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Consultation and Influence
Disability Awareness in Action
Resource Kit No. 2
Download the Consultation and Influence Kit as a PDF file (143 KB)
Part One. Influence
1. Why Influence is Important
"Equalisation of opportunities means the process through which the general system of society, such as the physical and cultural environment, housing and transportation, social and health services, educational and work opportunities, cultural and social life, including sports and recreational facilities, are made accessible to all" (WPA/12)Dreams Alone Don't Change the World
"to promote...the realisation of the goals of 'full participation' of disabled persons in social life and development, and of 'equality'...opportunities equal to those of the whole population and an equal share in the improvement in living conditions resulting from social and economic development." (WPA/1)This resource kit aims to help organisations of disabled people and their direct representatives in their work:
"Member states should establish direct contacts with organ is actions of disabled people and provide channels for them to influence government policies and decisions in all areas that concern them." (WPA/93)As disabled people, we particularly need to make contact with anyone who has the power to make decisions which affect our lives. Terms like "public official", "influential person" and "policy-maker" are used in this resource kit. This could be a village elder, the head teacher of the local school, a political representative, the local radio producer or the boss of a big company.
"As disabled people have equal rights, they also have equal obligations. It is their duty to take part in the building of society." (WPA/26)Policy-makers can only act on what they know. We need to tell them about ourselves and the issues that concern us; remind them frequently of who we are and what we have a right to expect.
"The rights of persons with disabilities to participate in their societies can be achieved primarily through political and social action." (WPA/6O)Social and Political Change
"In many cases, public education and awareness campaigns have been launched to educate the public to alter its attitudes and actions towards disabled persons." (WPA/61)One of the simplest ways to influence somebody is to tell them about yourself. Everybody is different and difference can be frightening.
"Legislation has in many cases been enacted to guarantee to disabled persons the rights to, and opportunities for, schooling, employment and access to community facilities, to remove cultural and physical barriers and to proscribe discrimination against disabled persons." (WPA/61)Sometimes, the best way to affect laws, policies and services is by the kind of public awareness described above - by creating the right atmosphere for legislative change. In some cases, legislation that changes behaviour, like access laws, can encourage changes in attitudes, as people begin to see the benefits of the legislation.
"Anyone in charge of any kind of enterprise should make it accessible to people with disabilities. This applies to public agencies at various levels, to non-governmental organisations, to firms and to private individuals." (WPA/23)Local Level
Who | Why |
A. Local authorities | To influence local by-laws and budgets and to formalise change. Speak to their officers, civil servants, etc., as well. National Level |
Village elders | |
Town planners | |
B. Professionals: education, health, welfare, business, law, medicine, media, etc. | For awareness-raising through community leaders and for specific action: accessible schools and churches, a local radio programme on disability. This can lead to examples of good practice which will influence the people in group A. |
Trade unions | |
Religious leaders | |
C. General public | For support in campaigns from people who will also benefit from change (e.g. parents and friends, users of local facilities, mothers carrying children). This shows the policy-makers that changes are supported by a large part of society. |
National Level
Who | Why |
A Ministers | To influence national laws and regulations. |
Civil servants | |
B Other statutory authorities: health, housing, transport, etc. | To influence their policies and practices and for specific action, such as community-based rehabilitation, accessible housing and transport systems, etc. |
C Other (voluntary) bodies: charities, NGOs, aid agencies, trade unions | For support in campaigns. Regional Level |
D Associations of professionals | To change their policies and structure to include the real needs of disabled people. To get their support in raising awareness. |
E General public | To raise awareness of disability issues and to show that we are part of the general public. As at local level, show how change benefits all. |
Regional Level
Who | Why |
A National representatives to regional bodies | Contact with representatives of your own country means that they will support appropriate regional policies and programmes. If you can make the contact regular, your influence will be greater. |
B Committees of regional bodies | Contact can also be made formally through petitions and letters. Use the WPA as a briefing document. |
C UN regional commissions | Send these bodies copies of your own policy documents and plans. Ask to see any material they have produced on disability. |
International Level
Who | Why |
A United Nations | Each member state of the UN has a mission that represents it at the General Assembly in New York. Make contact and inform them of the views of disabled people in your country. Concentrate particularly on issues to be discussed at the Third Committee. |
B Other international groupings of countries | Your country may have a representative on one of the important committees. Your influence with them can affect policy. Shared programmes on disability with countries with the same language, legal system, etc., can be very useful. |
C International non-governmental organisations | International organisations share many common interests and can benefit from sharing information. Each organisation should speak on its own behalf at the UN, while recognising the benefits of speaking with one voice on some issues. |
D Multinational companies | These companies have a major influence on employment and the economy in any country. They need to be aware of disability issues. They may be able to transfer examples of good practice from one country to another. |
Public Officials and their Assistants
When it comes to influencing policy-makers and service-providers at every
level, there are always two sets of people to concentrate on: the officials
themselves, and the people who inform and advise them - their civil servants,
officers or assistants.
Example 1
An elder may have political authority and power in your village, but there
are other people around him - his brothers or sons, wife or mother, the
local tax collector - who need to be influenced, as they advise and inform
the elder.
Example 2
There are plans to rebuild the secondary school in your town. As well as
the architect in charge of the plans and the head teacher of the school,
you can talk about the opportunities for improved access with their deputies
or assistants. If any of these people is disabled or has a disabled friend
or relative, that can be a good starting point.
Example 3
Many countries have appointed ministers with responsibility for the welfare
of disabled people. The minister will be supported and advised by civil
servants. Make sure that civil servants know what you want, as well as the
minister.
Whoever they are, powerful people are usually very busy. They are briefed
(told about an issue) by advisers and assistants. These people decide what
subjects should be considered by the official. Before you can hope to reach
the people at the top, you must get their assistants to support you. Try
to set up meetings with these people.
Education Professionals
"A prerequisite for successful integration is the provision of appropriate teacher-training programmes, for both ordinary teachers and special teachers. The concept of integrated education should be reflected in teacher-training programmes." (WPA/146)An integrated approach to education is good for both disabled and non-disabled children. Talk to teachers at local schools, to parents' associations, to education boards and to teacher training colleges about disabled children's needs and about the advantages of an integrated approach.
"Too often, the professional and other service personnel with whom disabled persons come into contact fail to appreciate the potential for participation by disabled persons in normal social experiences and thus do not contribute to the integration of disabled individuals and other social groups." (WPA/73)Health and social welfare professionals, like teachers, need to be made aware of disabled people's rights. In the past, most professionals viewed us as tragic creatures to be looked after and pitied by society. Many still do.
"Important resources for rehabilitation exist in the families of disabled persons and in their communities. In helping disabled persons, every effort should be made to keep their families together, to enable them to live in their own communities and to support family and community groups who are working with this objective." (WPA/17)PROJIMO is a small, rural community-based rehabilitation (CBR) programme in Mexico. Disabled people and members of their families take the lead in management, provision of services and decision-making. (PROJIMO is a Spanish word for "neighbour". It also stands for "Programme of Rehabilitation Organised by Disabled Youth of Western Mexico".)
There should be mutual cooperation at the central and local level between government and employers' and workers' organisations in order to develop a joint action with a view to ensuring more and better employment opportunities for disabled persons." (W PA/131)One of the most important ways in which disabled people are discriminated against is at work and in trying to get work. We must raise awareness about our skills among employers. Why not arrange a meeting with the boss of a big company? Some international companies, like MacDonald's and IBM, have good employment policies - are they carried out in your country?
"Member states are encouraged to adopt a policy ensuring disabled persons access to all new public buildings and facilities, public housing and public transport systems. Furthermore, measures should be adopted that would encourage access to existing public buildings and facilities, housing and transport." (WPA/114)The most obvious difficulty faced by disabled people, which prevents participation in community life, is the problem of access - getting into a school to learn, being able to catch a bus to work.
"Guidelines should be developed in consultation with organisations of disabled persons to encourage the news media to give a sensitive and accurate portrayal of as well as fair representation of and reporting on, disabilities and disabled persons in radio, television, film, photography and print." (WPA/149)When you use the media, you are making an issue widely available to readers, listeners and viewers. Remember, an average of one in ten people in most countries has some form of impairment and one in four people - including friends and family - is directly affected by disability. Make use of the media to tell people what you are doing and what you want.
"Measures should be undertaken to ensure that disabled persons have the opportunity to benefit fully from the religious activities available to the community. In this way, the full participation by disabled persons in these activities will be made possible." (WPA/136)Religious leaders are at the very centre of community life, with contacts in every part of society. They are extremely influential people; their followers look to them for guidance in opinion and behaviour. Remember to include them if you arrange meetings for community leaders.
"Progress in reaching the goals of the Programme could be achieved more quickly, efficiently and economically if close cooperation were maintained at every level." (WPA/155)It's important to try to have an influence at every level - local, national, regional and international government; local, national and multinational companies; non-governmental organisations and aid agencies. Your work at one level can help indirectly at other levels as well.
"What is required is to focus on the ability, not on the disability of disabled persons." (WPA/27)Policy-makers may seem to accept what you are saying, but make sure they really understand. You may have to keep reminding them that disabled people are the experts. This is a hard thing for many people to accept.
Contents Consultation & Influence