STIL SWEDEN
23 May 2003
Jane Campbell
When contemplating the future of Independent Living organisations, we should
reflect upon our history, to revisit the principles that have advanced our
independence and see if they still hold up today or if it's time to modify
them. So let us look for a moment at our rich history of building disabled
people's independence.
After 22 years in UK, Mr Ahmed decided to bring his wife and six of his children to join him from their Asian country of origin. His eldest son was twenty years old, the youngest just three. Two daughters were married, and they remained in their country. He hoped the eldest son would find work in UK, and there would be school education for the others. He did not know what could be done for thirteen year old Imran, though he had heard there were special schools for children like him.
"Epileptic." by David B., translated by K. Thompson. (2005). London: Jonathan Cape. 366 pages.
M. Miles,
THE DEAF AFGHAN CHILD ‑ I.
Counsellor: In the past few weeks we have talked about children and young people with different disabilities. First we looked at the fingers on our hand, and saw that one of them is smaller and weaker than all the others. We do not disregard that one simply because it is small and weak. In the same way, one child out of ten, on average, has some kind of disability, and needs some extra help from its family and the local community. We heard from the parents of one such child who is mentally weaker. They were given advice on how to help their child at home. Those parents will be back in a week or two, to report how they have got along with teaching their child.
By Steven E. Brown, 2007-05-31
Institute on Disability Culture
Center on Disability Studies
University of Hawai‘i at Manoa
Honolulu, HI USA
Introduction
Thank you for inviting me to share perceptions and realities concerning the Americans with Disabilities Act (ADA). I have been pondering for some months now how I would address these topics. The dilemma I have faced is not only how to describe general facts and personal beliefs about the ADA, but how to discuss them in ways that will make sense in a Swedish context.
Colin Barnes
Centre for Disability Studies
School of Sociology and Social Policy
University of Leeds
LS2 9JT
England
Introduction
This presentation will discuss the thinking behind the development of 'direct payment' type schemes for personal assistants (PAs) for disabled people in the UK, and their relationship to the concept of independent living from the perspective of the disabled people's movement.
Attention will then centre on the British Government's policy on direct payments since the 1980s, followed by an examination of the current situation in terms of the distribution, accessibility and support for such schemes at the local level.
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Taxi för alla | Framtidsvision | Faktaruta | Pressarkiv | Taxi site översikt
Härmed yrkar vi att länsrätten upphäver beslut i Stockholms läns landsting 7/10 2003 ang åtgärder för att få färdtjänstbudgeten i balans.
Grunden för att beslutet bör upphävas är följande:
1. Då färdtjänstnämnden behandlade det återremitterade ärendet hade man inte kommunicerat ett korrekt referat om innehållet i fullmäktiges återremiss. I detta yrkande låg krav på en opartisk ekonomisk utvärdering.
Taxi för alla | Faktaruta | Pressarkiv | Taxi site översikt
Inför upphandlingen av resetjänster inom färdtjänstbussområdet står nu återigen ord mot ord. Blir det dyrare eller billigare att låta användarna själva bestämma vem de vill åka med? Att livskvaliteten höjs och att rättviseaspekten talar för ett flexiblare system verkar alla överens om. Men när det gäller att bevisa vilken tes som håller ekonomiskt blir förvirringen total.
Om man jämför det ekonomiska utfallet som Färdtjänsten hänvisar till finner man några intressanta motsägelser. Adolf Ratzka ifrågasätter Färdtjänstens beslutsunderlag:
Taxi för alla | Framtidsvision | Faktaruta | Pressarkiv | Taxi site översikt
Dagens Nyheter 2003-09-23
Avgifterna för rullstolstaxi återremitterades. Protesterna hjälpte. Förslaget om att kraftigt höja avgifterna för att åka rullstolstaxi återremitterades av landstingsfullmäktige på tisdagen.
En delseger för de funktionshindrade som flera gånger den senaste tiden hållit sina protestmöten utanför Landstingshuset på Kungsholmen.
by Dr Jane Campbell MBE
STIL Seminar, 26th May 2003
Independent living asserts that every life is worth living; science seeking to eliminate disability is against this principle; science should make disabled life worth living, not prevent or end it.
By the authority vested in me as President by the Constitution and the laws of the United States of America, and in order to place qualified individuals with disabilities in community settings whenever appropriate, it is hereby ordered as follows:
Section 1. Policy. This order is issued consistent with the following findings and principles:
(a) The United States is committed to community-based alternatives for individuals with disabilities and recognizes that such services advance the best interests of Americans.
(b) The United States seeks to ensure that America's community-based programs effectively foster independence and participation in the community for Americans with disabilities.
Legislative and financial basis
The legislative basis for Personal Assistance at the Workplace (PAW) are the special guidelines to promote Personal Assistance at the Workplace that have been in force since 1st of January 2004. They aim at securing a qualitative as well as a quantitative increase of participation at the general labour market or for completing a vocational training (includes higher education and studying at a University in this context) of those people with disabilities that need personal support to structure their working life resp. their vocational training in an independent and autonomous way.
Legal and financial basis
The legal basis for the Austrian long-term care benefit is the Federal Act for long-term care benefit that was introduced in 1993. The expressed purpose of this legislation is as follows: “The long-term care benefit aims at compensating additional expenditure due to long-term care in the form of a flat-rate cash benefit to ensure as far as possible necessary attendance and support for persons with need for care and to improve their possibility to live an independent life according to their needs.” (§1)
Contents
Introduction
Beginnings
Family Life
Polio
Post-Polio
East and West of the San Francisco Bay
Berkeley
Coming Into Her Own
Two Lives--Two Homes
Legacies
Footnotes
by Susanne Berg, Independent Living Institute
Let me start by thanking you all for inviting me here today.
During the last two decades of my life I have had assistance with almost all of the everyday activities “common man” does without thinking. I have spent months in hospital and rehabilitation units. I have lived in a flat connected to a service central allowing me some modicum of privacy and integrity. I have had the doubtful privilege of meeting the fifty or so personal of the “night patrol” taking turns to visit me. And since 1994 I have had personal assistance through direct payments.
by Raffaello Belli,
2003-03,
Presented at the European Network on Independent Living (ENIL) conference in
Southampton, England, 7-9 March 2003
(Another presentation at the conference: Rajkov, Gordana. 2003. "Inependent Living and Yugoslav Experience.")
Negative attitudes
There had been many negative attitudes towards direct payments in Italy. One of the reasons is attributed to the opposition of powerful organizations who run big institutions. Furthermore many people expect the authorities to solve any of their problems.
Colin Barnes
Professor of Disability Studies
Centre for Disability Studies
Department of Sociology and Social Policy
The University of Leeds
Leeds
LS2 9JT
England
(Statement presented to the Organisation for Economic Co-operation and Development Conference ‘Transforming Disability Into Ability’, March 6th 2003.)
We, four hundred participants from many European countries gathered at the 1st European Congress on Independent Living, held in Tenerife in the framework of the 2003 European Year for Disabled People, urge that the Canary Islands’ and Spanish Governments take the lead in advocating for the implementation of this Declaration in European Union policy, specifically in the work for the upcoming Non Discrimination Directive on Disability, and the European Action Plan on Disability.
Principles of Independent Living
Contents
by Karen Stone
Born and raised in San Francisco, Karen Stone, now 53, studied photography, and later obtained a B.A. in Communications from Antioch College. She then worked as a professional photographer for over twelve years in California. Later, upon entering the marketing field, Ms. Stone made use of her photography, writing, and business skills. After relocating to Albuquerque, New Mexico (USA), she worked in marketing architectural/engineering services until slowed down by Multiple Sclerosis.
Taxi för alla | Framtidsvision | Faktaruta | Pressarkiv | Taxi site översikt
Människor, som sitter kvar i sina rullstolar under resan, har varit helt beroende av färdtjänstbussar för sina förflyttningar. Fr o m idag kan ett hundratal stockholmsbor med tillstånd för färdtjänstbuss, som deltar i projektet "Taxi för alla", ringa till tre taxiväxlar och begära en rullstolanpassad taxibil. Därmed förväntas resenärernas rörlighet och valfrihet öka kraftigt i jämförelsen med dagens färdtjänstbussar.
Det finns mycket som talar för att en övergång från Färdtjänstbuss till Rullstolstaxi skulle
Den kalkyl som ligger till grund för min uppfattning att Rullstolstaxi är ett kostnadseffektivt, dvs billigare, alternativ till Färdtjänstbuss är baserad på ett ofullständigt dataunderlag, och bör därför tolkas med viss reservation.
docent dr Stefan de Vylder, 2003-03
Hela rapporten: 
PDF, (72 KB), Word format (115 KB)
Projektets målsättning var förbättrad rörlighet och tillgänglighet, och därmed livskvalitet, för funktionshindrade med behov av specialfordon. Vår slutsats är att pilotverksamheten Taxi för Alla (TFA) på ett positivt sätt bidragit till att uppnå detta syfte. De som har ingått i pilotgruppen har ökat sitt resande under försöksperioden – dock ej med lika mycket som man kanske hade haft anledning att förvänta sig.
Disabled Peoples' International Europe
11 Belgrave Road, London SW1V 1RB, UK
Tel: +44 207 834 0477 Fax: +44 207 821 9539
E-Mail: dpieurope@compuserve.com
On 12/13 February 2000, 130 disabled people and parents, delegates from DPI organisations in twenty-seven countries in Europe, African, Australia and North America, met in Solihull, UK to discuss bioethics and human rights. This was the first occasion of its kind and it is with pride that we make the following declaration.
First and foremost we demand:
Nothing about us without us
Disabled Peoples' International Europe
11 Belgrave Road, London SW1V 1RB, UK
Tel: +44 207 834 0477 Fax: +44 207 821 9539
E-Mail: dpieurope@compuserve.com
Den 12-13 februari 2000 träffades 130 handikappade människor och föräldrar, ombud från DPI organisationer från tjugosju länder i Europa, Afrika, Australien och Nordamerika i Solihull i England för att diskutera bioetik och mänskliga rättigheter. Det var det första evenemanget av detta slag och med stolthet vill vi tillkännagiva följande:
by Selina Bonnie
The Department of Sociology and Social Policy
The University of Leeds
August 2002
Submitted for the Degree of Masters of Arts in Disability Studies
Abstract
Are disabled people sexual beings? Should PAs assist their leaders to engage in sexual activity? What are the legal and ethical implications of facilitated sexual expression in the leader/PA relationship?
This paper explores facilitated sexual expression in the Irish Independent Living Movement. The work of respected academics such as Colin Barnes, Jenny Morris, Mike Oliver and Tom Shakespeare, is used to set the experience of disabled people in Ireland, into the context of the wider international disabled peoples movement.
Colin Barnes (Centre for Disability Studies, University of Leeds, England).
(Penultimate draft of an article submitted for publication in a special issue of the ‘Scandinavian Journal of Research’, Volume 5. 2003).
Source: The Korea Herald, 2005-05-19
Although the government estimates there are 1.6 million disabled people inKorea and civil activist groups say there are 4.5 million, "Where arethey?" is a question which many ask.
It reflects the isolation in which the disabled live. Despite the apparentinvisibility of the disabled population, however, what is currently going onbehind the scenes is a volatile and compelling movement for a new law to protectdisabled rights.
M. Miles (West Midlands, UK)
ABSTRACT
Anförande vid stiftelsen solstickans pilotseminar om "meningsfull fritid för gravt handikappade ungdomar," ABF-huset, Stockholm den 26 januari 1987. Från "Stiletten" nr. 2, 1987.
Min första personliga assistant fick jag i samband med att jag skolintegrerades i mellanstadiet. Det innebar för mig att jag först då kunde börja bestämma över mitt eget liv, i varje fall under skoldagen. Dittills hade jag varit beroende av olika institutionella lösningar i form av specialklasser m m vilka för mig inneburit att andra hela tiden hade bestämt vad jag skulle få hjälp med och därmed också hur mitt liv skulle inrättas. Med en personlig assistant kunde jag däremot själv bestämma hur mitt liv skulle gestaltas.
A Society Without Institutions
With independent living means that one lives either with one's own family, by oneself or with a small group of people in an ordinary flat or house.
The term institution refers to one or more houses that are separated from their surroundings. In an institution many people live together. They are divided into different units. All special services, such as for example training facilities, and daily activities are a part of the institution.
By Karl Grunewald, M.D., Professor,
Vesslev. 12, S-13150 Saltsjo-Duvnas, Sweden. karl.grunewald@swipnet.se
Former Head of Division for Care of People with Disability,
National Board of Health and Welfare, Stockholm
2003
"All men are born free and equal in dignity and
rights." UN 1948
A society that discriminates its disabled citizens
is a disabled society.
Free copyright!
CONTENTS
by Dr. Adolf D. Ratzka
founder and former chairperson of STIL, Stockholm, Sweden
Personal assistance, like no other service, illustrates the key elements of Independent Living. People who need personal assistance have always been made dependent on others for the most basic needs of life such as eating or using the toilet. Given this physical dependency the conclusion was close at hand to consider us as dependent on others also emotionally and intellectually. If you cannot pull up your pants like a small child, you may be treated like a small child in other areas as well. It is no surprise then that the Independent Living philosophy is most easily grasped by people who need personal assistance.
Traditional Swedish Personal Assistance Services
av Javed Abidi, Executive Director,
National Centre for Promotion of Employment of Disabled, i Indien
Artikeln har tidigare publicerats i Disability Awareness in Action Newsletter, nummer 74, juli 1999.Javed Abidis ursprungliga artikel från vilken dessa utdrag tagits publicerades ursprungligen i DeepShitha, Spastics Society of Eastern Indias nyhetsblad i december 1998.
by Javed Abidi
Executive Director, National Centre for Promotion of Employment of Disabled, India
This article appeared in Disability Awareness in Action Newsletter no. 74, July 1999.
Javed Abidi's original article, from which these extracts were taken, were originally published in DeepShitha, the journal of the Spastics Society of Eastern India, in December 1998.
See Curriculum Vitae.
Audrey King, M.A., is an internationally known writer, speaker, and advocate on disability issues. A trained rehabilitation psychologist she is the author of two books, Count Me In (1985) and There's Lint in Your Belly Button (1987), both of which focus on integration of persons with disabilities in society. Ms King has been using ventilator, electric wheelchair and personal assistance since 1952.
