Organisation Building

Disability Awareness in Action
Resource Kit No. 4

Part three, Facts and Figures

1. About DAA

Disability Awareness in Action (DAA) is an international public education campaign, established in 1992, to promote, support and co-ordinate national action by disabled people's own organisations and their allies to further the equalisation of opportunities and the human rights of all disabled people, in accordance with the United Nations World Programme of Action Concerning Disabled Persons (1983).

DAA provides and disseminates information to help disabled people and their organisations to use the channels and contacts needed to influence governments and policy-makers and to raise awareness of disability issues.

DAA does not advocate on behalf of disabled girls, boys, women and men, but works to implement the philosophy that disability is a human rights issue.

DAA Staff

• Project Director: Rachel Hurst
• Finance Officer: Kate Gane
• Information Officer: Agnes Fletcher
• Administrative Assistant: Amina Ariqy

Organisations Involved

Disabled Peoples' International (DPI) advocates the rights of disabled people. Its philosophy is that disabled people should achieve full participation and equality in all societies. The DPI network has over 100 national assembly members, over half of which are in developing countries. National affiliates aim to be cross-disability, grassroots organisations. DPI has consultative status with ECOSOC, UNESCO, ILO, UNOV.

IMPACT is an international initiative against avoidable impairment, launched by the UN Development Programme, WHO and UNICEF. The international office in Geneva coordinates national IMPACT foundations in a number of developing and developed countries. Joining forces with governments, institutions and the mass media, the foundations help initiate low-cost measures to combat disability.

International League of Societies of Persons with Mental Handicap (ILSMH) is the only organisation which speaks for the world's 40 million people with mental impairments, their families and those who work for them. The League now includes 100 societies from 67 countries. It exists to help its members fulfil their own objectives in response to local need. ILSMH has consultative status with the UN.

Rehabilitation International (RI) is a federation of 165 national and international organisations in 90 countries conducting programmes to assist people with disabilities and all who work for prevention, rehabilitation and integration.

World Federation of the Deaf (WFD) is an international organisation of national associations of the deaf. The WFD was established in 1951 and is working towards full participation and equal rights for deaf people. Consultative status with the UN.

Executive Committee

• Chairperson: Henry Enns (DPI)
• Vice-Chairperson: Murray Holmes (WFD)
• Vice-Chairperson: John Chillag (ILSMH)
• Secretary: Anneli Joneken (DPI)
• Treasurer: Senator Eita Yashiro (DPI)
• Information: Mary Holland (RI)

2. Addresses

AHRTAG (Appropriate Health Resources & Technologies Action Group), 1 London Bridge Street, London SE1 95G, United Kingdom.

ATI (Appropriate Technology International), 1331 H Street NW, Washington DC 20005, USA.

Department of Public Information, United Nations, New York NY 10017, United States of America. Tel: +212 963 0353. Fax: +212 963 4556.

Disability Awareness in Action, 11 Belgrave Road, London SWIV 1RB, United Kingdom.

Tel: +44 71 834 0477. Fax: +44 71 821 9539. Minicom: +44 71 821 9812.

Disabled Peoples' International, 101-7 Evergreen, Winnipeg, R2L 2T3, Canada.

Tel: +204 287 8010. Fax: +204 287 8175.

Disability Programmes Unit of the United Nations, 2 United Nations Plaza, New York, NY, 10017, USA. Tel: +212 963 1996.

Economic and Social Commission for Asia and the Pacific (ESCAP), United Nations Building, Rajdamnern Avenue, Bangkok 10200, Thailand. Tel: +66 2 282 9161. Fax: +66 2 282 9602.

Economic and Social Commission for Western Asia (ESCWA), P0 Box 927115, Amman, Jordan. Tel: +962 6 694 351. Fax +962 6 694 980 82.

Economic Commission for Africa (ECA), P0 Box 3001 ,Addis Ababa, Ethiopia. Tel: +251 1 517200.

Economic Commission for Europe (ECE), Palais des Nations, 1211 Geneva 10, Switzerland.

Tel: +41 22 73460 11. Fax: +41 22 739825.

Economic Commission for Latin America and the Caribbean (ECLAC), Casilla 179D, Santiago, Chile. Tel: +562 208 5051. Fax: +562 208 0252.

IMPACT, c/o WHO, Room L225, 20 Avenue Appia, CH-1211, Geneva 27, Switzerland.

Tel: +41 22 791 3733. Fax: +41 22791 0746.

ILO (International Labour Office), 4 rue des Morillons, CH-1211, Geneva 22, Switzerland.

International League of Societies of Persons with Mental Handicap (ILSMH), 248 Avenue Louise, bte. 17 Brussels, Belgium B-1050.

Tel: +3226476180. Fax: +3226472969.

Rehabilitation International, 25 East 21St Street, New York, NY 10010, United States of America.

Tel: +1 212 420 1500. Fax: +1 212 505 0871.

TALC (Teaching Aids at Low Cost), PO Box 49, St. Albans, Herts. ALl 4AX, United Kingdom.

United Nations Centre for Human Rights, 8-14 Avenue de la paix, CH-1211 Geneva 10, Switzerland.

Tel: +41 22 907 1234. Fax: +41 22 917 0123.

United Nations Children's Fund, (UNICEF), UN Plaza, New York, NY 10010, USA.

Tel: +1 212 326 7000. Fax: +1 212 326 7336.

United Nations Development Programme, One UN Plaza, New York, NY 10017, USA.

United Nations Disabled Persons Unit, Department for Policy Coordination and Sustainable Development, United Nations, New York, NY 10017, USA.

United Nations Non-Governmental Organisations Liaison Service, Palais des Nations, 1211, Geneva, Switzerland.

World Blind Union, 224 Great Portland Street, London WIN 6AA, United Kingdom.

Tel: +44 71 388 1266. Fax: +44 71 383 0508.

World Federation of the Deaf, PO Box 65, SF-00401 Helsinki, Finland.

Tel: +358 0 58031. Fax: +358 0 580 3770.

WHO (World Health Organisation), 1211 Geneva 27, Switzerland. 27.

3. Publications

Conquest. DPI North American and Caribbean Region quarterly news magazine.

Cooperatives for the Disabled: Organisation and Development. ILO, 4 Route des Morillons, CH-1211 Geneva 22, Switzerland.

Cooperatives of Disabled Persons: A Guide for Promotion and Organisation. United Nations Decade of Disabled Persons (1991). From Committee for the Promotion of Aid to Cooperatives, Via delle Terme di Caracella, 00100 Rome, Italy. English only.

The Cooperative Way - Practical Advice on Self-Management in Worker Cooperatives. Industrial Common Ownership Movement - ICOM. Pamphlet No. 8, Leeds, 1979.

Directory of Disability Organisations and Services in the Americas (English and Spanish). Inter-American Children's Institute, Av. 8 de Octubre 2904, 11600, Montevideo, Uruguay.

Disabled Peoples' International Development Policy and Strategy. DPI Headquarters, Box 360 33,S-l00 71 Stockholm, Sweden (1988).

Disabled Persons' Bulletin (English, French and Spanish). Centre for Social Development and Humanitarian Affairs (CHDSA). Three times a year.

DPI Funders List. Disabled Peoples' International.

Ideas on Proposal Writing and Financial/Technical Assistance (English, French, Spanish). International Women's Tribune Centre, 777 United Nations Plaza, New York, NY 10017, USA. Free.

ILSMH News, (English, French, Spanish and German). The League's newsletter. Sw.Fr. 50 per year.

International Rehabilitation Review. RI newsletter. Published three times a year. $30 a year, incl. airmail postage. Free to RI members and some individuals and organisations in developing countries.

Organising a Meeting. Disabled Peoples' International.

The Programmer's Tool Kit. Disabled Peoples' International. How to develop a project proposal, a budget guide, simple guidelines for evaluating projects and development programmes.

Role of Organisations of Disabled People. DPI Headquarters, Box 360 33, S-l00 71 Stockholm, Sweden (1988).

SAFOD Development Notebooks: 1.20 Questions about Development. 2.20 Questions on Self-Education and Organising Seminars. 3. 20 Questions about Self-Help Projects. 4. Women's Regional Development Programme. Southern African Federation of the Disabled, 130 Herbert Chitepo Street, 12th Avenue, PO Box 2247, Bulawayo, Zimbabwe.

Fax: +263 9 74398.

Self-Help Organisations of Disabled Persons (ST/ESCAP/ 1087). United Nations Economic and Social Commission for Asia and the Pacific (1985). From the Centre for Social Development and Humanitarian Affairs.

SolidaritÈ. Quarterly newsletter of the West African Federation of Associations for the Advancement of Handicapped Persons.

A Successful Cooperative: The Story of the Deedar Cooperative Society in Comilla, Bangladesh. BARD. Comilla, 1983.

Vox Nostra (English, French, Spanish). Quarterly newsletter of Disabled Peoples' International.

La Voz. DPI Latin American Region newsletter.

WFD News. Quarterly newsletter of the World Federation of the Deaf. English only.

World Programme of Action Concerning Disabled Persons (six languages). United Nations Disabled Persons Unit, Department for Policy Coordination and Sustainable Development, United Nations, New York, NY 10017, USA.

4. Words

accountability - responsibility to an individual or a group for certain actions

autonomous - having a large degree of self-government; independent and with its own laws

budget - summary of expected income and expenditure for a particular period of time

bylaws - regulations of a company or organisation

catalyst - person or thing that starts or causes change

community-based rehabilitation - rehabilitation focused on self-help and participation, taking place in the disabled person's community, making full use of the resources of family and community

consensus - general or widespread agreement

consultancy - asking an outside person, with special knowledge, for advice or help cooperative - owned collectively and managed for joint economic benefit

cross-impairment - including people with a range of different impairments

endorsement - approval or support

euthanasia - "easy death": the act of killing someone painlessly

evaluation - judge or assess the value or worth of something

facilitator - helping progress, while allowing others to retain choice and control

feedback - information or opinion in response to an inquiry or proposal

foetus - human embryo from the second month of pregnancy until birth

forum - meeting or medium for open discussion of subjects of public interest

gene - a "unit of heredity", which passes on the particular characteristics of a parent to their offspring

genetic engineering - altering genes as a way of changing the characteristics of living things

income-generating project - a project providing work and income for the people involved

independent living - having the opportunity to make decisions that affect one's life and pursue activities of one's own choosing

interaction - mutual or reciprocal action

laissez-faire - "letting it happen"; not interfering in the progress of things

leadership training - training designed to help people organise, run, manage and make decisions for a group, community or organisation

people with learning difficulties - term chosen by people with intellectual impairments in the UK

mandate - an official instruction or command

marginalise - treat as though unimportant, insignificant, not central

minutes - official record of a meeting, conference, etc.

mobilisation - to organise for a purpose

monitoring - keeping a continuous record; observing the activity or performance of something

non-governmental organisation (NGO) - established by members of the community to carry out a particular activity or service for that community; non-profit making; not controlled by government

panel - a group of people selected to discuss a topic in front of an audience

peer - person equal in social status, rank, age, etc.; person with whom you share a major characteristic

peer counselling - counselling by and for disabled people

perception - way of looking at something; view on something

secretariat - office responsible for administrative, secretarial and clerical affairs of an organisation

self-help - mutual support; group solidarity; exchange of practical information, insight and knowledge gained through personal experience; collective action to improve an existing situation

sterilisation - to make infertile or incapable of bearing offspring

strategy - particular long-term plan for success

stipulation - a specific request, often necessary as a condition of an agreement

support services - enable disabled persons to live as equal members of the wider community; include peer counselling, information and referral services on community resources, skills training, advocacy