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2014. Independent Living Institute Annual Report 2013. 
AnnualReport2013.pdf (438.49 KB)
AnnualReport2013.pdf (438.49 KB).
2022. TRIPS - Working Group Stockholm.
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2021. Remissvar över betänkandet SOU 2021:37 Stärkt rätt till personlig assistans. Independent-Living-Institute-remissvar-SOU-2021_37-Starkt-rett-till-personlig-assistans.pdf (100.2 KB)
Independent-Living-Institute-remissvar-SOU-2021_37-Starkt-rett-till-personlig-assistans.pdf (100.2 KB).
1999. Perspectivas Globales Sobre Vida Independiente Para El Proximo Milenio. Washington, D.C. 21-25 de setiembre de 1999.
Internet publication URL: www.independentliving.org/docs2/ils99sp.html
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2022. Independent Living Institute Verksamhetsberättelse 2021. Arsberattelse-ILI-2021.pdf (690.96 KB)
Arsberattelse-ILI-2021.pdf (690.96 KB).
2003. Taxi för alla-projektets utvärdering - kvalitativ sammanfattning.
Internet publikation URL: www.independentliving.org/taxi/ingelstam200303.html
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2002. Essay Contest: Disabled High School Students Can Win an All Expences Paid Trip to Japan.
Swedish disabled high school student Yasmin Jungestedt won an essay competition and a trip to Japan to take part in the10th annual camp for high school students organized by the Japanese Independent Living Movement. Links to her prize-winning essay and her account of the time she spent in Japan meeting other high school students with disabilities from Japan and around the world as well as information about the essay contest and the 10th International Convention for Disabled High School Students are presented. Internet Publication URL: http://www.independentliving.org/docs5/japan200208.html
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1983. R168 Vocational Rehabilitation and Employment (Disabled Persons) Recommendation, 1983.
This document is a Recommendation adopted by The General Conference of the International Labour Organisation in Geneva in 1983 and supplements the C159 Convention. The document seeks to set forth new international standards concerning the need to ensure equality of opportunity and treatment to all categories of disabled persons, in both rural and urban areas, for employment and integration into the community. Internet publication URL: www.independentliving.org/docs4/ilo-conv-r168.html
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1983. C159 Vocational Rehabilitation and Employment (Disabled Persons) Convention, 1983.
In 1983 The General Conference of the International Labour Organisation adopted the Vocational Rehabilitation and Employment (Disabled Persons) Convention in Geneva. Internet publication URL: www.independentliving.org/docs4/ilo-conv-c159.html
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2000. IIA Warns SOGOC: Disability Web Decision Puts Businesses on Notice.
In the wake of the court decision against the Sydney Olympics organizers, Australian businesses and authorities oversee their websites' access. Internet publication URL: www.independentliving.org/docs5/sydney-olympics-blind-accessibility-decision-press-release.html
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1998. "Invitation to Disability Studies" New book on disability studies in Japanese.
A collection of texts and resources by persons with disabilities for disabled people. (in Japanese.) Internet publication URL: www.independentliving.org/docs5/nagase.html
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1996. Zur Pflegeversicherung.
Lange Jahre war eine Pflegeversicherung ein umkämpftes, ein strittiges Thema. Unbenommen war von allen Seiten immer zu hören, daß es nötig sei, das Pflegefallrisiko abzusichern. (In German.) Internet publication URL: www.independentliving.org/docs3/zurpfleg.html
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1995. Opening universities to students with disabilities: University of Cape Town, South Africa.
The Disability Unit at the University of Cape Town, South Africa. aims to 'mainstream' rather than follow the 'welfare model' and to dismantle the many barriers that inhibit students and staff who have disabilities or chronic illnesses, from participating equally and fully in all aspects of the University. Internet publication URL: www.independentliving.org/docs5/UCapeTown95.html
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2009. From institutions to Independent Living: the need of peer-support and education programs.
Internet publication URL: www.independentliving.org/jaillet2009institutions-to-independent-living
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2009. Les politiques d'insertion pour les personnes en situation de handicap : des coûts compensés par une dynamique économique - modèle suédois et système français.
Internet publication URL: www.independentliving.org/jaillet2009politiques-dinsertion
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2019. Understanding Independent Living in Sweden: An Overview. Understanding Independent Living in Sweden - An Overview.pdf (585.64 KB)
Understanding Independent Living in Sweden - An Overview.pdf (585.64 KB).
2005. Korea: Disabled Hope for Infrastructure for Support.
The second article in a two-part series examining the problems of disabled people in Korea and possible solutions. Internet publication URL: www.independentliving.org/docs7/ji-young2005019.html
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2010. Yttrande över ”Bortom fagert tal – Om bristande tillgänglighet som diskriminering” (Ds 2010:20). Stil, Stiftarna av Independent Living i Sverige, Independent Living Institute, Marschen för tillgänglighet. 20101123STIL_ILI_Marschen_yttrande_bortom_fagert_tal.pdf (144.71 KB)
20101123STIL_ILI_Marschen_yttrande_bortom_fagert_tal.pdf (144.71 KB).
1995. Long-term Care Insurance' and Its Impact on the Population.
For many people with disabilities, the term "Long-Term Care Insurance" suggests that self-determination is in jeopardy. Experience justifies these anxieties, and reality is much worse. Internet publication URL: www.independentliving.org/docs5/paGermany.html
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1999. Act calls for care choice.
Bob Kafka outlines the Medicaid Community Attendant Services Act, MiCASA. The bill would allow individuals the choice to use their entitlements for community-based services (personal assistance services). Internet publication URL: www.independentliving.org/docs4/kafka.html
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1999. High-Tech Dawn for People with Disabilities: Typing by Eye Movement, Non-Visual.
High-tech solutions attract a lot of interest. Whether people with disabilities can actually benefit from them remains to be seen. Internet publication URL: www.independentliving.org/docs5/karenkaplan.html
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2022. Friheten att bestämma med vem, var och hur en vill bo – Avinstitutionalisering/Deinstitutionalization (DI) i Sverige. :88. AvinstitutionaliseringSverige.pdf (1.28 MB)
AvinstitutionaliseringSverige.pdf (1.28 MB).
2022. Freedom to choose with whom, where and how you want to live – Deinstitutionalisation (DI) in Sweden. English-Freedom-to-choose-Deinstitutionalisation-Sweden.pdf (2.15 MB)
English-Freedom-to-choose-Deinstitutionalisation-Sweden.pdf (2.15 MB).
1998. The Home and Community-Based Services Work Group, partners with state, consumers, and others to advance the PAS agenda.
This article discusses how the Administration (US Government) balances the goal of providing more flexibility and choice for people with disabilities with the need to ensure that the services are cost effective. Internet publication URL: www.independentliving.org/docs4/ar4985.html
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2000. New Japanese Legislation on Accessible Public Transportation.
This brief comment by Yoshi Kawauchi, architect, access specialist and advocate, Tokyo, Japan, is critical of the new Japanese legislation on access in public transportation. While appreciating the law as a first step towards improvement, he is critical because the law is not a civil rights law and has no procedure for consumers to file complaints, does not include taxicabs because of political pressure, and does not cover people with developmental disabilities or psychiatric disabilities. Internet publication URL: www.independentliving.org/docs1/japan001027.html
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1999. Disability, Poverty Reduction and Social Development.
Anita Kelles-Viitanen of the Asian Development Bank examines the objectives of the Bank in regard to poverty reduction and improving the quality of life of all people in Asia and the Pacific. Internet publication URL: www.independentliving.org/docs1/dpidi2992.html
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1992. UWZ efforts in improving accessibility in Zanzibar Stone Town.
This report by H. Khalfan to the CIB Expert Seminar on Building Non-Handicapping Environments, Harare 1992, relates why Zanzibar Stone Town is inaccessible for persons with disabilities. He presents steps being taken to improve the situation. Internet publication URL: www.independentliving.org/cib/cibharare10.html
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2003. Remarkable Teachers – Mr. Winter.
This is an account by Audrey King, M.A., an internationally known writer, speaker, and advocate on disability issues, about Mr. Winter, a high school teacher who made a difference by making sure that Ms. King, in a wheelchair because of polio, was included in the school community in every way. Internet publication URL: www.independentliving.org/column/king20030724.html
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2000. The Darker Ages: What's Wrong With Institutions?
Audrey King, M.A., an internationally known writer, speaker, and advocate on disability issues, shares observations about life in institutions gathered from 30 years of working as a rehabilitation professional. She describes how institutional structures pose a consistent dynamic tension between individual autonomy and system procedures, which are often resistant to change and necessarily geared to cost and procedure efficiencies.
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2006. A Matter of Perception.
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1992. Declaring independence in Berkeley.
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1999. Rethinking Disability and Discrimination - A social and economic approach (Comparative Study).
Internet publication URL: www.independentliving.org/docs5/equalisingopps.html and www.independentliving.org/docs5/equalisingopps.pdf
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1998. Genesis of the Hungarian Anti-Discrimination Legislation.
Hungary is leaving the old fashioned approach to disability, characterised by pity, paternalism, charity and a medical approach, and is taking on a legal approach which acknowledges the rights of disabled citizens. Internet publication URL: www.independentliving.org/docs1/hr9.html
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1994. Ett problem eller en utmaning? Att anpassa offentliga byggnader för rörelsehindrade
Internet publication URL: www.independentliving.org/docs4/konkkola94.html (In Swedish.)
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1998. Presentation at the Seminar on Human Rights for Persons with Disabilities from a North and South Perspective Stockholm, Sweden 23 August, 1998.
Kalle Könkkölä discusses the organization's perspective on human rights. Internet publication URL: www.independentliving.org/docs1/stlm19980823b.html
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1998. Presentation vid Seminarium om mänskliga rättigheter för personer med funktionsnedsättning ur ett nord- och sydperspektiv Stockholm, Sverige 23 augusti 1998.
Internet publication URL: www.independentliving.org/docs1/stlm19980823bsv.html (In Swedish.)
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1991. Elderly people and their accident experiences: Implication for the design of safer and easier-to-use dwellings.
In Japan, the 65-years-and-over age group has been rapidly increasing. Satoshi Kose, from the Building Design and Use Division, Building Research Institute in Tsukuba, Japan, discusses dwelling design for elderly people based on convenience and safety of residents. He bases his discussion on the results of two surveys conducted as a cooperative research by BRI, Asahi Chemical Co., Ltd. Housing Department, and Sekisui House Co., Tokyo Design Department. Internet publication URL: www.independentliving.org/cib/cibbudapest14.html
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1991. Design guidelines of public collective housing for the aging society in Japan.
Satoshi Kose, from the Building Design and Use Division, Building Research Institute in Tsukuba, Japan, describes the Ministry of Construction's project aimed at solving the problem of housing for the aged, in terms of both policy on housing supply and guidelines for dwelling design. Some of the practical requirements will be: elimination of level differences within dwellings; provision of handrails to assist moving about; promotion of the development of building facilities that are suited to the needs of the aged persons, etc. Internet publication URL: www.independentliving.org/cib/cibbudapest13.html
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1999. Federal Resource Center for Women with Disabilities - Added to the National Women's Health Information Center.
The Office of Women's Health in the Department of Health and Human Services (DHHS) announces the first-ever federal resource center for women with disabilities as part of the expanding National Women's Health Information Center (NWHIC). Internet publication URL: www.independentliving.org/docs5/nwhic.html
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1999. A Study of the Political Behavior of People with Disabilities - What Determines Voter Turnout, Executive Summary: Empowerment through Civic Participation.
Are people with disabilities as likely as those without disabilities to vote, and to engage in other forms of political and civic participation? If not, why not? Internet publication URL: www.independentliving.org/docs5/disvoters.html
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1999. First fully accessible city buses in Thailand.
On August 5, 1999 Thailand's first accessible buses will begin accommodating passengers with disabilities on routes in Bangkok. Internet publication URL: www.independentliving.org/docs5/thaibus.html
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1991. Adaptation of a theatre in Krakow, Poland.
In May 1991, the 19th century Slowackiego Theatre in Krakow, Poland was scheduled to host the International Conference on Security and Cooperation. This paper discusses adaptations made to parts of the building so that the needs and interests of people with disabilities could better be served. Internet publication URL: www.independentliving.org/cib/cibbudapest15.html
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1995. Personal Assistance for Independent Living Programme (PAIL), Republic of South Africa.
The immediate objective of the PAIL Programme is that by the end of the project period a minimum of five hundred severely disabled people per year per operational region will have achieved greater independence than in 1995 in South Africa. Internet publication URL: www.independentliving.org/docs5/ProposlPASouthAfrica.html
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1993. The Power of Potential of People with Disabilities.
Fadila Lagadien looks at the social, attitudinal and physical barriers that handicap a person with a disability, resulting in their unacknowledged and unused potential. Internet publication URL: www.independentliving.org/docs4/lagadien.html
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1997. Presentation för nationella kvinnodagen 1997 Telekom - firande inför kvinnodagen.
Fadila Lagadien considers how media communicates images of the estimated 13 per cent of disabled South Africans, especially women with disabilities. Internet publication URL: www.independentliving.org/docs1/fadila97sv.html (In Swedish.)
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1997. Disabled Women and the Media - Presentation for National Women's Day.
Fadila Lagadien considers how media communicates images of the estimated 13 per cent of disabled South Africans, especially women with disabilities. Internet publication URL: www.independentliving.org/docs1/fadila97.html
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1996. Remove Barriers in Employment for Disabled People.
Fadila Lagadien challenges the existing perception that disabled people cannot engage in gainful or meaningful employment as they are believed to be sick, and sick people belong in hospital. Internet publication URL: www.independentliving.org/docs4/fadila96.html
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1997. Power, Control, Confidence, and Courage.
Becoming an active participant in what happens to you requires that you feel empowered, exercise self-control, feel self-confident and have courage. Internet publication URL: www.independentliving.org/docs5/Leone97.html
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2000. Recording human rights abuses against persons with disabilities: practical issues revealed by the Disability Awareness in Action Human Rights Project.
In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." Pre-paper 2. Internet publication URL: www.independentliving.org/docs2/docs2/light00.pdf. In Internet publication URLs: www.independentliving.org/docs2/rioux00.pdf and www.independentliving.org/docs2/rioux00.doc
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2000. Beijing Declaration on Disabled Persons in the New Millennium.
This editorial by Richard Light, Research & Publications Director of Disability Awareness in Action first presents the content of a resolution taken at the World NGO Summit on Disability in Beijing regarding an international convention on the rights of all disabled people. He then goes on to decry the number of expert conferences, special programmes and political initiatives that have failed to yield real progress with regard to action on discrimination against people with disabilities. Internet publication URL: www.independentliving.org/docs6/light200003.html
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1998. Erfarenheter av lagstiftning internationellt.
Bengt Lindqvist, FN:s speciella rapportör om standardreglerna, inleder Konferensen om Lagstiftning för Mänskliga Rättigheter i Stockholm, Sverige. (In Swedish.) Internet publication URL: www.independentliving.org/docs1/hr3.html
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1999. Disabled to Raise Funds for Non-Disabled - Labor Day weekend radio event to benefit Literacy Volunteers of America.
To show that people with disabilities – like all other humans – can be both on the receiving and giving end, "On A Roll," the weekly syndicated radio program on disability lifestyle issues, produced by people with disabilities, raised funds for Literacy Volunteers of America, Inc. (LVA) through an on-air event on Sept. 5, 1999. Internet publication URL: www.independentliving.org/docs6/onarollathon1999.html
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1998. Personal Assistance Service Policy: Where We Have Been and Where We Are Going.
Dr. Simi Litvak examines the current state of Personal Assistance Services (PAS), and how they might be improved in a fiscal, quality, and humanitarian sense. Internet publication URL: http://www.independentliving.org/docs4/ar4984.html
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1995. The Second Phase: From Disability Rights to Disability Culture.
Longmore, Professor of History and Director of the Institute on Disability at San Francisco State University, describes how the American disability rights movement moved in the mid-1990s from a focus on rights to a quest for collective identity. First published in DISABILITY RAG & RESOURCE, Sept./Oct. 1995. Internet publication URL: www.independentliving.org/docs3/longm95.html
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1999. Paul Longmore's testimony before Assembly Judiciary Committee Protesting Assembly Bill 1592.
A testimony before the Assembly Judiciary Committee against AB 1592 which would legalize physician assisted suicide in California. The committee voted for the bill 8 to 7 - there is a long fight ahead. Internet publication URL: www.independentliving.org/docs5/longmore1592.html
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1996. Disability Community Leaders Denounce Jack Kevorkian.
It is long past time for the disability community to respond to Jack Kevorkian's lethal assaults on our people. At least half of the people whose suicides he has abetted have been disabled. Internet publication URL: www.independentliving.org/docs4/longmore96.html
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2003. Older People and Direct Payments.
Presented at the European Network on Independent Living (ENIL) conference in Southampton, England, 7-9 March 2003. "Older People and Direct Payments." Includes: Older People & Legislation on Assessment & Direct Payments, Summary of the legal provisions, by Ann Macfarlane MBE, March 2003. Internet publication URL: www.independentliving.org/docs6/macfarlane200303.html
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1998. Determining Consumers' Preferences for a Cash Option: New York Survey Findings. ar498.pdf (59.02 KB)
The purpose of this article is to present findings from a telephone survey conducted in New York to assess consumers' preliminary interest in the cash option when compared to traditional services. Internet publication URLs: www.independentliving.org/docs4/ar498.html
ar498.pdf (59.02 KB).
2000. Universal Design: Maine's Opportunity To Lead the Way To Information Access For Everyone.
In September 1997, leaders from Maine State government, business, education, and the non-profit community gathered for the Conference, Maximizing Economic Potential. The Conference looked at how government and education can lead the way in ensuring that information technologies accommodate differing needs and provide access for everyone. This report is the outcome of that effort. Internet publication URL: www.independentliving.org/docs5/maine-web-accessibility.html
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1998. Human Rights from Disabled Peoples' Perspective in Africa.
Shanaaz Majiet speaks on human rights and disability from the perspective of the African continent. Internet publication URL: www.independentliving.org/docs1/stlm19980823d.html
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2003. The African View of Independent Living.
Joshua T. Malinga, Secretary General, Pan African Federation of the Disabled (PAFOD), and Past World Chairperson, Disabled Peoples' International (DPI) gives an overview of Indepedent Living in Africa. He concludes that, "Independent Living in Africa is basically in theory form and is still in its rudimental stages due to a number of factors." Internet publication URL: www.independentliving.org/docs6/malinga2003.html. In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish).
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2003. Independent Living in the U.S. & Canada.
Kathy Martinez is International Director and Deputy Director of the World Institute on Disability, Oakland, USA. She gives an overview of events in the U.S. and Canada that made the independent living movement possible. She also covers the basic philosophy of the U.S. IL movement, as well as emerging issues and trends that challenge the IL movement. Internet publication URL: www.independentliving.org/docs6/martinez2003.html. In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish).
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2003. The Road to Independent Living in the USA: an historical perspective and contemporary challenges.
The authors (Kathleen Martinez, US National Council on Disability member and Deputy Director, World Institute on Disability, and Barbara Duncan, former Rehabilitation International information officer, DisabilityWorld co-editor) highlight the events and leaders that made the birth of the independent living movement possible. Also included are some basic philosophical tenets and assumptions that have guided the U.S. IL movement, as well as some observations regarding emerging issues and trends. Reprinted form "Disability World, A bimonthly web-zine of international disability news and views," Issue no. 20 September-October 2003. Internet publication URLs: www.disabilityworld.org/09-10_03/il/ilhistory.shtml and www.independentliving.org/docs6/martinez200309.html
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1992. Constitutionalism and access legislation.
CIB W84 Report Harare: Access Design and Legislation, 1992. Constitutions enshrine fundamental human rights, therefore disability rights denote access to fundamental human rights as we who have disabilities have got to enjoy the same rights as other people. Internet publication URL: www.independentliving.org/cib/cibharare11.html
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1998. Back To Basics - Hampshire Center for Independent Living's Expert Seminar on Independent Living.
Back To Basics: Philip Mason's keynote speech at the expert seminar organized by the Hampshire CIL in Southampton, May 30 -31, 1998.
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1992. Access legislation and enforcement mechanisms.
Internet publication URL: www.independentliving.org/cib/cibharare12.html
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2000. Adaptive Technology for the Internet: Making Electronic Resources Accessible to All - The Online Version.
American Library Association. ISBN 0-8389-0752-0. Internet publication URL: www.independentliving.org/docs6/mates2000.html
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1995. Självstyrd gentemot förmedlad personlig assistans för individer med högt sittande tetraplegi.
Forskningssammandrag: Att, inom en begränsad befolkningsgrupp som består av människor med omfattande funktionsnedsättningar fastställa huruvida å ena sidan användandet av förmedlad vårdpersonal och å andra sidan personligt anställda, tränade, och betalda assistenter korrelerar med upplevelsen av förbättrad livskvalité och hälsotillstånd samt lägre kostnader. Internet publication URL: www.independentliving.org/docs3/smap95sv.html (In Swedish)
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1995. Self-Managed Versus Agency-Provided Personal Assistance Care for Individuals With High Level Tetraplegia.
Internet publication URL: www.independentliving.org/docs3/smap95.html
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1991. Access legislation in the Czech Republic.
Internet publication URL: www.independentliving.org/cib/cibbudapest16.html
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1991. Barriers in the built environment: The problems of barrier removal in the Czech Republic.
Internet publication URL: www.independentliving.org/cib/cibbudapest17.html
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1996. Do 'assistive devices' really assist disabled people?
Assistive devices ensure that people with disabilities are active in society. But what prevents them from assisting disabled people to be independent? Internet publication URL: www.independentliving.org/docs1/mclarenetal1996.html
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2001. Culture and Identity.
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1997. Government Implementation of the Standard Rules As Seen By Member Organizations of World Federation of the Deaf - WFD.
Internet publication URL: www.independentliving.org/standardrules/WFD_Answers/WFD.pdf
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1997. Government Action on Disability Policy, A Global Survey.
Internet publication URL: www.independentliving.org/standardrules/UN_Answers/UN.pdf
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1997. Government Implementation of the Standard Rules As Seen By Member Organizations of World Blind Union - WBU.
Internet publication URL: www.independentliving.org/standardrules/WBU_Answers/WBU.pdf
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1997. Government Implementation of the Standard Rules As Seen By Member Organizations of Rehabilitation International - RI.
Internet publication URL: www.independentliving.org/standardrules/RI_Answers/RI.pdf
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1997. Government Implementation of the Standard Rules As Seen By Member Organizations of Inclusion International (ILSMH).
Internet publication URL: www.independentliving.org/standardrules/InclInt_answers/ILSMH.pdf
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1997. Government Implementation of the Standard Rules As Seen By Member Organizations of Disabled Peoples' International - DPI.
Internet publication URL: www.independentliving.org/standardrules/DPI_Answers/DPI.pdf
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2006. Social Responses to Disability & Poverty in Economically Weaker Countries. Research, Trends, Critique, and Lessons Usually Not Learnt. Annotated bibliography of modern and historical material.
The author introduces 250 articles and books showing social responses to disability and poverty in two-thirds of the world now and in history, with critical notes. He commends some intelligent approaches in the face of complexity and challenges simplistic slogans and official blah-blah. [An earlier version of the “Modern Materials” section first appeared in DisabilityWorld (Dec.05 - Jan.06), and is reproduced by kind permission, with revision and extension.] Internet publication URL: www.independentliving.org/docs7/miles200603.html
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2005. Martin Luther and Childhood Disability in 16th Century Germany: What did he write? What did he say?
Revised and extended version of a paper that was first published with copyright by The Haworth Press, Inc., Binghampton, NY 13904-1580, in the Journal of Religion, Disability & Health (2001), vol. 5 (4) pp. 5-36, and is here reproduced with permission.
Martin Luther’s ideas and theological writings on deaf or disabled children and adults, and his personal and practical experiences in this field are shown. Textual evidence gives a different picture from what is commonly believed, and is interesting both for Luther’s own times and the modern world. Internet publication URL: www.independentliving.org/docs7/miles2005b.html
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1982. Why Asia Rejects Western Disability Advice.
This paper reviews psycho-social and religious factors, professional motivations and political inequalities, that have prevented any widespread adoption of "community-based rehabilitation" by Asian governments. Internet publication URL: www.independentliving.org/miles_m1982why_asia_rejects_western_disability_advice
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2013. Buddhism and responses to disability, mental disorders and deafness in Asia - A bibliography of historical and modern texts with introduction and partial annotation, and some echoes in western countries. buddhism-disability-bibliography-m-miles201311.pdf (855.91 KB)
buddhism-disability-bibliography-m-miles201311.pdf (855.91 KB).
2000. Signing in the Seraglio: mutes, dwarfs and jestures at the Ottoman Court 1500 - 1700.
Deaf people, known as 'mutes', worked in the Turkish Ottoman court from the fifteenth to the twentieth century in various roles along with dwarfs and other entertainers. Their signing system became popular, was used regularly by hearing people including successive Sultans, and was reportedly capable of expressing ideas of whatever complexity. Internet publication URL: www.independentliving.org/docs5/mmiles2.html
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2006. Children with spina bifida and hydrocephalus in Africa: can medical, family and community resources improve the life chances? miles200609.pdf (238.41 KB)
This much extended and revised article incorporates material from: M. Miles (2002) Children with hydrocephalus and spina bifida in East Africa: can family and community resources improve the odds? Disability & Society 17: 643-658, Carfax Publishing, Taylor & Francis. (The latter material is republished with permission.) The revised article concerns social responses to children with hydrocephalus and spina bifida in African countries, and the historical development of ways in which various resources have been used to improve their life chances, and overcome the disabling effects of these conditions. Internet publication URLs: www.independentliving.org/docs7/miles200609.html and www.independentliving.org/docs7/miles200609.pdf (239 KB).
miles200609.pdf (238.41 KB).
1982. Anledningen till varför Asien avvisar råd gällande funktionsnedsättning från väst.
Internet publication URL: www.independentliving.org/miles1982asien_avvisar
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2006. Signs of Development in Deaf South & South-West Asia: histories, cultural identities, resistance to cultural imperialism.
First published in 2001, this revised article extended and updated 2006-04 offers evidence and hypotheses for a short cultural history of deaf people, culture and sign language in South Asia and South West Asia, using documents from antiquity through 2005. A new appendix shows 110 items on deafness and sign language in the Arab countries of the Eastern Mediterranean and South West Asia. This is a further revised, extended and updated version of a chapter first published in: Alison Callaway (ed) Deafness and Development, University of Bristol, Centre for Deaf Studies, 2001. It is here republished with kind permission. Internet publication URL: www.independentliving.org/docs7/miles200604.html
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2010. THE CHUAS OF SHAH DAULAH AT GUJRAT, PAKISTAN: Evidence, Historical Background and Development, with Bibliography 1839-2009.
[This article cites and quotes historical materials first collected in: M. Miles (1996) Pakistan's microcephalic chuas of Shah Daulah: cursed, clamped or cherished? History of Psychiatry 7: 571-589, from Taylor & Francis, www.tandf.co.uk/]
Evidence on microcephalic children (chuas) at the shrine, and how some of them developed a capacity for independent living.
Internet publication URL: http://www.independentliving.org/miles201005.html
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2005. Deaf People Living and Communicating in African Histories, c. 960s - 1960s.
New, much extended Version 5.01, incorporating an article first published in Disability & Society vol. 19, pp. 531-45; August 2004, titled then "Locating deaf people, gesture and sign in African histories, 1450s-1950s". The latter material is republished with permission of Carfax Publishing, Taylor & Francis. Visits 100 deaf people in 42 nations, across 1000 years of African history. From servants and schoolchildren to scientists, soldiers and statesmen, using every possible means of communication. Internet publication URL: www.independentliving.org/docs7/miles2005a.html
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2000. Blind People Handling Their Own Fate.
Accounts of earlier social responses to blind people particularly in Japan, and to some extent in China, indicate a measure of both group and individual autonomy within reserved and valued occupations, ostensibly reflecting a status model more 'normal' than blind people enjoyed in much of European history. (Excerpt From: M. Miles (2000) Disability on a Different Model: Glimpses of an Asian Heritage.) Internet publication URL: www.independentliving.org/docs5/mmiles1.html
Pages
Recent Publications
- Adolf Ratzka, a great leader of the Independent Living movement has unfortunately passed away.
- Independent Living Institute Annual Report 2023
- Independent Living Institute Verksamhetsberättelse 2023
- In Search of Links: Overview of the State of Research on Disability, Migration, Employment and Health
- Personal assistance in Sweden
- Disability Defenders Network’s Newsletter - The development of personal assistance in Scotland
- The struggle for a PA law in Poland
- The Development of Personal Assistance in Malta: Moving closer to independent living through a practical and phased approach
- Personal Assistance: What's the current situation in Finland?
- The history of the adoption of the Personal Assistance Law in Bulgaria and its subsequent controversial effect - 2009-2023
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