.  1998.  It's MY life - An introduction to Independent Living.
Stuart Bracking and Ross Cowan (Gateshead Council on Disability) offer definitions and examples of the concepts independent living, personal assistance, and disability, comparing the medical and social models. Internet publication URL: www.independentliving.org/docs4/bracking1.html.
Enns, Henry.  1998.  Journey to the Middle East.
This account describes the organizational efforts of disabled people encountered by Henry Enns, Executive Director of Disabled Peoples’ International and Marion Stroud, a member of the International Committee on the Mennonite Central Committee (MCC), during their visit to five countries in the Middle East. Their mission was to explore ways that MCC could support the grassroots development of disabled people in these countries. Internet publication URL: www.independentliving.org/enns1998middle_east
Handikappombudsmannen, Independent Living Sverige.  1998.  Konferensen om Lagstiftning för Mänskliga Rättigheter, 24 augusti 1998, Stockholm.
This introduction to the conference on Legislation for Human Rights held in Stockholm on August 24, 1998, presents links to reports by experts from several countries with anti-discrimination legislation in connection with disability about how the legislation has functioned in their countries and their reflections on the situation of disabled people in their respective countries. Internet publication URL: www.independentliving.org/docs1/hr0.html (In Swedish.)
Enns, Henry.  1998.  Konflikter och personer med funktionsnedsättning.
Internet publication URL: www.independentliving.org/docs1/dispeopleintldev2sv.html
Hurst, Rachel.  1998.  Leading Disabled Activist, Awarded Highest U.S. Honour.
In February 1998, disability activist Justin Dart was awarded the Presidential Medal of Freedom - the highest civilian honour in the USA. Internet publication URL: www.independentliving.org/docs4/hurst98a.html
Rennerstedt, Kristina.  1998.  Legala aspekter av diskrimineringslagstiftning i Sverige.
Kristina Rennerstedt, av Justitiedepartementet tala om möjligheter och svårigheter i Sverige med diskrimineringslagstiftning som metod för att ge människor med funktionshinder samma möjligheter som andra. Internet publication URL: www.independentliving.org/docs1/hr7.html (In Swedish.)
Montero, Federico.  1998.  Legislation on Disability: The Costa Rican Experience.
Despite the country's relative good respect for human rights and our democratic system, disabled people still do not enjoy equal rights and participation in all aspects of society. Among the factors that prevent disabled people from full citizenship are negative attitudes against disability. Internet publication URL: www.independentliving.org/docs1/hr12.html
Guttmann, Eva Janzon.  1998.  Minister som värnar.
Sociala skyddsnät och omsorg om alla grupper i samhället. Så vill vi gärna tro att det är i Sverige. Men för många människor med funktionshinder ser verkligheten annorlunda ut. (In Swedish.) Internet publication URL: www.independentliving.org/docs3/ejg1998.html
Albert, Bill.  1998.  The New Genetics and Disabled People.
The following paper draws heavily on the British Council of Organisations of Disabled People's (BCODP) discussions on the issue of genetics and disabled people. Please note that this paper is NOT BCODP policy but rather a discussion document intended to encourage debate within the movement. For more information on the issue of genetics and disabled people BCODP please refer to the BCODP web site. Internet publication URL: http://www.independentliving.org/docs1/albert1998.html
Disabled Peoples' International - European Region.  1998.  Panel Discussion - Open Debate, Seminar on Bioethics and Disabled People (1998).
Internet publication URL: www.independentliving.org/docs1/dpibethics5.html. In: Disabled Peoples' International (DPI). 1998. "Seminar on Bioethics and Disabled people." Internet publication URL: www.independentliving.org/docs1/dpibethics.html
Willig Levy, Chava.  1998.  A People's History of the Independent Living Movement.
Chava Willig Levy relates stories from the IL Movement to create a people's history. This mongraph explores human rather than social forces. It looks at who rather than what shaped the IL movement. Internet publication URL: www.independentliving.org/docs5/ILhistory.html
Belli, Raffaello.  1998.  Personal Assistance Legislation in Italy.
Raffaello Belli reports on various pieces of Italian legislation applying to payment of personal assistance for people with disabilites. Internet publication URL: www.independentliving.org/docs1/belli1998.html.
Litvak, Simi.  1998.  Personal Assistance Service Policy: Where We Have Been and Where We Are Going.
Dr. Simi Litvak examines the current state of Personal Assistance Services (PAS), and how they might be improved in a fiscal, quality, and humanitarian sense. Internet publication URL: http://www.independentliving.org/docs4/ar4984.html
Brown, Steven E.  1998.  Poster Kids No More:' Perspectives About the No-Longer Emerging (In Fact, Vibrant) Disability Culture.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, takes an opportunity to review a decade of investigating and promoting disability culture. This piece quotes liberally from previous Brown publications, and attempts to put into perspective both opinions that challenge the concept of a disability culture and those that support it. In: Disability Studies Quarterly, 18(1) (Winter 1998), 5-19. (PDF, 160 KB.) Internet publication URL: www.independentliving.org/docs3/brown98a.html. In Internet publication URL: www.independentliving.org/docs3/brown98a.pdf.
Barnes, Colin.  1998.  Presentation at the Seminar on Human Rights for Persons with Disabilities from a North and South Perspective Stockholm, Sweden, 1998-08-23.
In his presentation at the seminar organized by Independent Living Sweden, Stockholm, Professor Colin Barnes of the Disability Research Unit in Leeds, UK, discusses rights and conditions for disabled persons in the UK and developed countries as compared to those in developing countries. He raises questions concerning the efficacy of legislation, the concept of rights, disability as one of many forms of social oppression, how developed countries’ economic policies are responsible for disability in developing countries, the role of organizations in improving conditions for disabled people, and the importance of the right to life. Internet publication URL: www.independentliving.org/docs1/stlm19980823g.html.
Könkkölä, Kalle.  1998.  Presentation at the Seminar on Human Rights for Persons with Disabilities from a North and South Perspective Stockholm, Sweden 23 August, 1998.
Kalle Könkkölä discusses the organization's perspective on human rights. Internet publication URL: www.independentliving.org/docs1/stlm19980823b.html
Könkkölä, Kalle.  1998.  Presentation vid Seminarium om mänskliga rättigheter för personer med funktionsnedsättning ur ett nord- och sydperspektiv Stockholm, Sverige 23 augusti 1998.
Internet publication URL: www.independentliving.org/docs1/stlm19980823bsv.html (In Swedish.)
Batavia, Andrew I.  1998.  Prospects for a National Personal Assistance Services Program: Enhancing Choice for People With Disabilities.
Mr. Batavia is Associate Professor, School of Policy and Management, College of Urban and Public Affairs, Florida International University, North Miami, Florida. The article was published in American Rehabilitation, Volume 24, Number 4, Winter 1998, Personal Assistance Services Part 2 of 2. American Rehabilitation is the official publication of the Rehabilitation Services Administration (RSA) 330 C Street S.W. Washington D.C. 20202-2531. Internet publication URL: www.independentliving.org/docs6/batavia1998.html.
European Commision.  1998.  Raising Employment Levels of People with Disabilities - The Common Challenge.
In light of the European Employment Strategy, and drawing on the analysis of some key elements of the 1998 Member States' National Action Plans, this paper seeks to establish a set of fundamental policy issues concerning employment and disability. Internet publication URLs: http://www.independentliving.org/docs3/ec1550.html and http://www.independentliving.org/files/ec1550.pdf
PDF icon ec1550.pdf (38.37 KB)
United Nations.  1998.  Report of the United Nations Consultative Expert Group Meeting on International Norms and Standards Relating to Disability.
Experts in international law and disability policy issues review and discuss issues and trends relating to the practical application of international norms and standards to promote the human rights of persons with disabilities. Internet publication URL: www.independentliving.org/docs4/disberk0.html
Enns, Henry.  1998.  Resa till Mellanöstern.
Internet publication URL: www.independentliving.org/enns1998mellanostern
Rehabilitation Services Administration (RSA).  1998.  Resolution om Personlig assistans.
Antagen av deltagarna på International Personal Assistance Services Symposium, sponsrat av World Institute on Disability. Symposiet ägde rum i Oakland, Kalifornien, den 29 september till den 1 oktober 1991. Artikeln är tidigare publicerad i American Rehabilitation Volym 24, nummer 4, Vintern 1998 Personal Assistance Services del 2 av 2. American Rehabilitaion är Rehabilitation Services Administrations (RSA) officiella publikation. Adress: 330 C Street S.W Washington D.C. 20202-2531. Internet publication URL: www.independentliving.org/docs6/rsa1998sv.html (In Swedish.)
Rehabilitation Services Administration (RSA).  1998.  Resolutions on Personal Assistance Services.
Passed by Participants of the International Personal Assistance Services Symposium Sponsored by the World Institute on Disability, Convened September 29 to October 1, 1991, Oakland, California. Published in: American Rehabilitation, Volume 24, Number 4, Winter 1998, Personal Assistance Services, Part 2 of 2. American Rehabilitation is the official publication of the Rehabilitation Services Administration (RSA) 330 C Street S.W. Washington D.C. 20202-2531. Internet publication URL: www.independentliving.org/docs6/rsa1998.html
Disabled Peoples' International - European Region.  1998.  Seminar on Bioethics and Disabled People (1998).
Summaries of papers on Genetics & Bioetheics at the DPI Seminar. Presentations given by, Dr. Angus Clarke, Dr. Sarah Cunningham, and Dr. Theresia Degener, followed by an open debate. Internet publication URL: www.independentliving.org/docs1/dpibethics.html
Heumann, Judith E.  1998.  Seminar on Human Rights for Persons with Disabilities from a North and South Perspective.
From her perspective as Assistant Secretary for the Office of Special Education and Rehabilitative Services (USA), Judy Heumann speaks on disability rights. Internet publication URL: www.independentliving.org/docs1/stlm19980823c.html
Dr. Adolf Ratzka.  1998.  Sexualitet och människor med funktionshinder: vad experterna ofta inte känner till.".
For many of us who have extensive disabilities our sexual liberation does not so much depend on sex counselling or mechanical sex aids but on the availability of tax-funded personal assistance services which empower us to take control over our own lives. Internet publication URL: www.independentliving.org/docs5/sexuality2.html (In Swedish.)
Dr. Adolf Ratzka.  1998.  Sexuality and people with disabilities: What experts often are not aware of.
For many of us who have extensive disabilities our sexual liberation does not so much depend on sex counselling or mechanical sex aids but on the availability of tax-funded personal assistance services which empower us to take control over our own lives. Internet publication URL: www.independentliving.org/docs5/sexuality.html
European Network on Independent Living (ENIL).  1998.  Shaping Our Futures, A conference on Independent Living.
Facing our futures brought together disabled experts on independent living, to share experience and map out future strategies. The conference set out to consider the social and economic arguments for independent living. Internet publication URLs: www.independentliving.org/docs2/enilfuture.html and www.independentliving.org/docs2/enilfuture.pdf
[Anonymous].  1998.  Time Magazine Recognizes Adolf Ratzka as European Visionary. Time Magazine.
Concrete Change.  1998.  United Kingdom Single Family Access Law.
Internet publication URL: www.independentliving.org/docs6/concrete-change1998.html.
DO-IT.  1998.  The University of Washington, Access To Higher Learning.
This guide outlines universal design principles to develop accessible college and university computer labs. Internet publication URL: www.independentliving.org/docs1/doit1998.html
Batavia, Andrew I.  1998.  Utsikter för ett Nationellt Personlig program för personlig assistans: att öka valmöjligheter för personer med funktionsnedsättning.
Andrew Batavia är Associate Professor vid School of Policy and Management, College of Urban and Public Affairs, Florida International University, North Miami, Florida. Artikeln, Prospects for a National Personal Assistance Services Program: Enhancing Choice for People with Disabilities, är tidigare publicerad i American Rehabilitation Volym 24, nummer 4 Vintern 1998 Personal Assistance Services del 2 av 2. American Rehabilitation är Rehabilitation Services Adminsitrations (RSA) officiella organ. Adress: 330 C Street S.W Washington D.C. 20202-2531. Internet publication URL: www.independentliving.org/docs6/batavia1998sv.html.
Iglesias, M, Gil G, Joneken A, Mickler B, Knudsen J S.  1998.  Violence and Disabled Women.
The report describes the situation of women with disabilities who are abused, analyzes various types of violence, describes general policies combatting violence against women with disabilities in Denmark, Germany, Sweden and Spain, and offers policy recommendations. It was carried out under the METIS project, European Unión DAPHNE initiativ. Internet publication URLs: www.independentliving.org/docs1/iglesiasetal1998.html (In English) and and www.independentliving.org/docs1/iglesiasetal1998sp.html (In Spanish).
Beatty, Philip, Adams Martha, O´Day Bonnier.  1998.  Virginia brukarstyrda personliga assistansprogram: En historik och utvärdering.
Beatty, Philip, Adams Martha, O´Day Bonnier.  1998.  Virginia's Consumer-Directed Personal Assistance Services Program: A History and Evaluation.
Brown, Steven E.  1998.  What Happened To Architectural Accessibility?
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, discusses the issue of architectural accessibility and wonders why this so-called easy aspect of accessibility can still be so difficult to find and why more people aren’t talking about and taking action to increase architectural accessibility. Internet publication URL: www.independentliving.org/column/brown1_00.html.
Wolbring, Gregor.  1998.  Why Disability Rights Movements Do Not Support Euthanasia: Safeguards Broken Beyond Repair.
We believe that euthanasia is another technique to free society of disabled people and another expression of the ableism in western societies. Internet publication URL: www.independentliving.org/docs5/Wolbringeuthanasia.html
Bartz, Elke.  1998.  Zur Lage der Assistenznehmer in Deutschland.
Internet publication URL: www.independentliving.org/docs1/bartz199802.html.
1997
Dunn, Peter A.  1997.  A Comparative Analysis of Barrier-Free Housing: Policies for Elderly People in the United States and Canada.
This paper identifies policy issues in creating barrier free housing for elderly people with disabilities in the United States and Canada. The strengths and weaknesses of a variety of policy approaches are contrasted. The approach in the United States which emphasizes individual housing rights is compared to the more social welfare approach used in Canada. Internet publication URL: www.independentliving.org/docs5/dunn1997b.html
Council of the European Union.  1997.  Directive 2000/ /EC of the European Parliament and of the Council of the European Union.
Internet publication URL: Internet publication URL: www.independentliving.org/docs4/eu97bus.html
PDF icon eu97bus.pdf (569.45 KB)
Lagadien, Fadila.  1997.  Disabled Women and the Media - Presentation for National Women's Day.
Fadila Lagadien considers how media communicates images of the estimated 13 per cent of disabled South Africans, especially women with disabilities. Internet publication URL: www.independentliving.org/docs1/fadila97.html
Brown, Steven E.  1997.  Dis-ing Definitions.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, attempted to reframe how people think the language and status of disability. First published in Mainstream: Magazine of The Able-Disabled, August 1997. Internet publication URL: www.independentliving.org/docs3/brown97b.html.
Dr. Adolf Ratzka.  1997.  Eradication of "deviants": the dark side of the Swedish Model.".
Sweden's policy of forced sterilization of disabled people and others shocked the world. Dr. Adolf Ratzka comments on the news. Internet publication URL: www.independentliving.org/docs5/Sterilization.html
Michailakis, Dimitris.  1997.  Government Action on Disability Policy, A Global Survey.
Internet publication URL: www.independentliving.org/standardrules/UN_Answers/UN.pdf
Michailakis, Dimitris.  1997.  Government Implementation of the Standard Rules As Seen By Member Organizations of World Blind Union - WBU.
Internet publication URL: www.independentliving.org/standardrules/WBU_Answers/WBU.pdf
Michailakis, Dimitris.  1997.  Government Implementation of the Standard Rules As Seen By Member Organizations of Disabled Peoples' International - DPI.
Internet publication URL: www.independentliving.org/standardrules/DPI_Answers/DPI.pdf
Michailakis, Dimitris.  1997.  Government Implementation of the Standard Rules As Seen By Member Organizations of World Federation of the Deaf - WFD.
Internet publication URL: www.independentliving.org/standardrules/WFD_Answers/WFD.pdf
Michailakis, Dimitris.  1997.  Government Implementation of the Standard Rules As Seen By Member Organizations of Inclusion International (ILSMH).
Internet publication URL: www.independentliving.org/standardrules/InclInt_answers/ILSMH.pdf
Michailakis, Dimitris.  1997.  Government Implementation of the Standard Rules As Seen By Member Organizations of Rehabilitation International - RI.
Internet publication URL: www.independentliving.org/standardrules/RI_Answers/RI.pdf
Dunn, Peter A.  1997.  Government policy innovations and trends in barrier-free housing, accessible transportation and personal supports.
In this paper, Peter A. Dunn, Associate Professor in the Faculty of Social Work at Wilfred Laurier University, Canada, outlines some of the provincial and territorial policies in Canada that began to incorporate independent living (IL) principles during the UN Decade of Disabled Persons (1983-1992). It focuses upon three areas: barrier-free housing, accessible transportation and attendant services/ personal supports. Internet publication URL: www.independentliving.org/docs5/dunn1997a.html
Miles, M.  1997.  Home Visiting with Mama Kitenge, Community Based Rehabilitation Fieldworker, Tanzania.
A morning in the poorer parts of Dar es Salaam is described, during which Mama Kitenge visits families with children having mental and other disabilities and works with these childen and their caregivers. Internet publication URL: www.independentliving.org/docs3/milesm1997a.html
Dr. Adolf Ratzka.  1997.  Independent Living and Our Organizations.
Internet publication URL: www.independentliving.org/toolsforpower/tools7gr.html (In Greek).
Dr. Adolf Ratzka.  1997.  Independent Living and Our Organizations: A Definition.
We are the last minority to fight for our rights and we will not go away. Even with the most sophisticated prevention, early detection and rehabilitation services there will always be people with disabilities and we have to build our societies in such a way that everybody can live in them with dignity and self-respect. Presentation at the conference "Our Common World" organized by Disability Rights Advocates Hungary in Siofok, Hungary, May 9-11, 1997.
Independent Living Institute.  1997.  Independent Living Institute (ILI) Annual Report 1996.
Internet publication URL: www.independentliving.org/docs1/ilanrp1996.html
Independent Living Institute.  1997.  Independent Living Institute Verksamhetsberättelse 1996.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1996.html
Office on the Status of Disabled Persons, South Africa.  1997.  Integrated National Disability Strategy- White Paper.
White Paper from the Office of the President, South Africa. Disabled people should not be seen as objects of pity but as capable individuals who are contributing immensely to the development of society. Internet publication URL: www.independentliving.org/docs5/SANatlDisStrat.html
Brown, Steven E.  1997.  Movie Stars and Sensuous Scars.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, discusses love and sexuality in an autobiographical article. First published in Mainstream: Magazine of the Able-Disabled, February 1997. Internet publication URL: www.independentliving.org/docs3/brown97a.html.
Brown, Steven E.  1997.  Oh, Don't You Envy Us Our Privileged Lives?
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, reviewed the history of disability culture and its artifacts. A Review Of The Disability Culture Movement." First published in "Disability & Rehabilitation, August 1997. Internet publication URLs: www.independentliving.org/docs3/brown97c.html, www.independentliving.org/docs3/brown97c.pdf and www.independentliving.org/docs3/brown97c.doc (PDF, 62 KB; Word, RTF, 73 KB.).
Handi Cap Evasion.  1997.  Peru 1997.
See how travelling with a disability just got easier with the Joëlette in action on a trip to Peru, where even the toughest terrain can be conquered with this wonderful invention! Internet publication URL: www.independentliving.org/docs5/Peru1997.html
South African Human Rights Commission.  1997.  Policy Paper from the South African Human Rights Commission 1997 # 5 : Disability.
Internet publication URL: www.independentliving.org/docs6/sahr1977.html  
Leone, Jayne.  1997.  Power, Control, Confidence, and Courage.
Becoming an active participant in what happens to you requires that you feel empowered, exercise self-control, feel self-confident and have courage. Internet publication URL: www.independentliving.org/docs5/Leone97.html
Lagadien, Fadila.  1997.  Presentation för nationella kvinnodagen 1997 Telekom - firande inför kvinnodagen.
Fadila Lagadien considers how media communicates images of the estimated 13 per cent of disabled South Africans, especially women with disabilities. Internet publication URL: www.independentliving.org/docs1/fadila97sv.html (In Swedish.)
Association for Persons with Severe Handicaps (TASH) - Disability Advocacy Worldwide.  1997.  Resolution Opposing the Legalization of Physician Assisted Suicide.
In their 1997 resolution opposing the legalization of physician assisted suicide, the Association for Persons with Severe Handicaps (TASH) provides a long list of reasons for their opposition to physician assisted suicide, including the negative aspects of allowing physicians to have such power, the insufficiency of proposed safeguards, and dissatisfaction with the implementation of safeguards in conjunction with euthanasia in the Netherlands. Internet publication URL: www.independentliving.org/docs6/tash199712.html
Wallace, Mary.  1997.  Symposium on Disability and Human Rights.
Closing address by Ms. Mary Wallace, T.D., Minister of State at the Department of Justice, Equality and Law Reform. Internet publication URL: www.independentliving.org/docs2/enilirishspeech9711.html
Aslaksen, Finn, Bergh Steinar, Bringa Olav Rand, Heggem Edel Kristin.  1997.  Universal Design Planning and Design for All.
This report attempts to develop and illustrate the concept of universal design, which opposes, ideologically and politically, all unnecessary and stigmatizing specialized solutions. The principles and definitions of universal design were developed by The Center for Universal Design, USA. The Norwegian State Council on Disability. Internet publication URLs: www.independentliving.org/docs1/nscd1997.html and www.independentliving.org/docs1/nscd1997.pdf (5.26 MB)
Cowan, Ross, Watson Bob.  1997.  Vad vill jag göra? En DIY (do it yourself, "gör det själv") manual/guide till självbedömning för personer med funktionsnedsättning
This Gateshead Personal Assistance Pilot Project quide provides information and advice to disabled people who wish to live independently by using personal assistance. The Guide focusses on assessing your needs. Internet publication URL: www.independentliving.org/docs4/gateshead1b.html (In Swedish.)
Cowan, Ross, Watson Bob.  1997.  What do I want to do? a DIY guide to self-assessment for Disabled people
This Gateshead Personal Assistance Pilot Project quide provides information and advice to disabled people who wish to live independently by using personal assistance. The Guide focusses on assessing your needs. Internet publication URLs: www.independentliving.org/docs4/gateshead1.html and www.independentliving.org/docs4/gateshead1.pdf
PDF icon gateshead1.pdf (34.78 KB)
Handi Cap Evasion.  1997.  What is a Joëlette?
Read about how one parent's invention made travelling easier and more pleasant for his son, despite the latter's disability. The Handi Cap Evasion Website is at www.hce.asso.fr/eng/ (in English and French). Internet publication URL: www.independentliving.org/docs1/joelette.html
Traustadottir, Rannveig.  1997.  Women with Disabilities: Issues, Resources, Connections Revised.
The materials in this information packet were compiled for anyone interested in learning about the lives of women and girls with disabilities. The packet is made up of five parts: PART I. Overview Article: Obstacles to Equality: The Double Discrimination of Women with Disabilities. PART II. Annotated Bibliography: Articles, journals, books, and other resources on women with disabilities. PART III. Teaching Others: An annotated listing of resource and teaching materials about women and girls with disabilities. PART IV. Building Connections: Where to find further resources for and about women with disabilities. Including services, support groups, organizations, and periodicals. PART V. World Wide Web Pages: This section provides web sites about and by women with disabilities and covers a variety of topics. Internet publication URL: www.independentliving.org/docs3/chp1997.html
1996
Disability Awareness in Action (DAA).  1996.  About Disability Awareness in Action.
Disability Awareness in Action (DAA) is an international public education campaign to promote, support and coordinate national action to further the objectives of the United Nations Decade of Disabled Persons (1983-1992) and the World Programme of Action Concerning Disabled Persons (WPA). DAA is a partnership between the following organizations: Disabled Peoples' International (DPI), IMPACT, International League of Societies of Persons with Mental Handicap (ILSMH), Rehabilitation International (RI), and World Federation of the Deaf (WFD). Internet publication URL: www.independentliving.org/docs2/daa-about.html
Brown, Steven E.  1996.  Book Review - Deviants, Invalids, and Anthropologists: Cross-Cultural Perspectives on Conditions of Disability in One Academic Discipline: A Review of Disability and Culture.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, critically reviewed the book Disability and Culture, edited by Benedicte Ingstad and Susan Reynolds Whyte. Disability and Rehabilitation: An international, multidisciplinary journal, First published in May 1996. Internet publication URL: www.independentliving.org/docs3/brown96d.html.
European Council.  1996.  Community legislation in force: Resolution of the Council AND of the representatives of the governments of the member states meeting within the Council of 20 December 1996 on equality of opportunity for people with disabilities.
This European Council resolution affirms human rights as a fundamental value of the Member States whereas the principle of equality of opportunity for all, including people with disabilities, represents a core value. All disabled persons, whatever the origin and nature of their disability, must be entitled to concrete measures aimed at improving their social and professional integration. Internet publication URL: www.independentliving.org/docs3/ec9612.html
Osterwitz, Ingolf.  1996.  Comunita Progetto Sud and Cooperativa at Lamezia Terme - Report from the study visit of working group one, sector social integration, 28 March - 31 March 1996.
Internet publication URL: www.independentliving.org/docs6/osterwitz1996.html
Center for Independent Living, Tokyo, Japan.  1996.  Demand for Social Security Measures by Independent Living Association in Japan.
Internet publication URL: www.independentliving.org/docs6/cil-japan199606.html.
Evans, John, Hasler Frances.  1996.  Direct Payments Campaign in the U.K..
The IL movement believes that Direct Payment schemes should be a right, and thus a change in the legislation has high priority in the issues of disabled people after comprehensive civil rights legislation. Internet publication URL: www.independentliving.org/docs2/enildirectpayment.html
Evans, John, Hasler Frances.  1996.  Direktutbetalningskampanjen i Storbritannien.
The IL movement believes that Direct Payment schemes should be a right, and thus a change in the legislation has high priority in the issues of disabled people after comprehensive civil rights legislation. Internet publication URL: www.independentliving.org/docs2/directpayuksv.html (In Swedish.)
Disability Awareness in Action (DAA).  1996.  Disability Awareness in Action Resource Kit No. 1, Media Information.
DAA's Media Information Resource Kit helps to change the structures of society and attitudes, and to support your cause through traditional media. Internet publication URLs: www.independentliving.org/docs2/daakit1.html and www.independentliving.org/docs2/daa1.pdf
Disability Awareness in Action (DAA).  1996.  Disability Awareness in Action Resource Kit No. 2, Consultation and Influence.
DAA's Consultation and Influence Resource Kit helps to unite organisations as advocates for their own rights to influence decision-makers in governments and all sectors of society. Internet publication URLs: www.independentliving.org/docs2/daakit21.html and www.independentliving.org/docs2/daa2.pdf (146 KB)
Disability Awareness in Action (DAA).  1996.  Disability Awareness in Action Resource Kit No. 3, Campaigns.
DAA's Campaigns Resource Kit offers ideas for campaigns, things to be considered if you are to run a successful campaign and some real-life examples. Internet publication URLs: www.independentliving.org/docs2/daakit31.html and www.independentliving.org/docs2/daa3.pdf (103 KB)
Disability Awareness in Action (DAA).  1996.  Disability Awareness in Action Resource Kit No. 4, Organisation Building.
DAA's Organisation Building Resource Kit looks at how organisations of disabled people can improve their structures and the way they work. nternet publication URLs: www.independentliving.org/docs2/daakit41.html and www.independentliving.org/docs2/daa4.pdf
Disability Awareness in Action (DAA).  1996.  Disability Awareness in Action Resource Kit No. 5, Fund-Raising.
DAA's Fund-Raising Resource Kit gives ideas about your disability organisation's funding strategy - how to raise and use money effectively. Internet publication URLs: www.independentliving.org/docs2/daakit51.html and www.independentliving.org/docs2/daa5.pdf (65 KB)
Disability Awareness in Action (DAA).  1996.  Disability Awareness in Action Resource Kit No. 6, Disabled Women.
DAA's Disabled Women Resource Kit focuses on the social status of disabled women, comments on representation and empowerment, and looks at the women's movement in the context of disabled women's issues. Internet publication URLs: www.independentliving.org/docs2/daakit61.html and www.independentliving.org/docs2/daa6.pdf (61 KB)
Longmore, Paul K.  1996.  Disability Community Leaders Denounce Jack Kevorkian.
It is long past time for the disability community to respond to Jack Kevorkian's lethal assaults on our people. At least half of the people whose suicides he has abetted have been disabled. Internet publication URL: www.independentliving.org/docs4/longmore96.html
Brown, Steven E.  1996.  Disability Culture: A Fact Sheet.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, briefly describes the history and themes of disability culture. (Las Cruces, NM: Institute on Disability Culture, 1996). Internet publication URL: www.independentliving.org/docs3/brown96a.html.
Davidovich, Nathan.  1996.  Disability Discrimination in the Workplace.
Despite increased sensitivity to physical and mental disabilities, many of America's workers find themselves to be victims of employment discrimination due to their disability. Internet publication URL: www.independentliving.org/docs5/EmployDiscrim.html
McLaren, Pam, Philpott Sue, Hlophe Richard.  1996.  Do 'assistive devices' really assist disabled people?
Assistive devices ensure that people with disabilities are active in society. But what prevents them from assisting disabled people to be independent? Internet publication URL: www.independentliving.org/docs1/mclarenetal1996.html
Verney, Arthur.  1996.  EU programmes with relevance to persons with disabilities.
This presentation examines the situation of disabled people within the European Treaties; explores possibilities for influence on the part of disabled people's organisations; and discusses some EU programmes that might be of relevance to disabled people's organisations. Internet publication URL: www.independentliving.org/docs2/enilsverneypres.html
Campbell, Jane.  1996.  ‘Growing Pains,’ Disability Politics - The journey explained and described.
The author attempts to shed some light on the complex and often quite hidden political process of the Disabled Persons Movement over the past 30 years. She concludes, "The development of the social model and its journey into the very fabric of our communities through social, political and economic infrastructures, gives the disability movement the authority to say we have emerged." Internet publication URL: www.independentliving.org/docs6/campbell1996.html.
HELIOS.  1996.  HELIOS II: Sammanfattning av undersökningen om service med personlig assistans i Europa. Beskrivning och utvärdering av den bästa servicen med personlig assistans i ditt land.
This report is intended to help set a new agenda for improving the quality of life for people with disabilities so that their needs can be met throughout the European Union. Internet publication URL: www.independentliving.org/docs1/heliosiisv.html. (In Swedish.)
HELIOS.  1996.  HELIOS II: Social Integration and Independent Living. The Elimination of Socio-psychological Barriers: Assistance in Daily Living.
This report is intended to help set a new agenda for improving the quality of life for people with disabilities so that their needs can be met throughout the European Union. Internet publication URL: www.independentliving.org/docs1/heliosii.html

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