I
Frieden, Lex.
1980.
Independent Living Models. In: Rehabilitation Literature, Special Article, July-August, 1980, Vol 41, No. 7-8, pp. 169-173. A-289. Internet publication URL: www.independentliving.org/docs6/frieden1980.html
Evans, John.
2003.
The Independent Living Movement in the UK. John Evans was one of the founders of Project 81 that marked the beginning of the Independent Living Movement in the UK. Since 1996 he has been the chair of the European Network on Independent Living (ENIL). In this document he gives an overview of the origin of the Independent Living Movement in the UK, it's development and evolution, as well as the current situation.
Heumann, Judith E.
1984.
Independent Living Movement: organizing for an active, disabled old age. Judith E. Heumann explains what the Independent Living Movement is and what Independent Living Centres and how large numbers of other elderly disabled people could benefit greatly from services delivered by Independent Living centers. The World Institute on Disability's objectives in this regard are to work with appropriate organizations to raise awareness about aging and disability and to recommend policies which support elderly persons with disabilities. Internet publication URL: www.independentliving.org/toolsforpower/tools28.html
Nakanishi, Yukiko.
1999.
Independent Living movement spreads in Asia. Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299.html
Dr. Adolf Ratzka.
1994.
Independent Living och familjen: ur Costa Ricanskt och Svenskt perspektiv." . För begreppet familjen innebär konceptet om Independent Living deltagande i ett av de viktigaste områdena i livet; nämnligen kärleksrelationen, sexuallivet och föräldraskapet. Internet publication URL: www.independentliving.org/docs5/FamilyCRSwedenSv.html (In Swedish.)
Barnes, Colin.
2003.
Independent Living, Politics and Implications. Published in the English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish, PDF, 1.46 MB). Parts of the book available in English.
Colin Barnes is Professor of Disability Studies and Director of the Centre for Disability Studies in the Department of Sociology and Social Policy at the University of Leeds, England. In this chapter of the book he gives a concise explanation of orthodox thinking on disability and an a different perspective developed by disabled people themselves. He then examines the concept of independent living and its impact on policy development. Independent Living Institute.
1999.
Independent Living World Summit. The first global meeting on Independent Living was convened in Washington, D.C., September 21-25, 1999. Over 100 leaders evaluated the movement's 30 year old history and set the agenda for the future. This publication provides links to conference reports and reflections from participants in their respective languages. Internet publication URL: www.independentliving.org/docs2/ils0.html
Rajkov, Gordana.
2003.
Inependent Living and Yugoslav Experience. The report presented on behalf Centre for Independent Living of Serbia, at the Europena Network on Independent Living (ENIL) Conference in Southampton, England, 7-9 March 2003. Gordana R. is a founding member of CIL in Serbia, and in the report she is explaining the current situation of disabled people in Serbia in the light of economic, social and political context, and CIL’s efforts to promote the idea of Independent Living Phylosophy in Serbia, particularly the PA Service, through pilot projects and research. Internet publication URL: www.independentliving.org/docs6/rajkov200303.html
Bollard, Joe.
2003.
Inget om oss utan oss!.
Bollard, Joe. 2003-09. "ENIL:s Strasbourg Freedom Drive 2003". Lyssna-MP3-engelska (30:28 minuter, 28,6 MB), lyssna-RealAudio-engelska, download-RealAudio-engelska (4.6 MB). Internet publication URLs: www.independentliving.org/radio/bollard200309.mp3, www.independentliving.org/radio/bollard200309.ram, www.independentliving.org/radio/bollard200309.rm, www.independentliving.org/radio/bollard200309.pdf, www.independentliving.org/radio/bollard200309sv.html, och www.independentliving.org/radio/bollard200309.html
I september 2003 samlades nittio assistansbrukare från ENIL, det europeiska nätverket för Independent Living, i Strasbourg och marscherade till Europaparlamentets byggnad för att presentera sina viktigaste krav (se http://www.enil.eu.com/sfd/8demands.htm) för att personer som behöver personlig assistans ska kunna delta på lika villkor i samhället. Producent är den synskadade Joe Bollard från Dublin. Original titel "Nothing about us without us!" Översättning av Eva Linderoth.
Ntsika Enterprise Promotion Agency.
2000.
Innovative Disabled Entrepreneur Award Scheme (IDEAS) - Calling All Entrepreneurs With Disabilities. Promoting entrepreneurship of persons with disabilities through competition and awards: an example from South Africa. Internet publication URL: www.independentliving.org/docs5/Innovative-Disabled-Entrepreneur-Award-Scheme.html
Brown, Steven E.
1999.
Institutional Madness: Speaking out against institutionalism. Dr. Steven E. Brown speaks out on institutionalism: "No one I know who has lived in a nursing home wanted to stay there. Institutions by their very nature constrict freedom; suppress life, liberty, and the pursuit of happiness." Internet publication URL: www.independentliving.org/docs4/brown1.html.
Dr. Adolf Ratzka.
1995.
Institutioner eller Personlig Assistans: Ett exempel från Costa Rica. Är institutioner verkligen bästa platsen för äldre att tillbringa sina sista år? Är det verkligen den bästa uppväxten för barn? Internet publication URL: www.independentliving.org/docs5/InstitutionsCostaRicaSv.html (In Swedish.)
Office on the Status of Disabled Persons, South Africa.
1997.
Integrated National Disability Strategy- White Paper. White Paper from the Office of the President, South Africa. Disabled people should not be seen as objects of pity but as capable individuals who are contributing immensely to the development of society. Internet publication URL: www.independentliving.org/docs5/SANatlDisStrat.html
Council of Europe.
1993.
Integration of People with Disabilities: Accessibility - Universal Design. The Council of Europe recommends disability policy guidelines for Member States and is currently preparing revolutionary accessibility guidelines: a specific recommendation to incorporate the principles of Universal Design (design that responds equally to the needs of everyone), including accessibility, into the curricula of all vocations that work on the built environment. Internet publication URL: www.independentliving.org/docs3/coeacc.html
Council of Europe.
1999.
Integration of People with Disabilities: Discrimination. The Council of Europe recommends disability policy guidelines for Member States. With the knowledge that governments follow different approaches to achieve equal opportunity policies, the Council of Europe established a Working Group in November 1996 to elaborate a collection and comparative analysis of legislation against discrimination of persons with disabilities in member States. The final report will be published in autumn 1999. Internet publication URL: www.independentliving.org/docs3/coedisc.html
Council of Europe.
1996.
Integration of People with Disabilities: Employment of persons with disabilities. The Council of Europe recommends disability policy guidelines for Member States and this report outlines past and current work and relevant publications in the area of employment of persons with disabilities. Their activities in the field of employment aim at completing or enlarging the provisions of Recommendation No. R (92) 6 on a coherent policy for people with disabilities. Internet publication URL: www.independentliving.org/docs3/coeempl.html
Seifu, Michael.
2004.
International cooperation - but how? The author, a trained economist with a disability living and working in Ethiopia, describes the experience of disability in the context of a developing country. Internet publication URL: www.independentliving.org/column/seifu200405.html
Rosenthal, Eric.
2000.
International human rights protections for institutionalised persons with disabilities: an agenda for international action. In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." Pre-paper 4. Internet publication URLs: www.independentliving.org/docs2/rioux00.html, www.independentliving.org/docs2/rioux00.doc, www.independentliving.org/docs2/rioux00.pdf
Miles, M.
2007.
International Strategies for Disability-related Work in Developing Countries: historical, modern and critical reflections. Revised version of a paper first published in the Zeitschrift Behinderung und Dritte Welt, 3/2003, pp. 96-106, and here reproduced with permission.
International strategies concerned with disability in developing and transitional countries (DTC) are scrutinised critically, with an historical focus on beneficial traditions and practices in Asia and Africa, attesting the variety and complexity of social responses to disability. Internet publication URLs: www.independentliving.org/docs7/miles200701.html and www.independentliving.org/docs7/miles200701.pdf (112 KB).
miles200701.pdf (111.63 KB) Rosen, Fred.
1999.
Is International Travel Accessible for Persons with a Disability? Fred Rosen outlines travel accessibility policies in 5 countries, including problems and recommendations for improved standards. Includes a list of publications on accessibility in the U.S.A., Canada, Britain, and Australia. Internet publication URL: www.independentliving.org/docs5/fredrosen.html
Dr. Adolf Ratzka.
2009.
Interview with Kalle Könkkölä November 2008. Internet publication URL: https://www.independentliving.org/kalle_konkkola200811
kalle_konkkola200811.pdf (31.76 KB) Bhandari, Avinash.
1992.
Introducing access legislation for architects and planners in Mauritius. Avinash Bhandari, of the Ministry of Works in Mauritius, describes features to be included in the construction of buildings in order to ensure accessibility and safety for as broad a segment of the population as possible. He outlines the current state of accessibility in Mauritius and how it could be improved. Internet publication URL: www.independentliving.org/cib/cibharare2.html.
Dr. Adolf Ratzka.
1996.
Introduction to direct payments for personal assistance. For persons with extensive disabilities there are two key requirements: personal assistance and accessibility in the built environment including accessible housing. Internet publication URL: www.independentliving.org/docs4/directpay.html
Dr. Adolf Ratzka.
1996.
Introduktion till direktutbetalningar för personlig assistans. För personer med omfattande funktionshinder finns två principiella förutsättningar: personlig assistans och tillgänglighet i den omgivande bebyggelsen, i vilket ingår tillgänglighet i bostaden. Internet publication URL: www.independentliving.org/docs4/directpay2.html (In Swedish.)
Ishikawa, Jun, Nagase Osamu(eds.).
1998.
"Invitation to Disability Studies" New book on disability studies in Japanese. A collection of texts and resources by persons with disabilities for disabled people. (in Japanese.) Internet publication URL: www.independentliving.org/docs5/nagase.html
Clarke, Dr. Angus.
1998.
Issues Arising from Genetics - Genetics and Disability. In his presentation Dr. Angus Clarke, of the Institute of Medical Genetics at the University of Wales College of Medicine, discusses issues raised by genetics in disability, outlines the uses of genetic testing and his concerns about how it is developing, as well as the different uses for genetics in general and with regard to reproductive screening, and the problems surrounding this issue. Internet publication URL: www.independentliving.org/docs1/dpibethics2.html.
Cunningham-Burley, Dr. Sarah.
1998.
Issues Arising from Quality of Life. Seminar on Bioethics and Disabled people.
In her presentation, Dr. Sarah Cunningham-Burley, from the Department of Public Health, University of Edinburgh, looked at the way in which quality of life issues are affecting medical decisions, including decisions about genetic testing, and related this to a study of how the general public views these issues. Internet publication URL: www.independentliving.org/docs1/dpibethics3.html. In: Disabled Peoples' International (DPI). 1998. "Seminar on Bioethics and Disabled people." Internet publication URL: www.independentliving.org/docs1/dpibethics.html Dr. Adolf Ratzka.
2002.
IT and disabled people's employment: opportunities and limits, The example of the Independent Living Institute. Ratzka, Director, Independent Living Institute, describes some of the features of the Institute's Website and shows some of the possibilities offered by the internet to individuals with disabilities and their organizations. Pointing out the qualifications that working in this environment requires he concludes that IT cannot materially improve disabled people's employment situation as long as they do not have equal access to education, housing and transportation services. Internet publication URL: www.independentliving.org/docs4/ratzka20020201.html
Bracking, Stuart, Cowan Ross.
1998.
It's MY life - An introduction to Independent Living. Stuart Bracking and Ross Cowan (Gateshead Council on Disability) offer definitions and examples of the concepts independent living, personal assistance, and disability, comparing the medical and social models. Internet publication URL: www.independentliving.org/docs4/bracking1.html.
J
Berg, Susanne, Neveling Sybille.
2004.
"Jag var väldigt röd och aktiv på den tiden" - ett radioprogram om det vänsterradikala sextiotalet och gruppen Anti-Handikapp. Under det röda sextiotalet ifrågasattes samhällets uppbyggnad, orättvisor diskuterades i vänsterbelysning och en våg av aktiviteter intog det offentliga rummet. Personer med funktionshinder blev också radikala. I Lund bildades aktionsgruppen Anti-Handikapp. Påverkan skedde ofta genom musik, teater, debatter. Musiken i det här programmet har vi fått från Teuta Sederstedt. Den kommer från en Demo-kassett med Rullbandet. Lyssna-MP3 (32:22 minuter, 30,4 MB), lyssna-RealAudio, download-RealAudio (15,5 MB). Programmet i text. Deltagare: Teuta Sederstedt, Ulla Brandén, Vilhelm Ekensteen och Adolf Ratzka. Intervjuer och research: Sybille Neveling och Susanne Berg. Musiken spelades av Rullbandet. Internet publication URLs: www.independentliving.org/radio/radikalitet-antihandikapp1960-1970.mp3, www.independentliving.org/radio/radikalitet-antihandikapp1960-1970.ram, www.independentliving.org/radio/radikalitet-antihandikapp1960-1970.rm och www.independentliving.org/radio/radikalitet-antihandikapp1960-1970.html.
Campos, Art.
1993.
John Hessler, Pioneer in Independence for Disabled People, Dies. John Hessler revolutionized the US's attitudes toward disabled people - first by entering the University of California, Berkeley, and later by helping create the Center for Independent Living. Internet publication URL: www.independentliving.org/docs4/campos93.html.
Enns, Henry.
1998.
Journey to the Middle East. This account describes the organizational efforts of disabled people encountered by Henry Enns, Executive Director of Disabled Peoples’ International and Marion Stroud, a member of the International Committee on the Mennonite Central Committee (MCC), during their visit to five countries in the Middle East. Their mission was to explore ways that MCC could support the grassroots development of disabled people in these countries. Internet publication URL: www.independentliving.org/enns1998middle_east
L
Sveriges Riksdag.
1993.
Lag om införande av LSS, lagen (1993:387) om stöd och service). Internet publication URL: www.independentliving.org/docs3/stillss.html (In Swedish.)
Sjögren, Johan.
1999.
Lagstiftning mot Diskriminering - Rapport från seminarium den 29 april 1999 arrangerat av riksdagens nätverk för handikappfrågor. Mot bakgrund av IL-Sveriges arbete och bemötandeutredningens förslag om grundlagstillägg etc verkar det att vi skall ha lagstiftning mot diskriminering - frågan är bara hur den skall se ut? (In Swedish.) Internet publication URL: www.independentliving.org/docs5/lagstiftningsem.html
Dr., Ratzka Adolf;.
2015.
"Låt hjälpmedelsanvändare själva avgöra sitt eget bästa". Sjukvård. Många köper sina hjälpmedel själva utanför landstingens system. Har man råd får man större utbud, bättre kvalitet och bemötande. Genom att skapa en ny modell för detta, hämtad från assistansersättningen skulle hjälpmedelsanvändarna få större självbestämmande och högre livskvalitet, oavsett storlek på plånboken.
Hurst, Rachel.
1998.
Leading Disabled Activist, Awarded Highest U.S. Honour. In February 1998, disability activist Justin Dart was awarded the Presidential Medal of Freedom - the highest civilian honour in the USA. Internet publication URL: www.independentliving.org/docs4/hurst98a.html
Rennerstedt, Kristina.
1998.
Legala aspekter av diskrimineringslagstiftning i Sverige. Kristina Rennerstedt, av Justitiedepartementet tala om möjligheter och svårigheter i Sverige med diskrimineringslagstiftning som metod för att ge människor med funktionshinder samma möjligheter som andra. Internet publication URL: www.independentliving.org/docs1/hr7.html (In Swedish.)
Montero, Federico.
1998.
Legislation on Disability: The Costa Rican Experience. Despite the country's relative good respect for human rights and our democratic system, disabled people still do not enjoy equal rights and participation in all aspects of society. Among the factors that prevent disabled people from full citizenship are negative attitudes against disability. Internet publication URL: www.independentliving.org/docs1/hr12.html
Treffers, Bastian.
1991.
Legislation: Strategy or final solution? Internet publication URL: www.independentliving.org/cib/cibbudapest32.html
Rioux, Marcia.
2001.
Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000. Internet publication URLs: www.independentliving.org/docs2/rioux00.html, www.independentliving.org/docs2/rioux00.doc, www.independentliving.org/docs2/rioux00.pdf
rioux00.doc (572 KB) rioux00.pdf (341.38 KB) Abadia, Regine, Sallem Ryadh.
2005.
L'interview Marcel Nuss. MP3-français (29:30 minuter, 27,7 MB). Lyssna-MP3-svensk (28:21 minuter, 26,6 MB). Transcript: på svenska, in English, en français). Internet publication URLs: www.independentliving.org/radio/marcel-nuss.mp3, www.independentliving.org/radio/marcel-nuss-fr.mp3, www.independentliving.org/radio/marcel-nuss-sv.html, www.independentliving.org/radio/marcel-nuss-en.html, och www.independentliving.org/radio/marcel-nuss-fr.html Driedger, Diane, D'Aubin April.
1991.
Literacy for Whom: Women with Disabilities Marginalized. Disabled people, particularly disabled women, must be given specific consideration within the learner population. Literacy is both a gender issue and a disability issue. Internet publication URL: www.independentliving.org/driedger_daubin1991literacy_for_whom
Jürgens, Andreas.
1995.
Long-term Care Insurance' and Its Impact on the Population. For many people with disabilities, the term "Long-Term Care Insurance" suggests that self-determination is in jeopardy. Experience justifies these anxieties, and reality is much worse. Internet publication URL: www.independentliving.org/docs5/paGermany.html
M
Rickert, Tom.
2003.
Making Access Happen – A guide for advocates and planners – HOW TO PROMOTE AND PLAN ACCESS for DISABLED PERSONS and ELDERS to BUSES, TRAINS, TAXIS and OTHER MODES OF TRANSPORT. The purpose of this guide is to assist people and agencies around the world to work together to design public transport which is usable by passengers with disabilities. Internet publication URLs: www.independentliving.org/mobility/rickert200302.html and www.independentliving.org/mobility/rickert200302.pdf
Carleton, Gwen.
1999.
Making Technology Accessible To All. Universal design in Information Technology is slowly becoming standard in the industry. Internet publication URL: www.independentliving.org/docs5/gwencarleton.html.
Shields, Craig V.
1988.
Mäkleri - en kort historik. Service brokerage has a commitment to a set of values emphasizing the worth and dignity of individuals with disabilites and their right to live in the community. Internet publikation URL: www.independentliving.org/toolsforpower/tools27sv.html (In Swedish.)
1st European Congress on Independent Living.
2003.
Manifiesto de Tenerife - Promovamos la Vida Independiente - Acabemos con la discriminación hacia las personas con discapacidad. From the1st European Congress on Independent Living, Tenerife April 24-26, 2003. Internet publication URL: www.independentliving.org/docs6/tenrife20020426sp.html (In Spanish.)
Driedger, Diane(ed.).
1991.
Människor med funktionsnedsättning och internationell utveckling. Internet publication URL: www.independentliving.org/docs1/dispeopleintldev1sv.html (In Swedish.)
Hotchkiss, Ralf.
1992.
Manufacturing assistive devices in developing countries. Independence through Mobility by Ralf Hotchkiss is a book about the nuts and bolts of starting a shop and producing the Hotchkiss manual wheelchair with a minimum of equipment, materials, skills and capital in Third World countries. Internet publication URL: www.independentliving.org/toolsforpower/tools32.html
Miles, M.
2005.
Martin Luther and Childhood Disability in 16th Century Germany: What did he write? What did he say? Revised and extended version of a paper that was first published with copyright by The Haworth Press, Inc., Binghampton, NY 13904-1580, in the Journal of Religion, Disability & Health (2001), vol. 5 (4) pp. 5-36, and is here reproduced with permission.
Martin Luther’s ideas and theological writings on deaf or disabled children and adults, and his personal and practical experiences in this field are shown. Textual evidence gives a different picture from what is commonly believed, and is interesting both for Luther’s own times and the modern world. Internet publication URL: www.independentliving.org/docs7/miles2005b.html
Bayha, Betsy.
1999.
Media's crippling coverage misses real story of disability experience. Why do the media continually use the same ill-fitting and inaccurate phrases such as "wheelchair-bound," "afflicted" and "special needs," that the disability community rejected long ago? Internet publication URL: www.independentliving.org/docs1/bayha1999.html.
Hellman, Finn.
2006.
"Mediebilden av funktionshinder" – ett program om fördomar, förebilder och allt vad det nu är. Lyssna-RealAudio (32:37 minuter, 30,6 MB). Vissa får inte namnskyltar som andra, vissa får inte några direkta frågor. Hör Cecilia Blanck och Kerstin Selin berätta om hur Sveriges Television särbehandlar intellektuellt funktionshindrade. Och lyssna till Anna Bergholtz, blind journalist som öppnar ögon - i det här programmet i form av en lista på tips till icke-funktionshindrade kollegor. Missa inte heller när Elisabet Höglund bemöter kritik som riktats mot ett av hennes reportage.Reporter och producent: Finn Hellman. Medverkande: Kerstin Sellin, Cecilia Blanck. Elisabeth Höglund, Anna Bergholtz. Teknik: Wei Wei Jin. (In Swedish.) Hawkins, Candace.
2000.
Memo to the World. Are public funds to be used for nursing homes or for paying personal assistants in one's own home? Missouri opened the way to freedom. Internet publication URL: www.independentliving.org/docs4/hawkins2000.html
Bergström, Hans.
2004.
"Mentalsjukhusen ska förpassas till historiens skräpkammare" - ett radioprogram om Riksförbundet för Social och Mental Hälsa och avvecklingen av de psykiatriska institutionerna. Under sextiotalet organiserar sig psykiatrins patienter i det som ska bli RSMH. Samtidigt pågick processen med att stänga de stora psykiska institutionerna i Sverige. I det här programmet möter vi tre överlevare med erfarenhet av psykiatrin och kamratstödet i föreningen. Lyssna-MP3 (29:38 minuter, 27,8 MB), lyssna-RealAudio, download-RealAudio (13,9 MB). Programmet i text. Deltagare: Hans Bergström, Jan-Olof Forsén och Ola Persson. Intervjuer och research gjordes av Hans Bergström. Samtalspartner var Wenche Willumsen.
Guttmann, Eva Janzon.
1998.
Minister som värnar. Sociala skyddsnät och omsorg om alla grupper i samhället. Så vill vi gärna tro att det är i Sverige. Men för många människor med funktionshinder ser verkligheten annorlunda ut. (In Swedish.) Internet publication URL: www.independentliving.org/docs3/ejg1998.html