Library
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1996. Disability Awareness in Action Resource Kit No. 3, Campaigns.
DAA's Campaigns Resource Kit offers ideas for campaigns, things to be considered if you are to run a successful campaign and some real-life examples. Internet publication URLs: www.independentliving.org/docs2/daakit31.html and www.independentliving.org/docs2/daa3.pdf (103 KB)
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1996. Disability Awareness in Action Resource Kit No. 4, Organisation Building.
DAA's Organisation Building Resource Kit looks at how organisations of disabled people can improve their structures and the way they work. nternet publication URLs: www.independentliving.org/docs2/daakit41.html and www.independentliving.org/docs2/daa4.pdf
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1996. Disability Awareness in Action Resource Kit No. 5, Fund-Raising.
DAA's Fund-Raising Resource Kit gives ideas about your disability organisation's funding strategy - how to raise and use money effectively. Internet publication URLs: www.independentliving.org/docs2/daakit51.html and www.independentliving.org/docs2/daa5.pdf (65 KB)
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1996. Disability Awareness in Action Resource Kit No. 6, Disabled Women.
DAA's Disabled Women Resource Kit focuses on the social status of disabled women, comments on representation and empowerment, and looks at the women's movement in the context of disabled women's issues. Internet publication URLs: www.independentliving.org/docs2/daakit61.html and www.independentliving.org/docs2/daa6.pdf (61 KB)
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1996. Disability Community Leaders Denounce Jack Kevorkian.
It is long past time for the disability community to respond to Jack Kevorkian's lethal assaults on our people. At least half of the people whose suicides he has abetted have been disabled. Internet publication URL: www.independentliving.org/docs4/longmore96.html
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1996. Disability Culture: A Fact Sheet.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, briefly describes the history and themes of disability culture. (Las Cruces, NM: Institute on Disability Culture, 1996). Internet publication URL: www.independentliving.org/docs3/brown96a.html.
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1996. Disability Discrimination in the Workplace.
Despite increased sensitivity to physical and mental disabilities, many of America's workers find themselves to be victims of employment discrimination due to their disability. Internet publication URL: www.independentliving.org/docs5/EmployDiscrim.html
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1996. Do 'assistive devices' really assist disabled people?
Assistive devices ensure that people with disabilities are active in society. But what prevents them from assisting disabled people to be independent? Internet publication URL: www.independentliving.org/docs1/mclarenetal1996.html
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1996. EU programmes with relevance to persons with disabilities.
This presentation examines the situation of disabled people within the European Treaties; explores possibilities for influence on the part of disabled people's organisations; and discusses some EU programmes that might be of relevance to disabled people's organisations. Internet publication URL: www.independentliving.org/docs2/enilsverneypres.html
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1996. ‘Growing Pains,’ Disability Politics - The journey explained and described.
The author attempts to shed some light on the complex and often quite hidden political process of the Disabled Persons Movement over the past 30 years. She concludes, "The development of the social model and its journey into the very fabric of our communities through social, political and economic infrastructures, gives the disability movement the authority to say we have emerged." Internet publication URL: www.independentliving.org/docs6/campbell1996.html.
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1996. HELIOS II: Sammanfattning av undersökningen om service med personlig assistans i Europa. Beskrivning och utvärdering av den bästa servicen med personlig assistans i ditt land.
This report is intended to help set a new agenda for improving the quality of life for people with disabilities so that their needs can be met throughout the European Union. Internet publication URL: www.independentliving.org/docs1/heliosiisv.html. (In Swedish.)
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1996. HELIOS II: Social Integration and Independent Living. The Elimination of Socio-psychological Barriers: Assistance in Daily Living.
This report is intended to help set a new agenda for improving the quality of life for people with disabilities so that their needs can be met throughout the European Union. Internet publication URL: www.independentliving.org/docs1/heliosii.html
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1996. Independent Living and Attendant care in Sweden: A Consumer Perspective. 
ar1986spr.pdf (111.55 KB)
Internet publication URL: http://www.independentliving.org/docs1/ar1986spr.html
ar1986spr.pdf (111.55 KB).
1996. Integration of People with Disabilities: Employment of persons with disabilities.
The Council of Europe recommends disability policy guidelines for Member States and this report outlines past and current work and relevant publications in the area of employment of persons with disabilities. Their activities in the field of employment aim at completing or enlarging the provisions of Recommendation No. R (92) 6 on a coherent policy for people with disabilities. Internet publication URL: www.independentliving.org/docs3/coeempl.html
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1996. Introduction to direct payments for personal assistance.
For persons with extensive disabilities there are two key requirements: personal assistance and accessibility in the built environment including accessible housing. Internet publication URL: www.independentliving.org/docs4/directpay.html
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1996. Introduktion till direktutbetalningar för personlig assistans.
För personer med omfattande funktionshinder finns två principiella förutsättningar: personlig assistans och tillgänglighet i den omgivande bebyggelsen, i vilket ingår tillgänglighet i bostaden. Internet publication URL: www.independentliving.org/docs4/directpay2.html (In Swedish.)
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1996. Kampanjen om funktionshinder.
Internet publication URL: www.independentliving.org/docs2/daa-aboutsv.html
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1996. Overview of the Conference "Self-determined Living for Disabled Women in Europe".
A brief review of papers and discussions about Women with Disabilities held during the conference in Munich, 1996. Internet publication URL: www.independentliving.org/docs5/WomensConference.html
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1996. Persönliche Assistenz in Schweden.
Independent Living oder Selbsbestimmt Leben ist eine weltweite Bewegung von Menschen mit Behinderungen, die gegen Aussonderung, Bevormundung und Diskriminierung arbeiten und für volle Bürgerrechte, Selbstbestimmung und Selbstrespekt kämpfen. Internet publication URL: www.independentliving.org/docs5/PersAssistenzinSchweden.html (in German).
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1996. Recommendation No. R(96)5 of the Committee of Ministers to Member States on Reconciling Work and Family Life.
The Council of Europe recommends disability policy guidelines for Member States in such areas as: education, vocational training, employment, social integration, etc. This recommendation was adopted by the Committee of Ministers on 19 June 1996 at the 569th meeting of the Ministers' Deputies. Internet publication URL: www.independentliving.org/docs3/coe96r5.html
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1996. Remove Barriers in Employment for Disabled People.
Fadila Lagadien challenges the existing perception that disabled people cannot engage in gainful or meaningful employment as they are believed to be sick, and sick people belong in hospital. Internet publication URL: www.independentliving.org/docs4/fadila96.html
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1996. Schweden: Betreuung oder Selbstbestimmung - zur Lage von Menschen mit Behinderungen.
Schweden mit seinen 8,5 Millionen Einwohnern erfreut sich des Rufs eines fortschrittlichen Sozialstaats, in dem Menschen mit Behinderungen unter besseren Lebensbedingungen als in den meisten anderen Ländern leben. Internet publication URL: www.independentliving.org/docs4/ratzka96a.html (in German)
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1996. STIL, the Stockholm Cooperative for Independent Living.
Adolf Ratzka who imported the Independent Living Movement to Sweden provides his view of the origins of STIL, the Stockholm Cooperative for Independent Living, social policy in Sweden in the 1980's and how a change was needed, from the professionally run service culture to self-determination of equal citizens. Internet publication URL: www.independentliving.org/docs6/ratzka199605.html
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1996. Super Duper? The (Unfortunate) Ascendancy of Christopher Reeve
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, compiled a discussion prompted by the invitation of Christopher Reeve, the actor who became quadriplegic, to speak at the 1996 Democratic Presidential Convention in the USA. First published in Mainstream: Magazine of the Able-Disabled, October 1996. Internet publication URL: www.independentliving.org/docs3/brown96c.html.
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1996. Towards a more helpful society.
Research on assistive devices that make daily tasks easier is seen as a tool for empowering both those with disabilities and their care-givers. Internet publication URL: www.independentliving.org/docs1/bang1996.html
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1996. We Are Who We Are: So Who Are We? Musings on the definition of disability culture
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, provides a short definition of disability culture and places the difficulty of definitions in the context of power struggles. First published in Mainstream: Magazine of the Able-Disabled, August 1996. Internet publication URL: www.independentliving.org/docs3/brown96b.html.
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1996. Zur Pflegeversicherung.
Lange Jahre war eine Pflegeversicherung ein umkämpftes, ein strittiges Thema. Unbenommen war von allen Seiten immer zu hören, daß es nötig sei, das Pflegefallrisiko abzusichern. (In German.) Internet publication URL: www.independentliving.org/docs3/zurpfleg.html
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1997. A Comparative Analysis of Barrier-Free Housing: Policies for Elderly People in the United States and Canada.
This paper identifies policy issues in creating barrier free housing for elderly people with disabilities in the United States and Canada. The strengths and weaknesses of a variety of policy approaches are contrasted. The approach in the United States which emphasizes individual housing rights is compared to the more social welfare approach used in Canada. Internet publication URL: www.independentliving.org/docs5/dunn1997b.html
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1997. Directive 2000/ /EC of the European Parliament and of the Council of the European Union. eu97bus.pdf (569.45 KB)
Internet publication URL: Internet publication URL: www.independentliving.org/docs4/eu97bus.html
eu97bus.pdf (569.45 KB).
1997. Disabled Women and the Media - Presentation for National Women's Day.
Fadila Lagadien considers how media communicates images of the estimated 13 per cent of disabled South Africans, especially women with disabilities. Internet publication URL: www.independentliving.org/docs1/fadila97.html
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1997. Dis-ing Definitions.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, attempted to reframe how people think the language and status of disability. First published in Mainstream: Magazine of The Able-Disabled, August 1997. Internet publication URL: www.independentliving.org/docs3/brown97b.html.
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1997. Eradication of "deviants": the dark side of the Swedish Model.".
Sweden's policy of forced sterilization of disabled people and others shocked the world. Dr. Adolf Ratzka comments on the news. Internet publication URL: www.independentliving.org/docs5/Sterilization.html
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1997. Government Action on Disability Policy, A Global Survey.
Internet publication URL: www.independentliving.org/standardrules/UN_Answers/UN.pdf
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1997. Government Implementation of the Standard Rules As Seen By Member Organizations of Rehabilitation International - RI.
Internet publication URL: www.independentliving.org/standardrules/RI_Answers/RI.pdf
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1997. Government Implementation of the Standard Rules As Seen By Member Organizations of World Blind Union - WBU.
Internet publication URL: www.independentliving.org/standardrules/WBU_Answers/WBU.pdf
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1997. Government Implementation of the Standard Rules As Seen By Member Organizations of Disabled Peoples' International - DPI.
Internet publication URL: www.independentliving.org/standardrules/DPI_Answers/DPI.pdf
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1997. Government Implementation of the Standard Rules As Seen By Member Organizations of World Federation of the Deaf - WFD.
Internet publication URL: www.independentliving.org/standardrules/WFD_Answers/WFD.pdf
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1997. Government Implementation of the Standard Rules As Seen By Member Organizations of Inclusion International (ILSMH).
Internet publication URL: www.independentliving.org/standardrules/InclInt_answers/ILSMH.pdf
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1997. Government policy innovations and trends in barrier-free housing, accessible transportation and personal supports.
In this paper, Peter A. Dunn, Associate Professor in the Faculty of Social Work at Wilfred Laurier University, Canada, outlines some of the provincial and territorial policies in Canada that began to incorporate independent living (IL) principles during the UN Decade of Disabled Persons (1983-1992). It focuses upon three areas: barrier-free housing, accessible transportation and attendant services/ personal supports. Internet publication URL: www.independentliving.org/docs5/dunn1997a.html
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1997. Home Visiting with Mama Kitenge, Community Based Rehabilitation Fieldworker, Tanzania.
A morning in the poorer parts of Dar es Salaam is described, during which Mama Kitenge visits families with children having mental and other disabilities and works with these childen and their caregivers. Internet publication URL: www.independentliving.org/docs3/milesm1997a.html
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1997. Independent Living and Our Organizations.
Internet publication URL: www.independentliving.org/toolsforpower/tools7gr.html (In Greek).
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1997. Independent Living and Our Organizations: A Definition.
We are the last minority to fight for our rights and we will not go away. Even with the most sophisticated prevention, early detection and rehabilitation services there will always be people with disabilities and we have to build our societies in such a way that everybody can live in them with dignity and self-respect. Presentation at the conference "Our Common World" organized by Disability Rights Advocates Hungary in Siofok, Hungary, May 9-11, 1997.
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1997. Independent Living Institute (ILI) Annual Report 1996.
Internet publication URL: www.independentliving.org/docs1/ilanrp1996.html
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1997. Independent Living Institute Verksamhetsberättelse 1996.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1996.html
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1997. Integrated National Disability Strategy- White Paper.
White Paper from the Office of the President, South Africa. Disabled people should not be seen as objects of pity but as capable individuals who are contributing immensely to the development of society. Internet publication URL: www.independentliving.org/docs5/SANatlDisStrat.html
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1997. Movie Stars and Sensuous Scars.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, discusses love and sexuality in an autobiographical article. First published in Mainstream: Magazine of the Able-Disabled, February 1997. Internet publication URL: www.independentliving.org/docs3/brown97a.html.
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1997. Oh, Don't You Envy Us Our Privileged Lives?
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, reviewed the history of disability culture and its artifacts. A Review Of The Disability Culture Movement." First published in "Disability & Rehabilitation, August 1997. Internet publication URLs: www.independentliving.org/docs3/brown97c.html, www.independentliving.org/docs3/brown97c.pdf and www.independentliving.org/docs3/brown97c.doc (PDF, 62 KB; Word, RTF, 73 KB.).
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1997. Peru 1997.
See how travelling with a disability just got easier with the Joëlette in action on a trip to Peru, where even the toughest terrain can be conquered with this wonderful invention! Internet publication URL: www.independentliving.org/docs5/Peru1997.html
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1997. Policy Paper from the South African Human Rights Commission 1997 # 5 : Disability.
Internet publication URL: www.independentliving.org/docs6/sahr1977.html
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1997. Power, Control, Confidence, and Courage.
Becoming an active participant in what happens to you requires that you feel empowered, exercise self-control, feel self-confident and have courage. Internet publication URL: www.independentliving.org/docs5/Leone97.html
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1997. Presentation för nationella kvinnodagen 1997 Telekom - firande inför kvinnodagen.
Fadila Lagadien considers how media communicates images of the estimated 13 per cent of disabled South Africans, especially women with disabilities. Internet publication URL: www.independentliving.org/docs1/fadila97sv.html (In Swedish.)
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1997. Resolution Opposing the Legalization of Physician Assisted Suicide.
In their 1997 resolution opposing the legalization of physician assisted suicide, the Association for Persons with Severe Handicaps (TASH) provides a long list of reasons for their opposition to physician assisted suicide, including the negative aspects of allowing physicians to have such power, the insufficiency of proposed safeguards, and dissatisfaction with the implementation of safeguards in conjunction with euthanasia in the Netherlands. Internet publication URL: www.independentliving.org/docs6/tash199712.html
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1997. Symposium on Disability and Human Rights.
Closing address by Ms. Mary Wallace, T.D., Minister of State at the Department of Justice, Equality and Law Reform. Internet publication URL: www.independentliving.org/docs2/enilirishspeech9711.html
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1997. Universal Design Planning and Design for All.
This report attempts to develop and illustrate the concept of universal design, which opposes, ideologically and politically, all unnecessary and stigmatizing specialized solutions. The principles and definitions of universal design were developed by The Center for Universal Design, USA. The Norwegian State Council on Disability. Internet publication URLs: www.independentliving.org/docs1/nscd1997.html and www.independentliving.org/docs1/nscd1997.pdf (5.26 MB)
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1997. Vad vill jag göra? En DIY (do it yourself, "gör det själv") manual/guide till självbedömning för personer med funktionsnedsättning
This Gateshead Personal Assistance Pilot Project quide provides information and advice to disabled people who wish to live independently by using personal assistance. The Guide focusses on assessing your needs. Internet publication URL: www.independentliving.org/docs4/gateshead1b.html (In Swedish.)
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1997. What do I want to do? a DIY guide to self-assessment for Disabled people gateshead1.pdf (34.78 KB)
This Gateshead Personal Assistance Pilot Project quide provides information and advice to disabled people who wish to live independently by using personal assistance. The Guide focusses on assessing your needs. Internet publication URLs: www.independentliving.org/docs4/gateshead1.html and www.independentliving.org/docs4/gateshead1.pdf
gateshead1.pdf (34.78 KB).
1997. What is a Joëlette?
Read about how one parent's invention made travelling easier and more pleasant for his son, despite the latter's disability. The Handi Cap Evasion Website is at www.hce.asso.fr/eng/ (in English and French). Internet publication URL: www.independentliving.org/docs1/joelette.html
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1997. Women with Disabilities: Issues, Resources, Connections Revised.
The materials in this information packet were compiled for anyone interested in learning about the lives of women and girls with disabilities. The packet is made up of five parts: PART I. Overview Article: Obstacles to Equality: The Double Discrimination of Women with Disabilities. PART II. Annotated Bibliography: Articles, journals, books, and other resources on women with disabilities. PART III. Teaching Others: An annotated listing of resource and teaching materials about women and girls with disabilities. PART IV. Building Connections: Where to find further resources for and about women with disabilities. Including services, support groups, organizations, and periodicals. PART V. World Wide Web Pages: This section provides web sites about and by women with disabilities and covers a variety of topics. Internet publication URL: www.independentliving.org/docs3/chp1997.html
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1998. Awakening to Disability - Nothing About Us Without Us.
Book review from Ability Network magazine. Internet publication URL: www.independentliving.org/docs5/stonereview.html
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1998. Back To Basics - Hampshire Center for Independent Living's Expert Seminar on Independent Living.
Back To Basics: Philip Mason's keynote speech at the expert seminar organized by the Hampshire CIL in Southampton, May 30 -31, 1998.
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1998. Beyond Ramps: Disability at the End of the Social Contract.
Book review courtesy Common Courage Press. Internet publication URL: www.independentliving.org/docs5/RussellReview.html
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1998. Boss in your own home: Client Linked Budget.
"Client-linked budget" is a system of direct payments for personal assistance services. This outlines the Dutch service, comparing it with "help in kind." Internet publication URL: www.independentliving.org/docs3/hardus.html
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1998. Brief Description of the Swedish Personal Assistance Act of 1994 (LASS).
For the "International Survey of Personal Assistance Schemes." Internet publication URLs: www.independentliving.org/docs1/ratzka1998lass.html and www.independentliving.org/panetwork/questionnaire.html
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1998. The Cash and Counseling Demonstration: An Experiment in Consumer-Directed Personal Assistance Services.
The "Cash and Counseling" Demonstration/Evaluation is a large-scale public policy experiment designed to test the feasibility and assess a consumer-directed approach to the financing and delivery of personal assistance services (PAS). Internet publication URL: www.independentliving.org/docs4/ar398.html
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1998. Changing Lanes... A guide to help when aging, illness or disability forces us into the Slow Lane - Book Review.
Michael Creurer offers valuable psycho-educational concepts combined with narratives about the author and his disabled peers. Internet publication URL: www.independentliving.org/docs4/rogers.html
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1998. Conference on Human Rights for Disabled People: Discussion from August 24th, 1998.
This is the transcript of a panel discussion on the topic of constitutional laws and anti-discrimination legislation for persons with disabilities. Internet publication URL: www.independentliving.org/docs1/hr11.html
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1998. Conference on Legislation for Human Rights.
This introduction to the conference on Legislation for Human Rights held in Stockholm on August 24, 1998 presents links to reports by experts from several countries with anti-discrimination legislation in connection with disability about how the legislation has functioned in their countries and their reflections on the situation of disabled people in their respective countries. Internet publication URL: www.independentliving.org/docs1/hr00.html
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1998. Conflict Situations and Disabled Persons.
Henry Enns, Executive Director of Disabled Peoples’ International discusses the plight of disabled refugees as a human rights issue that needs to be addressed by the UN and member states. Immigration policies in most countries discriminate against disabled refugees considering them as a “burden” and ignoring the significant contributions that disabled persons make to society. Internet publication URL: www.independentliving.org/docs1/dispeopleintldev2.html
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1998. Crip Utopia.
Ironisk science fiction. Internet publication URL: www.independentliving.org/docs4/ratzkacusv.html (In Swedish.)
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1998. Crip Utopia.
Tongue-in-cheek science fiction. Internet publication URL: www.independentliving.org/docs4/ratzkacu.html (In Swedish.)
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1998. Definitioner av Independent Living (IL) världen över.
En av de primära grundsatserna av IL filosofin är att sociala problem inte stammar från funktionsnedsättningen hos individen utan från samhällets misslyckande i att möta samhällsmedborgarnas behov. Internet publication URL: www.independentliving.org/docs4/doe1998.html (In Swedish.)
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1998. Det är du som bestämmer: Brukarstryd budget för att ordna assistans (Direct Payments).
"Client-linked budget" is a system of direct payments for personal assistance services. This outlines the Dutch service, comparing it with "help in kind." Internet publication URL: www.independentliving.org/docs3/hardussv.html (In Swedish.)
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1998. Determining Consumers' Preferences for a Cash Option: New York Survey Findings. ar498.pdf (59.02 KB)
The purpose of this article is to present findings from a telephone survey conducted in New York to assess consumers' preliminary interest in the cash option when compared to traditional services. Internet publication URLs: www.independentliving.org/docs4/ar498.html
ar498.pdf (59.02 KB).
1998. Direct Payment Schemes in Slovakia.
In 1997 the Independent Living Institute successfully bid for projects in the Slovak Republic within the European PHARE program: a personal assistance delivery scheme using direct cash payments and a accessible mainstream taxi system with a subsidy scheme for disabled riders. The article discusses some of the difficulties and opportunities that user-initiated and user-run solutions entail in post-communist societies. Internet publication URL: www.independentliving.org/docs3/slovakia.html
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1998. Disabled Refugees.
Henry Enns, Executive Director of Disabled Peoples’ International discusses the plight of disabled refugees as a human rights issue that needs to be addressed by the UN and member states. Immigration policies in most countries discriminate against disabled refugees considering them as a “burden” and ignoring the significant contributions that disabled persons make to society. Internet publication URL: www.independentliving.org/enns1998disabled_refugees
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1998. Discrimination and the law - the British Experience.
In his presentation at the seminar organized by Independent Living Sweden, Stockholm, and and the Office of the Disability Ombudsman, Professor Colin Barnes of the Disability Research Unit in Leeds, UK, describes the Disability Discrimination Act enacted in 1995 in the UK, why and how the Act came into being, and why the Act is a mistake. He notes that the result of policies in general has been to create dependence for disabled people instead of independence which is what disabled people want and have a right to. Conference on Legislation for Human Rights Stockholm, Sweden, 1998-08-24. Internet publication URL: www.independentliving.org/docs1/hr6.html.
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1998. Effects of the Economic Downturn in Japan.
The Japanese Government has been trying to promote decentralization for the last 6-7 years. Disabled persons are afraid that some services will be cut due to scarce local resources. Internet publication URL: www.independentliving.org/docs5/JapanEcon.html
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1998. Erfarenheter av lagstiftning internationellt.
Bengt Lindqvist, FN:s speciella rapportör om standardreglerna, inleder Konferensen om Lagstiftning för Mänskliga Rättigheter i Stockholm, Sverige. (In Swedish.) Internet publication URL: www.independentliving.org/docs1/hr3.html
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1998. An EU response to Disability in the Workplace, SIPTU, DISABILITY, EQUALITY - National Workshop on the Politics of Disability.
Internet publication URL: www.independentliving.org/docs3/flynn98.html
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1998. Flyktingar med funktionsnedsättning.
Internet publication URL: www.independentliving.org/enns1998flyktingar
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1998. Försök med kontantstöd för Personlig Assistans i Slovakien.
I 1997 vann Institutet för Independent Living ett kontrakt för projekt i Slovakiska Republiken inom EU:s PHARE- program för personlig assistans i brukarregi med kontantstöd och för uppbyggnaden av ett integrerat allmänt taxisystem, som tar alla kunder oavsett om de har rörelsehinder och använder rullstol eller ej, med subventioner för kunder med funktionshinder. Artikeln diskuterar de möjligheter och hinder som brukarinitierade och brukarstyrda lösningar möter i post-kommunistiska samhällen. Internet publication URL: www.independentliving.org/docs3/slovakiasv.html (In Swedish.)
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1998. Framställningar av handikapp i populära TV-program.
People with disabilities are often invisible in movies and television shows, however, Zara Buggs Taylor writes about one television show which is changing audience perceptions about people with disabilities. Internet publication URL: www.independentliving.org/docs1/taylorsv.html (In Swedish.)
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1998. Genesis of the Hungarian Anti-Discrimination Legislation.
Hungary is leaving the old fashioned approach to disability, characterised by pity, paternalism, charity and a medical approach, and is taking on a legal approach which acknowledges the rights of disabled citizens. Internet publication URL: www.independentliving.org/docs1/hr9.html
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1998. The Global Picture and the European Situation Regarding Bioethics and Genetic Engineering.
This article is an account of a presentation at the 1998 "Seminar on Bioethics and Disabled people" by Dr. Theresia Degener, legal adviser to the German Council of Centres for Self-Determined Living and lecturer at the Universities of Frankfurt, Mainz and Leipzig. In her presentation, Dr. Degener advanced a theory that bioethics is incompatible with human rights philosophy. She also discusses how existing international standards with regard to human rights including The Universal Declaration of Human Rights (1948) and the Nuremberg Code (1947) are undermined by the draft UNESCO Declaration on Bio-ethics and Human Rights and the European Convention on Human Rights and Bio-Medicine, both of which were designed to protect freedom of research. Internet publication URL: www.independentliving.org/docs1/dpibethics.html. In: Disabled Peoples' International (DPI). 1998. "Seminar on Bioethics and Disabled people." Internet publication URL: www.independentliving.org/docs1/dpibethics.html
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1998. Government Consults on Rail Accessibility - Press Notice: 372/ Transport.
Press release (London, England) - Trains and trams entering service after 31 December 1998 will be fully accessible. Internet publication URL: www.independentliving.org/docs5/transnews.html
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1998. Guide to the Amsterdam Treaty.
As a result of extensive campaign work by disability NGOs, disabled people are now visible in the Treaties. The non-discrimination clause, the provisions on social policy, the title on employment, the declaration on internal market legislation will all have practical consequences for disabled people throughout the Union. Internet publication URLs: www.independentliving.org/docs3/edf98.html and www.independentliving.org/docs3/edf98.pdf
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1998. Handikappombudsman Inledning på Konferensen om Lagstiftning för Mänskliga Rättigheter.
Internet publication URL: www.independentliving.org/docs1/hr1.html.
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1998. Hanging In There.
Dick Peterson creates a new hoisting device with an above-the-waist lifting harness, making transfers smoother for people with various physical disabilities. Internet publication URL: www.independentliving.org/docs3/peterson.html
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1998. The Home and Community-Based Services Work Group, partners with state, consumers, and others to advance the PAS agenda.
This article discusses how the Administration (US Government) balances the goal of providing more flexibility and choice for people with disabilities with the need to ensure that the services are cost effective. Internet publication URL: www.independentliving.org/docs4/ar4985.html
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1998. Honest portrayals of disabilities drive popular television show.
People with disabilities are often invisible in movies and television shows, however, Zara Buggs Taylor writes about one television show which is changing audience perceptions about people with disabilities. Internet publication URL: www.independentliving.org/docs1/taylor.html
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1998. How to overcome double discrimination of disabled people in South Africa.
South African Human Rights Commissioner, Jerry Nkeli, outlines the country's history from the point of view of the Disability Rights Movement. Conference on Legislation for Human Rights Arranged by Handikappombudsmannen in cooperation with Independent Living Sverige, Stockholm, Sweden 24 August 1998. Internet publication URL: www.independentliving.org/docs1/hr5.html
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1998. Human Rights and Disability. Statement to the fortieth session of the United Nations Sub-Commission on Prevention of Discrimination and Protection of Minorities Agenda item 7: human rights and disability. Geneva, Switzerland, August 1988.
Internet publication URL: www.independentliving.org/docs6/bic199808.html
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1998. Human Rights and Organisations of Disabled Persons in Costa Rica.
Despite positive changes in Costa Rica's social policies, disabled people still are denied certain rights to participate in all aspects of society. Internet publication URL: www.independentliving.org/docs1/stlm19980823e.html
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1998. Human Rights Commissioner reflects on achievements obtained by people with disabilities.
In South Africa we have disabled people in leadership-roles and have achieved a lot but we have many problems to face in the field of human rights such as issues dealing with racial intolerance and a diversity of various issues that deal with colonialism. Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Stockholm, Sweden 23 August, 1998. Internet publication URL: www.independentliving.org/docs1/stlm19980823f.html
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1998. Human Rights from Disabled Peoples' Perspective in Africa.
Shanaaz Majiet speaks on human rights and disability from the perspective of the African continent. Internet publication URL: www.independentliving.org/docs1/stlm19980823d.html
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1998. I kläm mellan laissez faire och den sociala ingenjörskonsten.
Skillnaderna mellan hemtjänst och personlig assistans - en diskussion med en granskning av de olika socialpolitiska instrument som finns på vårt område. Internet publication URL: www.independentliving.org/docs5/i_klam.html (In Swedish.)
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1998. The Implications of ADA for Disabled People.
There is a strong need for civil rights legislation in all countries. To those who continue studying whether or not there is a need for anti-discrimination legislation, it is time to stop studying and to start legislating! Internet publication URL: www.independentliving.org/docs1/hr4.html
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1998. In Freedom, Frank.
Dr. Steven E. Brown Co-Founder of the Institute on Disability Culture, in the United States, describes the life and work of Frank Moore, a Berkeley, California, USA performance artist with cerebral palsy. First published in Mainstream: Magazine of the Able-Disabled, June/July 1998. Internet publication URL: www.independentliving.org/docs3/brown98b.html.
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1998. Independence Care System: Managed Care for People with Disabilities.
Målet för Independence Care System är att underlätta för folk med funktionsnedsättning att bo kvar i sina hem, eller åtminstone i en så fri miljö som möjligt, genom att integrera primära, akuta, hem- och samhällsbaserade vårdtjänster på ett utförligt och flexibelt sätt. Internet publication URL: www.independentliving.org/docs4/ar3982b.html (In Swedish.)
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Recent Publications
- Adolf Ratzka, a great leader of the Independent Living movement has unfortunately passed away.
- Independent Living Institute Annual Report 2023
- Independent Living Institute Verksamhetsberättelse 2023
- In Search of Links: Overview of the State of Research on Disability, Migration, Employment and Health
- Personal assistance in Sweden
- Disability Defenders Network’s Newsletter - The development of personal assistance in Scotland
- The struggle for a PA law in Poland
- The Development of Personal Assistance in Malta: Moving closer to independent living through a practical and phased approach
- Personal Assistance: What's the current situation in Finland?
- The history of the adoption of the Personal Assistance Law in Bulgaria and its subsequent controversial effect - 2009-2023
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