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Center for Independent Living (CIL): Disabled People Take the Lead for Full Community Lives

Racino, Julie Ann.  1991.  Center for Independent Living (CIL): Disabled People Take the Lead for Full Community Lives.
English

by Julie Ann Racino, Deputy Director, Berkeley, California

På Svenska


The preparation of this report was supported by the U.S. Department of Education, Office of Special Education and Rehabilitation Services, National Institute on Disability and Rehabilitation Research (NIDRR), under Cooperative Agreement H133B00003-90 awarded to the Center on Human Policy, Division of Special Education and Rehabilitation, School of Education, Syracuse University. The opinions expressed herein are those solely of the author and do not necessarily reflect the position of the U.S. Department of Education; therefore, no official endorsement should be inferred.

The Disability Movement and its History

Pfeiffer, David.  1995.  The Disability Movement and its History.
English

What is important in the disability experience is knowing that you are not alone. There are thousands of persons with disabilities thinking similar thoughts, having similar experiences, and getting angry. We are not alone. We have a history.

Eugenics and Disability Discrimination

Pfeiffer, David.  1994.  Eugenics and Disability Discrimination.
English

Published in Disability & Society, 9 (4), 1994, pages 481-99.

by David Pfeiffer, Ph.D., 1994
Department of Public Management
School of Management
Suffolk University
Boston, MA 02108-2770
USA

NOW AT:
Center on Disability Studies
University of Hawai`i at Manoa
1776 University Ave UA 4-6
Honolulu, HI 96815 USA

 


Abstract

Divisions in the disability community

Pfeiffer, David.  1988.  Divisions in the disability community.
English

Within the community of disabled persons in this country there is a division between those concerned with civil rights and those concerned with service delivery. On the one hand, there is the Independent Living Movement which is a necessary fact of life for disabled persons in this country today, whether or not they require the services of an Independent Living center. There is also the Disability Rights Movement which is a necessary for disabled persons in this country today, whether or not they face civil rights violations. Although there is an overlapping membership, persons who identify with the Independent Living Movement are concerned with the provision of services to disabled individuals in order to make them truly independent.

Hanging In There

Peterson, Dick.  1998.  Hanging In There.
English

All of us who are disabled try to "hang in there". In my case, the expression has taken on a double meaning.

I have had multiple sclerosis for over 30 years and, as my condition worsened, I foresaw the day when I would need greater assistance with bathroom transfers.

Disabled people and the inclusive society: or the times they really are changing

Oliver, Mike.  1999.  Disabled people and the inclusive society: or the times they really are changing.
English

Public lecture on behalf of Strathclyde Centre
for disability research and Glasgow City Council

by Mike Oliver,
Professor of Disability Studies University
of Greenwich 27 April 1999

Innovative Disabled Entrepreneur Award Scheme (IDEAS) - Calling All Entrepreneurs With Disabilities

Ntsika Enterprise Promotion Agency.  2000.  Innovative Disabled Entrepreneur Award Scheme (IDEAS) - Calling All Entrepreneurs With Disabilities.
English

Pretoria, South Africa - Innovative Disabled Entrepreneur Award Scheme (IDEAS) is a Ntsika Enterprise Promotion Agency competition for successful disabled Small, Medium and Micro Enterprises.

IDEAS seeks to affirm and give recognition to entrepreneurs with disabilities who have demonstrated excellence and innovation as well as triumph over adversities in their business enterprises.

Entry forms with requirements to be collected at the Provincial SMME/Disability Desk. People eligible for the competition are:

How to overcome double discrimination of disabled people in South Africa

Nkeli, Jerry.  1998.  How to overcome double discrimination of disabled people in South Africa.
English

"Legislation for Human Rights"
Stockholm, Sweden, 24 August 1998


by Jerry Nkeli, Human Rights Commissioner

 

Ladies and gentlemen and colleges, Today I will sketch for you the history of South Africa from the point of view of the Disability Rights Movement. In the 1970s we had no Disability Rights Movement in South Africa. Most disabled people were in institutions, they worked in sheltered workshops, they were not organized and they had no rights.

Human Rights Commissioner reflects on achievements obtained by people with disabilities

Nkeli, Jerry.  1998.  Human Rights Commissioner reflects on achievements obtained by people with disabilities.
English

Seminar on Human Rights for Persons with Disabilities
from a North and South Perspective
Stockholm, Sweden 23 August, 1998


Jerry Nkeli, Human Rights Commissioner, South Africa

Ny rapport från NCD om förbättringar i tillämpningen av rättigheter för flygresenärer med funktionsnedsättgning

National Council on Disability (NCD).  1999.  Ny rapport från NCD om förbättringar i tillämpningen av rättigheter för flygresenärer med funktionsnedsättgning.
Swedish

English title: NCD Releases Report on Improving the Enforcement of Civil Rights of Air Travelers with Disabilities

In English

WASHINGTON (1999) - The National Council on Disability (NCD) har släppt en betydande rapport som visar på en undermålig tillämpning av Air Carrier Access Act (ACAA) sedan dess antagning 1986. NCDs rapport Enforcing the Civil Rights of Air Travelers with Disabilities innehåller rekommendationer för hur tillämpningen av medborgerliga rättigheter för resenärer med funktionsnedsättning ska förbättras. Detta inkluderar även ändringar i lagen och förbättringar hos transportdepartementet.

NCD Releases Report on Improving the Enforcement of Civil Rights of Air Travelers with Disabilities

National Council on Disability (NCD).  1999.  NCD Releases Report on Improving the Enforcement of Civil Rights of Air Travelers with Disabilities.
English

På svenska

WASHINGTON (1999) --The National Council on Disability (NCD) has released a groundbreaking report documenting ineffective enforcement of the Air Carrier Access Act (ACAA) since the law's passage in 1986. NCD's report, Enforcing the Civil Rights of Air Travelers with Disabilities, contains recommendations on how to improve the enforcement of civil rights of air travelers with disabilities, including changes to the law and improvements for the Department of Transportation.

IL-rörelsen breder ut sig i Asien

Nakanishi, Yukiko.  1999.  IL-rörelsen breder ut sig i Asien.
English
In English


Följande artikel publicerades i DISABILITY INTERNATIONAL; Asia-Pacific Region, Vol.11, No. 2 1999. Disabled Peoples' International.

17-20 maj 1998 höll Chung Nip polio center och Human Care Association of Japan i det första seminariet om Independent Living i Seoul, Korea.

Independent Living movement spreads in Asia

Nakanishi, Yukiko.  1999.  Independent Living movement spreads in Asia.
English

På svenska

The following article appeared in DISABILITY INTERNATIONAL; Asia-Pacific Region, Vol.11, No. 2 1999. Disabled Peoples' International. 


On 17-20 May, 1998, the first Independent Living seminar in Seoul, Korea was conducted jointly by the Chung Nip polio Center in Korea and Human Care Association of Japan.

Effects of the Economic Downturn in Japan

Nakanishi, Yukiko.  1998.  Effects of the Economic Downturn in Japan.
English

by Shoji and Yukiko Nakanishi, DPI-Japan
April 1998



The Japanese Government has been trying to promote decentralization for the last 6 - 7 years. The bad economic situation has strengthened this trend, with expectations that local budgets to be allocated to support it. In the field of social welfare, the plan is to move the responsibility to provide many services from the national level to the prefectural level, and from the prefectural level to the municipal level. Disabled persons are afraid that some services will be cut due to scarce local resources.

Effects on the lives of people with disabilities:

Development and Self-Help Movement of Women with Disabilities

Nakanishi, Yukiko.  2002.  Development and Self-Help Movement of Women with Disabilities.
English

by Yukiko Nakanishi
President, Asia Disability Institute, Chairperson, DPI-Japan International Committee


A popular Japanese expression says that "A women has no house to rest in anytime", meaning that a woman should obey her father as a child, her husband as a wife, and her children as an elderly person. In Japan, as elsewhere in Asia, women continue to be treated as substantially inferior to men.

The problems of women with disabilities are especially more intensive than those of women without disabilities. The issues and problems facing women with disabilities are numerous as all of you are already aware. Poverty and injustice are cores of vulnerability and deprivation of women with disabilities.

Independent Choices: Enhancing Consumer Direction for People with Disabilities

Nadash, Pamela.  1998.  Independent Choices: Enhancing Consumer Direction for People with Disabilities.
English

Ms. Nadash, a graduate student at Columbia University, is former Director, National Institute on Consumer-Directed Long-Term Services, The National Council on Aging.


The following is an article from American Rehabilitation Volume 24, Number 3 Summer Autumn 1998 Personal Assistance Services Part 1 of 2.
American Rehabilitation is the official publication of the Rehabilitation Services Administration (RSA) 330 C Street S.W. Washington D.C. 20202-2531

Legislation on Disability: The Costa Rican Experience

Montero, Federico.  1998.  Legislation on Disability: The Costa Rican Experience.
English

"Legislation for Human Rights"

Stockholm, Sweden, 24 August 1998

by Dr. Federico Montero


Background

Human Rights and Organisations of Disabled Persons in Costa Rica

Montero, Federico.  1998.  Human Rights and Organisations of Disabled Persons in Costa Rica.
English

Seminar on Human Rights for Persons with Disabilities
from a North and South Perspective
Stockholm, Sweden 23 August, 1998

Dr. Federico Montero, Chairman of the Costa Rican Disability Association

Gesetz zum Assistenzbudget

Ministry of Social Affairs, Sweden.  1993.  Gesetz zum Assistenzbudget.
English
SCHWEDISCHE GESETZESSAMMLUNG SFS 1993: 387

Gesetz über Unterstützung und Dienstleistungen für gewisse
Funktionsbehinderte und das Gesetz über Fürsorgeleistungen

Ministerium für Gesundheit und Soziales
Internationales Sekretariat

Postanschrift:
S-103 33 Stockholm
Schweden

September 1993

 

Inhalt

Das Gesetz über Unterstützung und Dienstleistungen für gewisse Funktionsbehinderte (SFS 1993: 387)

Das Gesetz über Fürsorgeleistungen (SFS 1993: 389)

 

 

Rights and Disabilities in Educational Provisions in Pakistan and Bangladesh: Roots, Rhetoric, Reality

Miles, M, Hossain Farhad.  1999.  Rights and Disabilities in Educational Provisions in Pakistan and Bangladesh: Roots, Rhetoric, Reality.
English

by M. Miles & Farhad Hossain, 1999

Other documents by M. Miles.

 

This chapter was first published in: F. Armstrong & L. Barton (eds) Disability, Human Rights and Education: cross-cultural perspectives, pp. 67-86. Buckingham, UK: Open University Press, isbn 0-335-20457-0, 1999. It is reprinted here by permission of the Open University Press, with slight revision.

 

Synopsis

Older People and Direct Payments

Macfarlane, Ann.  2003.  Older People and Direct Payments.
English

Presentation at the ENIL Seminar in Southampton March 9, 2003

by Ann Macfarlane MBE

Older People & Legislation on Assessment & Direct Payments, Summary of the legal provisions,
by Ann Macfarlane MBE, March 2003

“Sometimes, I have to skip having a bath in order to chase my dreams.”

Introduction

Självstyrd gentemot förmedlad personlig assistans för individer med högt sittande tetraplegi

Mattson Prince, Jane, Manley M, Whiteneck Gale G.  1995.  Självstyrd gentemot förmedlad personlig assistans för individer med högt sittande tetraplegi.
Swedish

In English


Abstrakt

Mattson Prince J, Manley MS, Whiteneck GG.
Self-managed versus agency-provided assistance care for individuals with high level tetraplegia. Arch Phys Med Rehabil 1995; 76:919-23.

Mål

Att, inom en begränsad befolkningsgrupp som består av människor med omfattande funktionsnedsättningar fastställa huruvida å ena sidan användandet av förmedlad vårdpersonal och å andra sidan personligt anställda, tränade, och betalda assistenter korrelerar med upplevelsen av förbättrad livskvalité och hälsotillstånd samt lägre kostnader.

Utformning och omgivning

Back To Basics - Hampshire Center for Independent Living's Expert Seminar on Independent Living

Mason, Philip.  1998.  Back To Basics - Hampshire Center for Independent Living's Expert Seminar on Independent Living.
English

Keynote at the Expert Seminar
organized by the Hampshire Center for Independent Living
in Southampton, May 30 -31 1998

by Philip Mason

 


I am privileged and overawed to be the first speaker in this conference. A conference which is looking at the future in respect of those well known phrases 'Independent Living' and 'Direct Payments'. It is a privilege and also a responsibility because I need to strike the right note. I need to encourage but also to challenge.

So where do we start? Do we talk about the past; look at the present, and then think about the future?

We ought to do a little bit of all three and it is my job to start the ball rolling.

Constitutionalism and access legislation

Masemene, Moses.  1992.  Constitutionalism and access legislation.
English

 CIB logo

 

Report of the CIB Expert Seminar
on Building Non-Handicapping Environments, Harare 1992

 

Constitutionalism and access legislation

 

Moses Masemene, SAFOD, Lesotho

 

The Road to Independent Living in the USA: an historical perspective and contemporary challenges

Martinez, Kathy, Duncan Barbara.  2003.  The Road to Independent Living in the USA: an historical perspective and contemporary challenges.
English

by Kathy Martinez, with the assistance of Barbara Duncan
Reprinted form Disability World, A bimonthly web-zine of international disability news and views,
Issue no. 20 September-October 2003

 

Background

Human Rights from Disabled Peoples' Perspective in Africa

Majiet, Shanaaz.  1998.  Human Rights from Disabled Peoples' Perspective in Africa.
English

Seminar on Human Rights for Persons with Disabilities
from a North and South Perspective
Stockholm, Sweden 23 August, 1998

Shanaaz Majiet, Lawyer, South Africa


I come from South Africa and am based in Pretoria where I live and work. I am please to be here to share some thoughts with you and talk about some very fundamental challenges we face as a global movement.

Universal Design: Maine's Opportunity To Lead the Way To Information Access For Everyone

Maine CITE Coordinating Center.  2000.  Universal Design: Maine's Opportunity To Lead the Way To Information Access For Everyone.
English

In September 1997, leaders from Maine State government, business, education, and the non-profit community gathered for the Conference, Maximizing Economic Potential.  They set out to explore how Maine can develop the information technologies the state needs to be globally competitive. Sponsored by the Maine CITE Coordinating Center and the Maine Department of Education, the Conference looked at how government and education can lead the way in ensuring that information technologies accommodate differing needs and provide access for everyone. This report is the outcome of that effort.

 

Determining Consumers' Preferences for a Cash Option: New York Survey Findings

Mahoney, K J, Simon-Rusinowitz L, Desmond S M, Shoop D M, Squillace M R, Fay R A.  1998.  Determining Consumers' Preferences for a Cash Option: New York Survey Findings.
English

by K.J. Mahoney, Ph.D. L. Simon-Rusinowitz, Ph.D. S.M. Desmond,
Ph.D. D.M. Shoop, Ph.D. M.R. Squillace, M.A. R.A. Fay, B.S.

Drs. Mahoney and Simon-Rusinowitz are Project Director and Deputy Project Director, respectively, Cash and Counseling Demonstration and Evaluation. Dr. Shoop and Ms. Squillace are Faculty Research Associates and Mr. Fay is a former graduate assistant. All are at the University of Maryland Center on Aging. Dr. Desmond is Associate Professor, Department of Health Education, University of Maryland.

File attachments: 

Disability Community Leaders Denounce Jack Kevorkian

Longmore, Paul K.  1996.  Disability Community Leaders Denounce Jack Kevorkian.
English

Yesterday Jack Kevorkian assisted the suicide of a disabled woman. At least half of the people whose suicides he has abetted have been disabled. As leaders in the disability community, we are outraged that Michigan authorities allow his killing spree to go on. We are incensed that his repeated declarations of contempt for the lives of our people have been ignored.

The Second Phase: From Disability Rights to Disability Culture

Longmore, Paul K.  1995.  The Second Phase: From Disability Rights to Disability Culture.
English

The movement of disabled Americans has entered its second phase. The first phase has been a quest for disability rights, for equal access and equal opportunity, for inclusion. The second phase is a quest for collective identity. Even as the unfinished work of the first phase continues, the task in the second phase is to explore or to create a disability culture.

This historic juncture offers a moment for reflection and assessment. It is an opportunity to consider the aims and achievements of the disability movement over the past generation and in the last few years.

In August 1985, The Disability Rag reported an incident that captured the essence of the disability movement's first phase:

Personal Assistance Service Policy: Where We Have Been and Where We Are Going

Litvak, Simi.  1998.  Personal Assistance Service Policy: Where We Have Been and Where We Are Going.
English

Dr. Lilvak is Senior Research and Policy Analyst with the World Institute on Disability, Oakland, CA.

The following is an article from American Rehabilitation Volume 24, Number 4 Winter 1998 Personal Assistance Services Part 2 of 2. American Rehabilitation is the official publication of the Rehabilitation Services Administration (RSA) 330 C Street S.W. Washington D.C. 20202-2531


The Problem

Erfarenheter av lagstiftning internationellt

Lindqvist, Bengt.  1998.  Erfarenheter av lagstiftning internationellt.
English

"Konferensen om Lagstiftning för Mänskliga Rättigheter"
Stockholm, Sweden, 24 augusti 1998

Bengt Lindqvist, FN:s speciella rapportör om standardreglerna

Beijing Declaration on Disabled Persons in the New Millennium

Light, Richard.  2000.  Beijing Declaration on Disabled Persons in the New Millennium.
English

On the 12 of March 2000, the World NGO Summit on Disability, in Beijing, People's Republic of China, adopted a resolution regarding an international convention on the rights of all disabled people.

The full text of the Resolution follows:

We, the leaders of Disabled Peoples' International, Inclusion International, Rehabilitation International, the World Blind Union, and the World Federation of the Deaf, as well as national non-governmental organizations (NGO's) of and for people with disabilities from all continents, have convened in Beijing from 10 - 12 March 2000 to develop a new-century strategy for the full participation and equality of people with disabilities.

Power, Control, Confidence, and Courage

Leone, Jayne.  1997.  Power, Control, Confidence, and Courage.
English

Re-printed by permission from the Summer 1997 issue of THE VOICE OF LOW VISION - the newsletter of the Western Pennsylvania Council of Citizens with Low Vision.

Jayne Leone is active in a number of disability and advocacy organizations. Those who wish to respond to her final question may e-mail her at cfvi@trfn.clpgh.org.


The four words in the title are scary -- especially when grouped together! Overwhelming, maybe!! But essential if one is to survive and to cope with life. Let's examine each of these words.

Disabled Women and the Media - Presentation for National Women's Day

Lagadien, Fadila.  1997.  Disabled Women and the Media - Presentation for National Women's Day.
English

 Presentation for National Women's Day 1997

Telkom Women's Day Celebrations

by Ms. Fadila Lagadien

På svenska

Disabled Women and the Media

Introduction

Remove Barriers in Employment for Disabled People

Lagadien, Fadila.  1996.  Remove Barriers in Employment for Disabled People.
English

by Ms. Fadila Lagadien
First published in the IDT magazine - Leading Edge, 1996

It is the accepted belief that as disabled people we cannot engage in gainful or meaningful employment as we are believed to be sick. Sick people belong in hospital! For this reason, disabled people are placed in sheltered employment to KEEP THEM BUSY. I would like to challenge the existing perception by providing an alternative viewpoint.

In my opinion the major reason for the non-participation of disabled people in society, particularly in the workplace, is that we live in a barrier-infested society!

Personal Assistance for Independent Living Programme (PAIL), Republic of South Africa

Lagadien, Fadila.  1995.  Personal Assistance for Independent Living Programme (PAIL), Republic of South Africa.
English

People for Awareness on Disability Issues (PADI)

Personal Assistance for Independent Living Programme (1995-1997)


Funding Proposal

The Power of Potential of People with Disabilities

Lagadien, Fadila.  1993.  The Power of Potential of People with Disabilities.
English

by Fadila Lagadien, 1993


To understand potential one needs to clearly understand or have a vision of what or with whom one is dealing. For example, to understand a dog's potential, one needs to know what a dog is, what it can and cannot do.

The same would apply to any human being including people with disabilities. Unfortunately, our society have negative stereotypes about people with disabilities. This shadows society's ability to focus on the capabilities of the person as they focus only on what the person cannot do. For this reason I would like to give a world wide accepted definition of "Disability" and "Handicap" as is defined by the WORLD HEALTH ORGANIZATION - GENEVA -1980.

Adaptation of a theatre in Krakow, Poland

Kurylowicz, Ewa.  1991.  Adaptation of a theatre in Krakow, Poland.
English

 

CIB logo

  

 

 

Report of the CIB Expert Seminar on Building Non-Handicapping Environments, Budapest 1991

Contents

First fully accessible city buses in Thailand

Kulkhanchit, Topong.  1999.  First fully accessible city buses in Thailand.
English

Dear Friends,

As the consequence of my meeting with Director General of Bangkok Mass Transit Authority (BMTA) yesterday, the inauguration of Thailand First Accessibility Bus Lines will occur on August 5, 1999 at 09.00 AM.

Mr. Sonthaya Khunplum Dept. Minister of Transportation & Communication will preside over the first launching of service. Hundreds of persons with disabilites including 30 wheelchair users will witness the ceremony. You can get update news at www.bangkokpost.net on August 6, 1999. The schedule for the launch of this service is as follows:

08.30

Federal Resource Center for Women with Disabilities - Added to the National Women's Health Information Center

Krause, Carol.  1999.  Federal Resource Center for Women with Disabilities - Added to the National Women's Health Information Center.
English

The Office of Women's Health in the Department of Health and Human Services (DHHS) announces the first-ever federal resource center for women with disabilities as part of the expanding National Women's Health Information Center (NWHIC). NWHIC serves as a single gateway to thousands of federal and private sector publications and organizations on women's health through its Web site (http://www.4woman.gov) and toll-free information number (1-800-994WOMAN).

Elderly people and their accident experiences: Implication for the design of safer and easier-to-use dwellings

Kose, Satoshi.  1991.  Elderly people and their accident experiences: Implication for the design of safer and easier-to-use dwellings.
English

 

CIB logo

  

 

 

Report of the CIB Expert Seminar on Building Non-Handicapping Environments, Budapest 1991

Contents


Capability of daily living of old persons and their accident experiences:
Implication for the design of safer and easier-to-use dwellings


Satoshi Kose, Building Design and Use Division, Building Research Institute, Tsukuba, Japan

Design guidelines of public collective housing for the aging society in Japan

Kose, Satoshi.  1991.  Design guidelines of public collective housing for the aging society in Japan.
English

 

CIB logo

  

 

 

Report of the CIB Expert Seminar on Building Non-Handicapping Environments, Budapest 1991

Contents


Design guidelines of public collective housing for the aging society:
The move toward a new era in Japan


Satoshi Kose, Building Design and Use Division, Building Research Institute, Tsukuba, Japan

Genesis of the Hungarian Anti-Discrimination Legislation

Konczei, Gyorgy.  1998.  Genesis of the Hungarian Anti-Discrimination Legislation.
English

“Legislation for Human Rights”

Stockholm, Sweden, 24 August 1998

by Gyorgy Konczei


Today I am going to talk about the genesis of the Hungarian 'Anti-Discrimination Legislation', its content, and about the developments that are going on in the Council of Europe concerning the necessity of the anti-discrimination legislation in member states of the Council of Europe.


The background

Pages

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