Dar Es Salaam, Tanzania (TOMRIC Agency) - August 21, 2000
Giti Masule says people with disabilities in Tanzania often feel totally excluded from the mainstream. He has recently taken over as the new program manager for Action of Disability and Development (ADD). The Organization is based in the Mwanza Region in northern Tanzania, on the shores of Lake Victoria.
Prepared by:
Rannveig Traustadottir
Updated by Perri Harris
The Center on Human Policy
Syracuse University
June 1997
The materials in this information packet were compiled for anyone interested in learning about the lives of women and girls with disabilities.
The Urban Institute
2100 M Street, NW
Washington, DC
20037 USA
Tel.: (202) 261-5651
E-mail: jtilly@ui.urban.org
The Urban Institute gratefully acknowledges financial support for this research from the Commonwealth Fund, a New York-based foundation. The authors wish to thank the many respondents in the United States, the Netherlands, France, Germany, and Austria who provided the information for this paper. The views expressed in this paper are those of the authors and should not be attributed to the Urban Institute, its trustees, or its funders.
People with disabilities are often invisible in movies and television shows, or, if visible, depicted in demeaning and stereotypical ways: as powerless, child-like, isolated victims, as bitter, sometimes psychopathic misfits, or as the "super-crip," who overcomes a disability with some extraordinary ability.
Moreover, storylines featuring people with disabilities inevitably resolve with a "cure" rendering the character "whole."
Review courtesy of Ability Network, Spring 1998
Canada's Cross Disability Magazine
Review by Lucia Dutton, Executive Editor
This is one of the best general, all purpose books I've read about disability. It tells us what everyone should know about disabilities in general, while providing much specific information at the same time. The outlook and the attitudes embodied in the book are both positive and universal. As someone who has lived with MS for many years, the author knows whereof she speaks.
by Eleanor Smith, Concrete Change
Tremendous improvements in disability access have occurred since I was a child in the 1940s and '50s, using a wheelchair from age three on. Many of these improvements have come to be considered customary building practices, helpful to the general population as well as people with disabilities. In earlier years, disabled people wheeled down the street looking for a driveway to getup on the sidewalk. Now, curb cuts at corners are common. In earlier years, children with disabilities often waited outside while their friends ran up the steps into a store to buy a trinket or treat. Now, new stores offer the freedom to come and go.
På åhörarplats i en av riksdagens lokaler fanns ett 50 tal personer - riksdagsledamöter och representanter från Independent Living- och handikapprörelsen.
Sonja Fransson (s) slog an tonen på dagens seminarium med orden "Hur skall en diskrimineringslag se ut?" Mot bakgrund av IL-Sveriges arbete det gångna året och bemötandeutredningens förslag om grundlagstillägg etc verkar det numera blivit allmän sanning att vi skall ha lagstiftning mot diskriminering - frågan är bara hur den skall se ut? Det är i första hand en framgång för människor med funktionshinder och i andra hand för IL-rörelsen som på kort tid vunnit gehör för det som står högst på dagordningen - lagstiftning mot diskriminering.
Enligt en källa är mäkleri en påhittig avnämarbaserad inriktning för tjänsteförmedling som har sina rötter "i framväxandet av konsumentrörelsen och utvecklingen av konstitutionella rättigheter". Termen användes först på 70-talets senare hälft som benämning på en inriktning som utvecklades av en grupp familjer på Kanadas västkust, "som anser att deras svårt funktionshindrade barn hade rätt att planera sina liv och skulle erbjudas möjlighet och tillräckliga resurser för detta".
by Craig V. Shields, 1988
by Michael Seifu (rahelmu2000@yahoo.com), Ethiopia, February 2004
If you have a speech disability and live in one of the thirteen states listed below, you can now use a new, free telephone assistance service 24 hours a day. Speech-to-Speech (STS) provides communications assistants (CAs) for people with difficulty being understood by the public on the telephone.
People with speech disabilities can dial toll free to reach a patient, trained CA who is familiar with many speech patterns and has excellent language recognition skills. This CA makes telephone calls for them and repeats their words exactly.
If you have a speech disability and live in : ARIZONA, CALIFORNIA, MARYLAND, SOUTH CAROLINA, WISCONSIN, GEORGIA, and WASHINNGTON STATE, you can now use a new, free telephone assistance service 24 hours a day.
This service, called Speech-to-Speech, provides human voicers for people with difficulty being understood by the public on the telephone. The FCC expects all states to provide Speech-to-Speech in two years.
If you have a speech disability, you can dial toll free to reach a patient, trained operator who is familiar with many speech patterns and has acute hearing. This operator makes telephone calls for you and repeats your words exactly.
Book review courtesy of Common Courage Press
"What Ralph Nader did for the consumer movement...Marta Russell has accomplished in her riveting Beyond Ramps. No one who reads this book...will come away unchanged."
- - Marcus Raskin, Institute for Policy Studies
Beyond Ramps: Disability at the End of the Social Contract
Marta Russell
256 pages; Index
PAPER $18.95, ISBN: 1-56751-106-6
A WARNING FROM AN UPPITY CRIP
Munich, Germany, August 15-18, 1996
A Position Paper
By
Fred Rosen
Author of
HOW TO TRAVEL -- A Guidebook For Persons With A Disability
And
Travel Consultant For Persons With A Disability
The Question:
IS INTERNATIONAL TRAVEL ACCESSIBLE FOR PERSONS WITH A DISABILITY?
by: Linda K. Richter, and William L. Richter
"Konferensen om Lagstiftning för Mänskliga Rättigheter "
Stockholm, Sweden, 24 augusti 1998
Kristina Rennerstedt, statssekreterare Justitiedepartementet, legala aspekter
Artikeln är tidigare publicerad i American Rehabilitation Volym 24, nummer 4, Vintern 1998 Personal Assistance Services del 2 av 2. American Rehabilitaion är Rehabilitation Services Administrations (RSA) officiella publikation. Adress: 330 C Street S.W Washington D.C. 20202-2531.
Antagen av deltagarna på International Personal Assistance Services Symposium, sponsrat av World Institute on Disability. Symposiet ägde rum i Oakland, Kalifornien, den 29 september till den 1 oktober 1991.
Resolution
Passed by Participants of the International Personal Assistance Services Symposium Sponsored by the World Institute on Disability, Convened September 29 to October 1, 1991, Oakland, California. Published in: American Rehabilitation, Volume 24, Number 4, Winter 1998, Personal Assistance Services, Part 2 of 2. American Rehabilitation is the official publication of the Rehabilitation Services Administration (RSA) 330 C Street S.W. Washington D.C. 20202-2531.
Hemtjänsten kritiseras mer och mer av sina brukare. Klagomålen handlar om kraftiga nedskärningar och kvalitetsförsämringar. Anledningen till dessa brister är att kommunen idag har ett trefaldigt monopol på hemtjänstområdet: som tillsynsmyndighet, som finansiär och som tjänsteproducent. Den bedömer behoven, finansierar och producerar tjänsterna. Ofta förenar en och samma hemvårdsassistent dessa tre funktioner samtidigt. Den enskilde hemtjänstbrukaren står helt maktlös inför en sådan maktkoncentration.
STIL-modellen - maximalt självbestämmande men offentlig finansiering - knyter an till gammal socialdemokratisk tradition. Artikeln skrevs 1990.
INEPENDENT LIVING AND YUGOSLAV* EXPERIENCE
* Federal Republic of Yugoslavia, has been now constituted as State with name Union of Serbia and Monte Negro
by Gordana Rajkov, 2003-03
Center for Independent Living of Serbia,
Presented at the European Network on Independent Living (ENIL) conference in Southampton, England, 7-9 March 2003
(Another presentation at the conference: Belli, Raffaello. 2003-03. "Independent Living and some Italian Experiences.")
SITUATION ANALYSIS
av Julie Ann Racino, Vicedirektör, Berkeley, California
by Julie Ann Racino, Deputy Director, Berkeley, California
The preparation of this report was supported by the U.S. Department of Education, Office of Special Education and Rehabilitation Services, National Institute on Disability and Rehabilitation Research (NIDRR), under Cooperative Agreement H133B00003-90 awarded to the Center on Human Policy, Division of Special Education and Rehabilitation, School of Education, Syracuse University. The opinions expressed herein are those solely of the author and do not necessarily reflect the position of the U.S. Department of Education; therefore, no official endorsement should be inferred.
What is important in the disability experience is knowing that you are not alone. There are thousands of persons with disabilities thinking similar thoughts, having similar experiences, and getting angry. We are not alone. We have a history.
Published in Disability & Society, 9 (4), 1994, pages 481-99.
by David Pfeiffer, Ph.D., 1994
Department of Public Management
School of Management
Suffolk University
Boston, MA 02108-2770
USA
NOW AT:
Center on Disability Studies
University of Hawai`i at Manoa
1776 University Ave UA 4-6
Honolulu, HI 96815 USA
Abstract
Within the community of disabled persons in this country there is a division between those concerned with civil rights and those concerned with service delivery. On the one hand, there is the Independent Living Movement which is a necessary fact of life for disabled persons in this country today, whether or not they require the services of an Independent Living center. There is also the Disability Rights Movement which is a necessary for disabled persons in this country today, whether or not they face civil rights violations. Although there is an overlapping membership, persons who identify with the Independent Living Movement are concerned with the provision of services to disabled individuals in order to make them truly independent.
All of us who are disabled try to "hang in there". In my case, the expression has taken on a double meaning.
I have had multiple sclerosis for over 30 years and, as my condition worsened, I foresaw the day when I would need greater assistance with bathroom transfers.
Public lecture on behalf of Strathclyde Centre
for disability research and Glasgow City Council
by Mike Oliver,
Professor of Disability Studies University
of Greenwich 27 April 1999
White Paper
Office of the President
Download the White Paper (240k)
TABLE OF CONTENTS
Foreword
Acknowledgements
Executive Summary
CHAPTER ONE: SITUATION ANALYSIS
Pretoria, South Africa - Innovative Disabled Entrepreneur Award Scheme (IDEAS) is a Ntsika Enterprise Promotion Agency competition for successful disabled Small, Medium and Micro Enterprises.
IDEAS seeks to affirm and give recognition to entrepreneurs with disabilities who have demonstrated excellence and innovation as well as triumph over adversities in their business enterprises.
Entry forms with requirements to be collected at the Provincial SMME/Disability Desk. People eligible for the competition are:
"Legislation for Human Rights"
Stockholm, Sweden, 24 August 1998
by Jerry Nkeli, Human Rights Commissioner
Ladies and gentlemen and colleges, Today I will sketch for you the history of South Africa from the point of view of the Disability Rights Movement. In the 1970s we had no Disability Rights Movement in South Africa. Most disabled people were in institutions, they worked in sheltered workshops, they were not organized and they had no rights.
Seminar on Human Rights for Persons with Disabilities
from a North and South Perspective
Stockholm, Sweden 23 August, 1998
Jerry Nkeli, Human Rights Commissioner, South Africa
English title: NCD Releases Report on Improving the Enforcement of Civil Rights of Air Travelers with Disabilities
WASHINGTON (1999) - The National Council on Disability (NCD) har släppt en betydande rapport som visar på en undermålig tillämpning av Air Carrier Access Act (ACAA) sedan dess antagning 1986. NCDs rapport Enforcing the Civil Rights of Air Travelers with Disabilities innehåller rekommendationer för hur tillämpningen av medborgerliga rättigheter för resenärer med funktionsnedsättning ska förbättras. Detta inkluderar även ändringar i lagen och förbättringar hos transportdepartementet.
WASHINGTON (1999) --The National Council on Disability (NCD) has released a groundbreaking report documenting ineffective enforcement of the Air Carrier Access Act (ACAA) since the law's passage in 1986. NCD's report, Enforcing the Civil Rights of Air Travelers with Disabilities, contains recommendations on how to improve the enforcement of civil rights of air travelers with disabilities, including changes to the law and improvements for the Department of Transportation.
In English
17-20 maj 1998 höll Chung Nip polio center och Human Care Association of Japan i det första seminariet om Independent Living i Seoul, Korea.
Följande artikel publicerades i DISABILITY INTERNATIONAL; Asia-Pacific Region, Vol.11, No. 2 1999. Disabled Peoples' International.
På svenska The following article appeared in DISABILITY INTERNATIONAL; Asia-Pacific Region, Vol.11, No. 2 1999. Disabled Peoples' International.
On 17-20 May, 1998, the first Independent Living seminar in Seoul, Korea was conducted jointly by the Chung Nip polio Center in Korea and Human Care Association of Japan.
by Shoji and Yukiko Nakanishi, DPI-Japan
April 1998
The Japanese Government has been trying to promote decentralization for the last 6 - 7 years. The bad economic situation has strengthened this trend, with expectations that local budgets to be allocated to support it. In the field of social welfare, the plan is to move the responsibility to provide many services from the national level to the prefectural level, and from the prefectural level to the municipal level. Disabled persons are afraid that some services will be cut due to scarce local resources.
Effects on the lives of people with disabilities:
by Yukiko Nakanishi
President, Asia Disability Institute, Chairperson, DPI-Japan International Committee
A popular Japanese expression says that "A women has no house to rest in anytime", meaning that a woman should obey her father as a child, her husband as a wife, and her children as an elderly person. In Japan, as elsewhere in Asia, women continue to be treated as substantially inferior to men.
The problems of women with disabilities are especially more intensive than those of women without disabilities. The issues and problems facing women with disabilities are numerous as all of you are already aware. Poverty and injustice are cores of vulnerability and deprivation of women with disabilities.
Ms. Nadash, a graduate student at Columbia University, is former Director, National Institute on Consumer-Directed Long-Term Services, The National Council on Aging.
The following is an article from American Rehabilitation Volume 24, Number 3 Summer Autumn 1998 Personal Assistance Services Part 1 of 2.
American Rehabilitation is the official publication of the Rehabilitation Services Administration (RSA) 330 C Street S.W. Washington D.C. 20202-2531
"Legislation for Human Rights"
Stockholm, Sweden, 24 August 1998
Background
Seminar on Human Rights for Persons with Disabilities
from a North and South Perspective
Stockholm, Sweden 23 August, 1998
Dr. Federico Montero, Chairman of the Costa Rican Disability Association
SCHWEDISCHE GESETZESSAMMLUNG SFS 1993: 387
Gesetz über Unterstützung und Dienstleistungen für gewisse
Funktionsbehinderte und das Gesetz über Fürsorgeleistungen
Ministerium für Gesundheit und Soziales
Internationales Sekretariat
Postanschrift:
S-103 33 Stockholm
Schweden
September 1993
Inhalt
Das Gesetz über Unterstützung und Dienstleistungen für gewisse Funktionsbehinderte (SFS 1993: 387)
Das Gesetz über Fürsorgeleistungen (SFS 1993: 389)
by M. Miles & Farhad Hossain, 1999
This chapter was first published in: F. Armstrong & L. Barton (eds) Disability, Human Rights and Education: cross-cultural perspectives, pp. 67-86. Buckingham, UK: Open University Press, isbn 0-335-20457-0, 1999. It is reprinted here by permission of the Open University Press, with slight revision.
Synopsis
Presentation at the ENIL Seminar in Southampton March 9, 2003
by Ann Macfarlane MBE
Older People & Legislation on Assessment & Direct Payments, Summary of the legal provisions,
by Ann Macfarlane MBE, March 2003
“Sometimes, I have to skip having a bath in order to chase my dreams.”
Introduction
Abstrakt
Mattson Prince J, Manley MS, Whiteneck GG.
Self-managed versus agency-provided assistance care for individuals with high level tetraplegia. Arch Phys Med Rehabil 1995; 76:919-23.
Mål
Att, inom en begränsad befolkningsgrupp som består av människor med omfattande funktionsnedsättningar fastställa huruvida å ena sidan användandet av förmedlad vårdpersonal och å andra sidan personligt anställda, tränade, och betalda assistenter korrelerar med upplevelsen av förbättrad livskvalité och hälsotillstånd samt lägre kostnader.
Utformning och omgivning