Producerat av Freak Radio (bearbetad av ILI)
Inslag av: Katharina Zabransky, Gerhard Wagner, Irmgard
Kampas, Bernhard Hruska; redaktion: Gerhard Wagner
Medverkande: Bernadette Feuerstein, Martin Kopper, Gerda
Ressl, Manuela Ressl, Peter Singer.
Radio Independent Living har bett Freak Radio i Wien att göra ett program om hur människor med funktionshinder som behöver personlig assistans lever i den österrikiska huvudstaden. Vi har översatt och bearbetat programmet.
SPEAKER (S): Du lyssnar på Radio Independent Living. ”Det är samma här, men det är olika” är ett program om hur det kan vara att komma till Sverige som man med funktionshinder från Mellanöstern
KHOUDADAD BAHRAMI (KB): Det är samma här. Här finns också. Fördomar finns men skillnaden här vet folk att handikappade människor vill vara självständiga. För det finns möjligheter. Men där har man inte det. Annars finns fördomar här också. Det är samma här men det är olika. Det finns skillnader.
”Vad sysslar du med?” är ett program om arbetsmarknaden för unga med funktionshinder och lagen om förbud mot diskriminering i arbetslivet. 2004. 
Lyssna-MP3 (26:57 minuter, 25,3 MB), lyssna-RealAudio, download-RealAudio (8,9 MB). Internet publication URLs: www.independentliving.org/radio/arbetsmarknad2003.mp3, www.independentliving.org/radio/arbetsmarknad2003.ram, www.independentliving.org/radio/arbetsmarknad2003.rm, och www.independentliving.org/radio/arbetsmarknad2003.html
”Partnerskap – det är snyggt, men svårt” är ett program om möjligheter och svårigheter i biståndsarbete. 2004-04. Lyssna-MP3 (28:57, 27,2 MB). Internet publication URLs: www.independentliving.org/radio/bistand2003.mp3 och www.independentliving.org/radio/bistand2003.html
Sverige ger mindre än en procent av bruttonationalprodukten i internationellt bistånd. En del av detta kanaliseras genom den svenska folkrörelsen. Aktiva handikapporganisationer bedriver biståndsprojekt via SHIA, Svenska Handikapporganisationers Internationella Biståndsförening.
”Att göra väl eller välgörenhetsskrammel”. 2004-04, är ett program om insamlingars vara eller inte vara. Vem gagnar de egentligen?
Ge oss makt inte medlidande är ett program/podcast om STIL och kampen för personlig assistans. 2004-04. Lyssna-MP3 (28:21 minuter, 26,6 MB).
Stockholmskooperativet för Independent Living är resultatet av ett litet antal individers kamp för personlig assistans i mitten på nittonhundraåttiotalet. Personlig assistans är, i motsats till hemtjänst eller boendeservice, en service knuten till den enskilde själv. Den som behöver assistans bestämmer själv vem som ska assisterar med vad; när det ska göras och hur.
Motstånd – en plikt! Ett program om politiskt motstånd och civil olydnad. 2004-04. Lyssna-MP3 (26 minuter, 24,4 MB). Internet publication URLs: www.independentliving.org/radio/civilolydnad2002.mp3 och www.independentliving.org/radio/civilolydnad2002.html
According to legislation from 11 February 1980, No. 18, (in Italian: http://pc-belli.idg.fi.cnr.it/vipdn/80N00180.htm) people with severe disabilities may be entitled to "indennità di accompagnamento". This is an allowance of about $475 U.S. a month and the user directly pays the personal assistant(s) of his/her choice. With this money it is possible to have 50-60 hours of personal assistance a month.
The main law regarding people with disabilities in Italy is from 5 February 1992, No. 104 (in Italian: http://pc-belli.idg.fi.cnr.it/vipdn/92N01040.htm):
What is it about disability that makes the media so uneasy? With rare exception, the media use the same shopworn stereotypes to portray people with disabilities - the pitiable cripple; the courageous and inspiring hero; the broken person who'd be better off dead, unless, of course, there's a cure just around the corner.
Why do the media continually use the same ill-fitting and inaccurate phrases such as "wheelchair-bound," "afflicted" and "special needs," that the disability community rejected long ago?
"Disability is still such a negative stereotype," said Bill Stothers, former editor and publisher of the disability magazine Mainstream and a 30-year veteran of newsrooms in Canada and the United States.
Dear Friends: We write to you because we believe certain persons and organizations who claim to speak for persons with disabilities may have seriously misrepresented the views of many of us.
Public attention in recent years has focused on issues surrounding end-of-life care. We believe this is all to the good. Death, like birth, is part of the life process, neither to be feared nor denied. In truth, the end of life can be a time of expressing and sharing love, forgiveness and thankfulness. We believe end-of-life choices are a private matter. Interest groups, legislators, judges, and publicity-seekers have no business interfering with the decision-making autonomy of the dying patient.
Andrew Batavia är Associate Professor vid School of Policy and Management, College of Urban and Public Affairs, Florida International University, North Miami, Florida.
Artikeln, Prospects for a National Personal Assistance Services Program: Enhancing Choice for People with Disabilities, är tidigare publicerad i American Rehabilitation Volym 24, nummer 4 Vintern 1998 Personal Assistance Services del 2 av 2. American Rehabilitation är Rehabilitation Services Adminsitrations (RSA) officiella organ. Adress: 330 C Street S.W Washington D.C. 20202-2531
Mr. Batavia is Associate Professor, School of Policy and Management, College of Urban and Public Affairs, Florida International University, North Miami, Florida.
von Elke Bartz, Vorsitzende
Forum Selbstbestimmter Assistenz Behinderter Menschen e.V.
Zunächst möchte ich mich recht herzlich für die Einladung zu diesem Workshop bedanken und kurz vorstellen. Mein Name ist Elke Bartz. Ich wohne mit meinem Mann Gerhard in Hollen- bach, einem kleinen Dorf in Deutschland, genau gesagt in Baden Württemberg. Seit einem Autounfall vor 21 Jahren bin ich ab dem 6. und 7. Halswirbel querschnittgelähmt. Daher benötige ich rund um die Uhr Assistenz. Ich engagiere mich seit mehreren Jahren intensiv in der Arbeit für Menschen mit Be- hinderungen.
Workshop 1. Lagstiftning för tillgänglighet.
Workshop 2. Personlig assistans – igår, idag och imorgon
by Suresh C. Ahuja
Executive Director National Association of the Blind, India
Chairman World Blind Union Committee on Social Development
Report of the CIB Expert Seminar on Building Non-Handicapping Environments, Harare 1992
Accessible, adaptable low-cost housing in Egypt
Dr. Safaa M. Issa Abdou, Development & Popular Housing Co., Cairo, Egypt
Architecture is a measure of society's advancement or retardation and a record of nations' civilization. Man is civilization's creator and its primary architect who set its foundations and raised its magnificent, tall edifices. And for Man there has always been the pursuit of civilization, freedom and equality.
Colin Barnes, Disability Research Unit, Leeds
I’d like to thank Adolf and the Institute for Independent Living for inviting me here.
Prof. Colin Barnes, Disability Research Unit, Leeds, UK
In England we have a strong and vibrant disability people’s movement which in many ways preceded the development of Disabled People’s International (DPI). The British Council of Organisations of Disabled People (BCODP) was actually formed so that it could be represented at and participate in the first DPI conference in 1981. The driving force behind much of the work initiated within the British movement was done by a disabled South African man, Vic Finkelstein.
Geneva, Switzerland, August 1988
This text is courtesy the
Baha’i International Community(BIC Document #88-0806 )
Until recently, the disabled have constituted a minority in obscurity. Unlike certain other groups that fall victim to discrimination, the disabled do not comprise a self-contained, close-knit social community. Instead, they populate every social sector, every class, every age group, every ethnic and religious community. And at every level, society has tended to ignore them, believing them incapable of participating in the community, or avoiding them as unpleasant reminders of the fragility of our existence.
Erik & Tina Bahn, Arkitekterne Bahn, Danish Building Development Board, Denmark
Continuation
Copyright © The Association for Persons with Severe Handicaps (TASH) - Disability Advocacy Worldwide 1997
WHEREAS, the U.S. Supreme Court has determined that assisted suicide is not a constitutional right, but is an issue to be decided by the states; and
WHEREAS, bills to legalize physician-assisted suicide are currently pending before state legislatures; and
WHEREAS, no bill to legalize physician-assisted suicide applies to all citizens equally, but singles out individuals based on their health status in violation of the Americans with Disabilities Act; and
Report of the CIB Expert Seminar on Building Non-Handicapping Environments, Budapest 1991
Alain Armeni, Ministry of Housing, France
The theme for this year’s observance of the International Day of Disabled Persons -- Accessibility -- reminds us that for many people with disabilities, the lack of access to essential services remains a source of discrimination and lost opportunities.
For more than half a billion people in the world, accessibility can mean an education, a job and a community that would otherwise be denied them. Accessibility is a prerequisite for disabled people to enjoy equal opportunities. It is a key to the exercise of their civil, politicial, social and cultural rights. This is a major concern of the United Nations, rooted in its founding principle of the equality of all human beings.
(The Independent Living Movement: International Experiences.)
Kerstin Nilsson, vice-ordförande, STIL
Ulrik Lindgren, politiskt sakkunnig Socialdepartementet
Anföranden lördag 29 november 2008, workshop 3 - Av-institutionalisering - ett liv i frihet:
Att äga sin bostad - Berättelser från kaptensgatan på råå
Patricia Ericsson och Kent Ericsson
Önskemål om byte av bostad
Två män på en traditionell gruppbostad i Helsingborg var missnöjda med sin bostad: de ville ha en bostad i ett område med lugnare miljö.
Anföranden fredag 28 november 2008:
Om JAG och erfarenheter av hur personlig assistans kan organiseras så att personer med nedsatt autonomi kan styra över den
Anföranden lördag 29 november 2008, workshop 3 - Av-institutionalisering - ett liv i frihet:
Personlig assistans, Personer med intellektuella funktionsnedsättningar och den segdragna kampen mot institutionerna
Anföranden lördag 29 november 2008: Slutbetänkandets konsekvenser för egna arbetsgivare
Nya lagändringar och regelskärpningar förändrar bilden av den svenska modellen kring Lag om stöd och service till vissa funktionshindrade – LSS. Det kommer att ske förändringar för alla som är beviljade assistans eftersom stora besparingar är på gång inom vårt område. Men frågan är vad man sparar?
Anföranden lördag 29 november 2008: Mitt tidigare liv
Anföranden lördag 29 november 2008: Varför protesterar inte fler gällande förslagen i LSS-kommittens
Anförande vid Workshop 29 november 2008
Biographical Notes / Presentation av talare
I worked as the first coordinator at STIL, for five years. I was also Vice-Chairman for eight years. I now work as a trainer, author and advisor. I have amongst other things written the book ”Assistance with Radiance” (In Swedish), which is aimed at both supervisors and assistants.
Biographical Notes
Education
Masters in Social Anthropology – University of Stockholm
Doctorate studies at the University of Örebro in Disability Research
Biographical Notes / Presentation av talare
Cand. sociol., Universitetet i Oslo, 1980
Forsker på Norges byggforskningsinstitutt, NBI 1981 - 1990
Sida arbeidet jeg frilans med forskningsmidler fra - og Sosial- og helsedepartementet og med undervisning for ulike oppdragsgivere for både funksjonshemmede og ulike fagfolk
Biographical Notes
Anföranden fredag 28 november 2008:
IL:s roll och den etablerade handikapprörelsen
Biographical Notes / Presentation av talare
by I. Oldenkamp, Industrial Design Engineering, Delft University of Technology
(Permission has been kindly given by I. Oldenkamp, Industrial Design Engineering, Delft University of Technology to allow the Independent Living Institute to present this excert from the Tricycle Production Manual.)
The Tricycle Production Manual has been developed for basically skilled and equipped workshops in developing countries. The manual is, as much as possible, adjusted to the knowledge and experience of workshop workers in these countries. It contains mostly drawings and minimal text to keep the manual accessible to a large group of users.
