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Dr. Adolf Ratzka.  2003.  Independent Living in Sweden.
Account of the emergence of the Independent Living movement in Sweden, the social policy climate at the time, its struggles, achievements and challenges from the perspective of the person who introduced the independent living concept to Sweden. Internet publication URL: www.independentliving.org/docs6/ratzka200302b.html. In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish, PDF, 1.46 MB).
Dr. Adolf Ratzka.  2009.  Report from Independent Living seminar in Stockholm 2009: Networks on Personal Assistance and Public Transport Access.
Dr. Adolf Ratzka.  1996.  STIL, the Stockholm Cooperative for Independent Living.
Adolf Ratzka who imported the Independent Living Movement to Sweden provides his view of the origins of STIL, the Stockholm Cooperative for Independent Living, social policy in Sweden in the 1980's and how a change was needed, from the professionally run service culture to self-determination of equal citizens. Internet publication URL: www.independentliving.org/docs6/ratzka199605.html
Dr. Adolf Ratzka.  1993.  Independent Living och dagens socialpolitik.
I: Institutet för Independent Living. 1993. "Hemtjänst i omdaning - möjligheter och decentraliseringens och privatiseringens tid, Dokumentation av STIL-hearing Stockholm 1993." Internet publication URL: www.independentliving.org/docs3/stil1993.html#1 (In Swedish.)
Dr. Adolf Ratzka.  2008.  Från patient till kund - anförande vid konferensen Fritt val av hjälpmedel Stockholm 30 maj 2008.
Internet publikation URL: www.independentliving.org/ratzkafrittval (In Swedish.)
Dr. Adolf Ratzka.  2015.  Accessible cities consist of barrier-free housing.
In this presentation Dr. Adolf Ratzka emphasizes that city and housing planners still do not pay sufficient attention to barrier-free housing for people with disabilities and proposes the goal of general accessibility in the housing stock, in both new construction an renovation. Drawing on Swedish experience he claims that general residential accessibility would also imply savings to society in the form of lower costs due to fewer residential accidents particularly in the older population.
Dr. Adolf Ratzka.  1996.  Introduction to direct payments for personal assistance.
Dr. Adolf Ratzka.  1998.  Försök med kontantstöd för Personlig Assistans i Slovakien.
I 1997 vann Institutet för Independent Living ett kontrakt för projekt i Slovakiska Republiken inom EU:s PHARE- program för personlig assistans i brukarregi med kontantstöd och för uppbyggnaden av ett integrerat allmänt taxisystem, som tar alla kunder oavsett om de har rörelsehinder och använder rullstol eller ej, med subventioner för kunder med funktionshinder. Artikeln diskuterar de möjligheter och hinder som brukarinitierade och brukarstyrda lösningar möter i post-kommunistiska samhällen. Internet publication URL: www.independentliving.org/docs3/slovakiasv.html (In Swedish.)
Dr. Adolf Ratzka.  2012.  Personal assistance policy features for Independent Living:.
What are the important features of a national policy on personal assistance that is to promote "living independently and being included in the community" "with choices equal to others" and to enable persons with disabilities to fulfill their duties and to enjoy their rights as citizens? The presentation identifies the elements of the Swedish Personal Assistance Act of 1994 that have contributed most to the outcome of this widely acclaimed legislation.
Microsoft Office document icon 2012_01_Wien_PPP_Word.doc (47 KB)
Dr. Adolf Ratzka.  1994.  A brief survey of studies on costs and benefits of non-handicapping environments.
Presentation at the International Congress on Accessibility in Rio de Janeiro, Brazil, June 1994. Internet publication URL: www.independentliving.org/cib/cibrio94access.html
Dr. Adolf Ratzka.  2003.  Selbstbestimmte Mobilität für Menschen mit Behinderung in Schweden?"
Rollstuhlgerechter öffentlicher Fern- und Nahverkehr und Taxidienste statt Sonderlösungen und Sonderfahrdienste sind für die Selbstbestimmung vieler Körperbehinderten im Alltag unumgänglich. Leider sind diese Voraussetzungen in Schweden nicht erfüllt. Ein kürzlich erfolgreich durchgeführtes Versuchsprojekt mit barrierenfreien Taxidroschken im regulären Taxiverkehr konnte wegen des Widerstands der Sonderfahrdienste und der politischen Majorität im Landkreis nicht weitergeführt werden. Internet publication URL: www.independentliving.org/docs6/ratzka200311.html. (In German.)
Dr. Adolf Ratzka.  2017.  Adolf Ratzka awarded ULOBAs 2017 Pride Award.
Dr. Adolf Ratzka.  1995.  Supporting families in keeping disabled family members at home: Swedish policy instruments.
In Sweden, a disabled family member is likely to represent a burden on the family. Yet the argument can be made that policy instruments, such as those available in Sweden, lessen the impact of a disability on the family and the community. Internet publication URL: www.independentliving.org/docs5/InstitutionsCostaRica.html
Dr. Adolf Ratzka.  1989.  Personal Assistance: The key to Independent Living.
Keynote address at the conference on personal assistance in Strasbourg, France.
Dr. Adolf Ratzka.  1990.  STIL mot hemtjänststalinisterna.
Hur skulle det se ut om kommunen hade monopol på finansieringen, produktionen och fördelningen av bröd? Artikeln illustrerar det tredubbla kommunala monopolet på hemtjänstområde. Artikeln publicerades i DN. Internet publication URL: www.independentliving.org/docs3/ar199008.html (In Swedish.)
Dr. Adolf Ratzka.  2012.  Independent Living-rörelsen banade vägen.
Dr. Adolf Ratzka.  2013.  Independent Living for people with disabilities: from patient to citizen to customer.
Dr. Adolf Ratzka.  2015.  Self-determination through Direct Payments and Personal Assistance cooperatives.
In his keynote address Adolf Ratzka delineates the origins of STIL, the Stockholm Cooperative for Independent Living owned and mainly run by Personal Assistance user themselves providing services to its members. Personal Assistance is here depicted as an example of demand-driven as opposed to supply-driven services which, according to the text's analysis, would explain the differences between these services in terms of quality and cost efficiency.
Dr. Adolf Ratzka, Larsson Anna.  1993.  Peer Support - En sjöman ber inte om medvind - han lär sig segla.
Internet publication URL: www.independentliving.org/docs5/peersupport.html (In Swedish.)
Dr. Adolf Ratzka.  2011.  Personal responsibility as precondition for personal and social change.
Adolf Ratzka, Independent Living Institute, presented at the Second International Conference on Personal Responsibility on the Way to Social Change organized by Jerusalem Center for Independent Living December 2, 2010
PDF icon 2011-05_Personal_responsibility_as_precondition_for_personal_and_social_change.pdf (111.98 KB)
Dr. Adolf Ratzka, Elmén Bengt.  1986.  Från redaktionen -"Stiletten" nr. 5/86, november 1986.
Internet publication URL: www.independentliving.org/docs3/ar198611.html (In Swedish.)
Dr. Adolf Ratzka.  2004.  Een model voor een nationale politiek inzake persoonlijke assistentie.".
Internet publication URL: www.independentliving.org/docs6/ratzka200410a-nl.html
Dr. Adolf Ratzka.  1997.  Independent Living and Our Organizations.
Internet publication URL: www.independentliving.org/toolsforpower/tools7gr.html (In Greek).
Rajkov, Gordana.  2003.  Inependent Living and Yugoslav Experience.
The report presented on behalf Centre for Independent Living of Serbia, at the Europena Network on Independent Living (ENIL) Conference in Southampton, England, 7-9 March 2003. Gordana R. is a founding member of CIL in Serbia, and in the report she is explaining the current situation of disabled people in Serbia in the light of economic, social and political context, and CIL’s efforts to promote the idea of Independent Living Phylosophy in Serbia, particularly the PA Service, through pilot projects and research. Internet publication URL: www.independentliving.org/docs6/rajkov200303.html
Rajkov, Gordana.  1999.  A Personal Letter from Belgrade, Serbia - Written during the current NATO bombings in Yugoslavia.
Internet publication URL: www.independentliving.org/docs6/rajkov1999.html  
Rajkov, Gordana.  1991.  The role of the Muscular Dystrophy Association in the creation of a barrier-free environment.
Internet publication URL: www.independentliving.org/cib/cibbudapest27.html  
Rajah, Zorah.  1992.  Legislation of mobility facilities for disabled persons as backup to existing goodwill.
Internet publication URL: www.independentliving.org/cib/cibharare16.html  
Racino, Julie Ann.  1991.  Centrum för Independent Living (CIL), Berkeley, California: Funktionshindrade visar vägen till fullvärdigt medborgarskap.
The Berkeley CIL, the "first organization of its type in the world," is a visible symbol of the Independent Living movement, the international civil rights movement of disabled people. Internet publication URL: www.independentliving.org/docs4/racino91sv.html (In Swedish.)
Racino, Julie Ann.  1991.  Center for Independent Living (CIL): Disabled People Take the Lead for Full Community Lives.
The Berkeley CIL, the "first organization of its type in the world," is a visible symbol of the Independent Living movement, the international civil rights movement of disabled people. Internet publication URL: www.independentliving.org/docs4/racino91.html
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Purhonen, Sanni.  2023.  Personal Assistance: What's the current situation in Finland?
Polinszky, Tibor.  1991.  Regulation of the non-handicapping environment in Hungary.
Internet publication URL: www.independentliving.org/cib/cibbudapest26.html  
Physical Disability Council of NSW, Inc..  1999.  Position Papers '99, Attendant Care.
Internet publication URL: www.independentliving.org/docs1/pdcnsw99.html  
Philippen, D P.  1991.  Access legislation.
Internet publication URL: www.independentliving.org/cib/cibbudapest25.html
Pfeiffer, David.  1995.  The Disability Movement and its History.
Pfeiffer, resident scholar in the Center on Disability Studies at the University of Hawaii at Manoa, past president of the Society for Disability Studies, present editor of Disability Studies Quarterly and an early leader of the U.S. disability rights movement while a full time faculty member at Suffolk University in Boston, explores the history of the American disability rights movements through some of its most classic texts. First published as "Hip Crip 101." Mainstream: Magazine of the Able-Disabled, Dec.-Jan. 1994-95. Internet publication URL: www.independentliving.org/docs3/pfeiffer95.html
Pfeiffer, David.  1994.  Eugenics and Disability Discrimination.
David Pfeiffer presents and discusses the many statutory ways in which the civil rights of disabled people were, and still are, violated through state and local government laws in the United States. Internet publication URL: www.independentliving.org/docs1/pfeiffe1.html
Pfeiffer, David.  1988.  Divisions in the disability community.
Within the community of disabled persons in this country there is a division between those concerned with civil rights and those concerned with service delivery. Internet publication URL: www.independentliving.org/toolsforpower/tools3b.html
Peterson, Dick.  1998.  Hanging In There.
Dick Peterson creates a new hoisting device with an above-the-waist lifting harness, making transfers smoother for people with various physical disabilities. Internet publication URL: www.independentliving.org/docs3/peterson.html
Persson, Ann, Palmgren Nils.  2003.  Fel siffra orsakade rabalder i färdtjänstdebatt.
Dagens Nyheter. Internet publikation URL: www.independentliving.org/taxi/dn20031003.html (In Swedish.)  
Persson, Ann.  2003.  Protester mot höjd avgift för rullstolstaxi.
Dagens Nyhter. Internet publikation URL: www.independentliving.org/taxi/dn20031007.html (In Swedish).  
Paul Lappalainen, Erdtman, Emil.  2017.  CONFERENCE VIDEOS 24-25 NOV 2016: Strategic litigation and human rights enforcement.
Park, Walter.  1991.  Creating and maintaining access to housing: Implementing access at the local level.
Internet publication URL: www.independentliving.org/cib/cibbudapest24.html
Parakattel, Paul.  1991.  Creating accessibility in developing countries.
Internet publication URL: www.independentliving.org/cib/cibbudapest23.html  
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Osterwitz, Ingolf.  1994.  The Concept of Independent Living - a New Perspective in Rehabilitation.
Internet publication URL: www.independentliving.org/docs5/Osterwitz.html
Osterwitz, Ingolf.  1996.  Comunita Progetto Sud and Cooperativa at Lamezia Terme - Report from the study visit of working group one, sector social integration, 28 March - 31 March 1996.
Internet publication URL: www.independentliving.org/docs6/osterwitz1996.html
Orylski, Lukasz.  2023.  The struggle for a PA law in Poland.
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Örnhall, Hans.  1991.  Towards European guidelines for an accessible built environment: An analysis of the "European Manual" from the Nordic experience.
Internet publication URL: www.independentliving.org/cib/cibbudapest22.html
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Opitz, Caspar.  2003.  Delseger för dem som nyttjar rullstolstaxi.
Internet publication URL: www.independentliving.org/taxi/dn20030923.html (In Swedish.)
Oliver, Mike.  1999.  Disabled people and the inclusive society: or the times they really are changing.
Mike Oliver looks at semantics and use of words in addressing disability issues, and refers to Bob Dylan's "The times they are a-changing" to make his point about exclusion and discrimination. Internet publication URL: www.independentliving.org/docs4/oliver.html
Oldenkamp, I.  1995.  Tricycle Production Manual - Vehicle design for people with disabilites in developing countries.
The tricycle is designed primarily for disabled people in Asia, since the result is a joint effort between four Asian organizations. The Tricycle Production Manual has been developed for basically skilled and equipped workshops in developing countries. Internet publication URL: www.independentliving.org/docs5/tricycle.html
Oka, Yukiko.  1988.  Self-reliance in interdependent communities: Independent living of disabled persons in the Asia-Pacific region.
Yukiko Oka analyses the results of an ESCAP questionnaire which covers institutionalization, community-based rehabilitation, and the rights of people with disabilities. Internet publication URL: www.independentliving.org/docs4/oka.html
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Öhlén, Bo, Rejhed Bengt.  1995.  ”Fru Schledermann” (på svenska) - En film om rätten till ett själbestämt liv med personlig assistans.
Öhlén, Bo, Rejhed Bengt.  1995.  “Mrs Schledermann” - A film about the right to Independent Living with personal assistance (Swedish language, English subtitles).
Öhlén, Bo, Rejhed Bengt.  1995.  ”Madame Schledermann” (en suédois, sous- titres francaises) - Un film sur le droit à une vie indépendante grâce à l’assistance personnelle.
Öhlén, Bo, Rejhed Bengt.  1995.  “Frau Schledermann” (schwedische Sprache, deutscher Text) - Ein Film über das Recht auf selbstbestimmt Leben mit persönlicher Assistenz.
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Office on the Status of Disabled Persons, South Africa.  1997.  Integrated National Disability Strategy- White Paper.
White Paper from the Office of the President, South Africa. Disabled people should not be seen as objects of pity but as capable individuals who are contributing immensely to the development of society. Internet publication URL: www.independentliving.org/docs5/SANatlDisStrat.html
O'brien, John, O'brien Connie Lyle.  2003.  Publications by John O'brien and Connie Lyle O'brien.
Internet publication URL: www.independentliving.org/docs6/obrien20031011.html  
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Nzioki, Nicky, Maganjo Agnes, Kariuki Catherine.  1992.  A review of current accessibility legislation in Kenya.
Internet publication URL: www.independentliving.org/cib/cibharare15.html
Nyhetsbyrån ikapp.  2003.  Populärt byta färdtjänstbuss mot taxi.
Internet publication URL: www.independentliving.org/taxi/ikapp20030327.html (In Swedish).  
Nybom, Martin, Pettersson Jens.  2008.  Personlig assistans - en billig och effektiv form av valfrihet, egenmakt och integritet - En jämförelse mellan kostnaderna för personlig assistans och kommunal hemtjänst.
Internet publication URL: http://www.independentliving.org/lsskostnad/ (In Swedish.)
Ntsika Enterprise Promotion Agency.  2000.  Innovative Disabled Entrepreneur Award Scheme (IDEAS) - Calling All Entrepreneurs With Disabilities.
Promoting entrepreneurship of persons with disabilities through competition and awards: an example from South Africa. Internet publication URL: www.independentliving.org/docs5/Innovative-Disabled-Entrepreneur-Award-Scheme.html
Novikov, Yuri.  1991.  Accessibility legislation in Byelorussia and the Byelorussian Society of the Disabled.
Internet publication URL: www.independentliving.org/cib/cibbudapest21.html  
Nordenfelt, Enar.  2010.  The foundation in memory of Rolf Bergfors.
Nordenfelt, Enar.  2010.  Stiftelsen Fonden till Rolf Bergfors minne. PDF icon gil-stiftelsen-information-202103.pdf (103.8 KB)PDF icon gil-stiftelsen-ansokningblankett-202103-w.pdf (145.5 KB)
Nolan, Ann, Regan Colm.  2003.  Direct Payments Schemes for People with Disabilities - A Summary Guide, A new and innovative policy approach to providing services to disabled people in Ireland.
This information leaflet is based on the research project, "Direct Payments Schemes for People with Disabilities," carried out by the Bray Partnership in 2002 (see above). The aim of the leaflet is to provide information and create awareness about the concept of direct payments, as well as to commence a lobbying process for the introduction of a direct payments pilot programme. As such, the leaflet fulfills part of the recommendations of the research project relating to dissemination of information and increasing awareness. Bray Partnership, Ireland, Website: www.braypartnership.ie. Internet publication URL: www.independentliving.org/docs6/bray200305-sum.pdf (155 KB). See also the main document, Internet publication URL:www.independentliving.org/docs6/bray200305.pdf (357 KB)
Nkeli, Jerry.  1998.  How to overcome double discrimination of disabled people in South Africa.
South African Human Rights Commissioner, Jerry Nkeli, outlines the country's history from the point of view of the Disability Rights Movement. Conference on Legislation for Human Rights Arranged by Handikappombudsmannen in cooperation with Independent Living Sverige, Stockholm, Sweden 24 August 1998. Internet publication URL: www.independentliving.org/docs1/hr5.html
Nkeli, Jerry.  1998.  Human Rights Commissioner reflects on achievements obtained by people with disabilities.
In South Africa we have disabled people in leadership-roles and have achieved a lot but we have many problems to face in the field of human rights such as issues dealing with racial intolerance and a diversity of various issues that deal with colonialism. Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Stockholm, Sweden 23 August, 1998. Internet publication URL: www.independentliving.org/docs1/stlm19980823f.html
Nikolov, Mitko.  2023.  The history of the adoption of the Personal Assistance Law in Bulgaria and its subsequent controversial effect - 2009-2023.
Newman, Gertrude.  1992.  Promotion of access legislation in Ghana.
Internet publication URL: www.independentliving.org/cib/cibharare13.html  
Nee, Pauline.  1991.  Anti-discrimination legislation as a basis for barrier-free design: How could the Americans with Disabilities Act be adapted for the U.K.?
Internet publication URL: www.independentliving.org/cib/cibbudapest20.html  
National Council on Disability (NCD).  1999.  NCD Releases Report on Improving the Enforcement of Civil Rights of Air Travelers with Disabilities.
The NCD has released a groundbreaking report documenting ineffective enforcement of the Air Carrier Access Act (ACAA) since the law's passage in 1986. Internet publication URL: www.independentliving.org/docs5/ncd199.html
National Council on Disability (NCD).  1999.  Ny rapport från NCD om förbättringar i tillämpningen av rättigheter för flygresenärer med funktionsnedsättgning.
The NCD has released a groundbreaking report documenting ineffective enforcement of the Air Carrier Access Act (ACAA) since the law's passage in 1986. Internet publication URL: www.independentliving.org/docs5/ncd1999sv.html
Nakanishi, Yukiko.  2002.  Development and Self-Help Movement of Women with Disabilities.
This article focuses on development assistance models and philosophies for women with disabilities who struggle to achieve independence in Asia, first from the viewpoint of a development program organizer and then from the viewpoint of a witness of empowered self-help movements. Internet publication URL: www.independentliving.org/docs5/nakanishi.html
Nakanishi, Yukiko.  1999.  IL-rörelsen breder ut sig i Asien.
Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299sv.html (In Swedish.)
Nakanishi, Yukiko.  1999.  Independent Living movement spreads in Asia.
Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299.html
Nakanishi, Yukiko.  1998.  Effects of the Economic Downturn in Japan.
The Japanese Government has been trying to promote decentralization for the last 6-7 years. Disabled persons are afraid that some services will be cut due to scarce local resources. Internet publication URL: www.independentliving.org/docs5/JapanEcon.html
Nadash, Pamela.  1998.  Independent Choices: Enhancing Consumer Direction for People with Disabilities.
Allowing consumers to manage and direct the long-term services they need acknowledges that they are the best judges of their own needs and the best decision-makers on how these needs get met - an acknowledgment seldom made. Internet publication URL: www.independentliving.org/docs4/ar3983.html
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Montero, Federico.  1998.  Legislation on Disability: The Costa Rican Experience.
Despite the country's relative good respect for human rights and our democratic system, disabled people still do not enjoy equal rights and participation in all aspects of society. Among the factors that prevent disabled people from full citizenship are negative attitudes against disability. Internet publication URL: www.independentliving.org/docs1/hr12.html
Montero, Federico.  1998.  Human Rights and Organisations of Disabled Persons in Costa Rica.
Despite positive changes in Costa Rica's social policies, disabled people still are denied certain rights to participate in all aspects of society. Internet publication URL: www.independentliving.org/docs1/stlm19980823e.html
Mohit, Anuradha, Rungta S K.  2000.  Preliminary ideas and procedures for ensuring systematic international collection of information.
In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." Pre-paper 7. Internet publication URL: www.independentliving.org/docs2/mohit00.pdf. In Internet publication URLs: www.independentliving.org/docs2/rioux00.pdf and www.independentliving.org/docs2/rioux00.doc
Mladenov, Teodor, Elder-Woodward Jim, Siilsalu Mari, Cojocariu Ines Bulic, Hadad Nadia, Angelova-Mladenova Lilia.  2022.  Comparison between personal assistance and home care work.
Mladenov, Teodor.  2023.  Personal Assistance - What should personal assistance look like?
Ministry of Social Affairs, Sweden.  1993.  Gesetz zum Assistenzbudget.
("Assistansersättning" - "Compensation for Assistance.") Ursprünglicher Gesetzestext von 1993, der einen bestimmten Personenkreis zu Geldleistungen für persönliche Assistenz von der schwedischen Sozialversicherung berechtigt.Das Gesetz wurde seit seinem Inkrafttreten am 1.1. 1994 mehrmals abeändert, was Einschränkungen aber auch vereinzelte Verbesserungen für Assistenznehmer mit sich führte. (Für die Qualität der Ü bersetzung ist das schwedische Sozialministerium und nicht das Independent Living Institute verantwortlich.) Internet publication URL: www.independentliving.org/docs6/schweden199311.html (In German.)
Milner, Joanne, Urquhart Dennis, Cox David.  1991.  Universal design and designer awareness: The constraints of architectural education.
Internet publication URL: www.independentliving.org/cib/cibbudapest19.html  
Miles-Paul, Ottmar, Frehse Uwe.  1991.  Creating a political alliance for anti-discrimination legislation in Germany.
Internet publication URL: www.independentliving.org/cib/cibbudapest18.html  
Miles, M.  2007.  International Strategies for Disability-related Work in Developing Countries: historical, modern and critical reflections.
Revised version of a paper first published in the Zeitschrift Behinderung und Dritte Welt, 3/2003, pp. 96-106, and here reproduced with permission. International strategies concerned with disability in developing and transitional countries (DTC) are scrutinised critically, with an historical focus on beneficial traditions and practices in Asia and Africa, attesting the variety and complexity of social responses to disability. Internet publication URLs: www.independentliving.org/docs7/miles200701.html and www.independentliving.org/docs7/miles200701.pdf (112 KB).
PDF icon miles200701.pdf (111.63 KB)
Miles, M.  1982.  Why Asia Rejects Western Disability Advice.
This paper reviews psycho-social and religious factors, professional motivations and political inequalities, that have prevented any widespread adoption of "community-based rehabilitation" by Asian governments. Internet publication URL: www.independentliving.org/miles_m1982why_asia_rejects_western_disability_advice
Miles, Christine.  2007.  Imran's Djinn, and Theories of Epilepsy.
This article and the review comment were first published in “EPICADEC News” (from the Foundation Epilepsy Care Developing Countries, Leiden), October 2000, pp. 9-10, titled “Imran’s Djinn”. They are here reproduced with permission, after slight revision. The article concerns an Asian boy living in UK. His family had trouble using the health services, because of different concepts of Imran’s illness. One of Imran’s teachers met the family half way, respecting their beliefs and giving them time to digest a different approach to epilepsy and its treatment. A scientific reviewer comments on the story. Internet publication URL: www.independentliving.org/docs7/miles-christine2000.html
Miles, M.  2000.  Signing in the Seraglio: mutes, dwarfs and jestures at the Ottoman Court 1500 - 1700.
Deaf people, known as 'mutes', worked in the Turkish Ottoman court from the fifteenth to the twentieth century in various roles along with dwarfs and other entertainers. Their signing system became popular, was used regularly by hearing people including successive Sultans, and was reportedly capable of expressing ideas of whatever complexity. Internet publication URL: www.independentliving.org/docs5/mmiles2.html
Miles, M.  1982.  Anledningen till varför Asien avvisar råd gällande funktionsnedsättning från väst.
Internet publication URL: www.independentliving.org/miles1982asien_avvisar
Miles, M.  2006.  Signs of Development in Deaf South & South-West Asia: histories, cultural identities, resistance to cultural imperialism.
First published in 2001, this revised article extended and updated 2006-04 offers evidence and hypotheses for a short cultural history of deaf people, culture and sign language in South Asia and South West Asia, using documents from antiquity through 2005. A new appendix shows 110 items on deafness and sign language in the Arab countries of the Eastern Mediterranean and South West Asia. This is a further revised, extended and updated version of a chapter first published in: Alison Callaway (ed) Deafness and Development, University of Bristol, Centre for Deaf Studies, 2001. It is here republished with kind permission. Internet publication URL: www.independentliving.org/docs7/miles200604.html
Miles, M, Hossain Farhad.  1999.  Rights and Disabilities in Educational Provisions in Pakistan and Bangladesh: Roots, Rhetoric, Reality.
Educational opportunities for children with disabilities in Pakistan and Bangladesh are seen in the context of the countries' religious, cultural and economic development. The relevance of Western concepts such as "human rights", "inclusion" and "empowerment" is critically examined. Internet publication URL: www.independentliving.org/docs5/mmiles3.html
Miles, M.  2007.  Review - Epileptic Graphic.
Review of “Epileptic” by “David B.”, a remarkably frank account, in graphics and cartoon strip, of childhood and adulthood with an older brother having epilepsy, and a family doing the tour of cures in France of the 1960s and 1970s. Internet publication URL: www.independentliving.org/docs7/miles200704.html
Miles, M.  2000.  Blind People Handling Their Own Fate.
Accounts of earlier social responses to blind people particularly in Japan, and to some extent in China, indicate a measure of both group and individual autonomy within reserved and valued occupations, ostensibly reflecting a status model more 'normal' than blind people enjoyed in much of European history. (Excerpt From: M. Miles (2000) Disability on a Different Model: Glimpses of an Asian Heritage.) Internet publication URL: www.independentliving.org/docs5/mmiles1.html
Miles, M.  2008.  HITTITE DEAF MEN IN THE 13th CENTURY BC: introductory notes with annotated bibliography.
The article introduces bibliographical evidence on deaf men working in palaces and temples of the Hittite Kingdom in Anatolia (now Turkey) during the 13th century BC, with further notes on signing and deaf people's activities in the ancient and medieval Middle East. With some additions and revision September 2009. Internet publication URLs: www.independentliving.org/docs7/miles200809.html and www.independentliving.org/files/miles200809.pdf.
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Miles, M.  2018.  DISABILITY IN AFRICA: RELIGIOUS, ETHICAL & HEALING RESPONSES, to and by People with Disabilities, Deafness, or Mental Debility: a bibliography through four millennia, with introduction and partial annotation.. PDF icon pdf format (2.52 MB)File epub format (808.68 KB)File mobi format (1.04 MB)
Miles, M.  2007.  Disability and Deafness, in the context of Religion, Spirituality, Belief and Morality, in Middle Eastern, South Asian and East Asian Histories and Cultures: annotated bibliography.
The bibliography introduces and annotates materials pertinent to disability, mental disorders and deafness, in the context of religious belief and practice in the Middle East, South Asia and East Asia. Internet publication URLs: www.independentliving.org/docs7/miles200707.html and www.independentliving.org/docs7/miles200707.pdf
Miles, M.  1988.  The Blind Afghan Child.
A young Afghan who was born blind in a remote village tells of his childhood and how he gained the skills to take part in community life and later to earn his living in a town. Internet publication URL: www.independentliving.org/docs3/milesm1988a.html
Miles, M.  2003.  Segregated We Stand? The Mutilated Greeks' Debate at Persepolis, 330 BC
Probably the world's earliest recorded policy debate among a large group ofdisabled people. Also the first time a ruler changed his mind in response towhat they actually asked for. First published in Disability & Society 18 (7):865-79. Reproduced with permission of Carfax Publishing, Taylor & Francis,and with some revision. Internet publication URL: www.independentliving.org/docs7/miles2003.html
Miles, M.  2007.  Parents of Deaf Afghan Children -- On The Air.
In these short scripts from a radio series, Afghan parents and a counsellor discuss issues of raising their deaf child in a rural area of Afghanistan, and several ways in which they can assist her in learning to communicate. An explanatory note follows, on the origin and purpose of the radio series. [Earlier versions of these scripts were circulated in 1984, 1986 and 1988, from the Mental Health Centre Peshawar, Pakistan.] Internet publication URL: www.independentliving.org/docs7/miles200705.html
Miles, M.  2001.  Models of Rehabilitation and Evidence of Their Effectiveness: Production & Movements of Disability Knowledge, Skill & Design Within the Cultures and Concepts of Southern Africa.
Starting with a disabled person in Mozambique in the 1590s, and a projection of future disability services when knowledge and skills are widely disseminated and rehabilitation professionals are no longer needed, this paper looks more closely at the knowledge and skills available among disabled people and their families and communities in Southern Africa. These factors need to be pooled, refined and tested so that services become rooted in African cultures and respond more appropriately to people's self-perceived needs. Internet publication URLs: www.independentliving.org/docs2/milesm200104.html and www.independentliving.org/docs2/milesm200104.pdf

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